Amazon.com: The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (A Johns Hopkins Press Health Book) (9780801865213): Ms. Nancy L. Mace MA, Dr. Peter V. Rabins MD MPH, Dr. Paul R. McHugh MD: Books

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The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (A Johns Hopkins Press Health Book)
 
 
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The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (A Johns Hopkins Press Health Book) [Large Print] [Paperback]

Ms. Nancy L. Mace MA (Author), Dr. Peter V. Rabins MD MPH (Author), Dr. Paul R. McHugh MD (Foreword)
4.2 out of 5 stars  See all reviews (19 customer reviews)


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Book Description

January 2, 2001 0801865212 978-0801865213 3rd

"I welcome with enthusiasm the third edition of this book for families and friends of patients with dementing illnesses. It has served well in its prior appearances and should accomplish even more with this edition." -- Paul R. McHugh, M.D., in the foreword

Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care.

Topics that have been added or extensively revised include: Updated terminology and statistics • New material on the evaluation of persons with dementia • Updated changes in laws on driving • A new section on hospice care • New information on assisted living facilities and financing care • Information on other types of dementia • The latest findings on eating and nutrition • New medical research in areas such as drugs, genetics, and diagnostic tests. The revised appendices include: New bibliographic references • websites • Updated addresses of associations and state offices.

Praise for previous editions:

"The best guide of its kind." -- Chicago Sun Times

"An excellent book for families who are caring for persons with dementia... A book that physicians can confidently recommend to the families of their patients." -- Journal of the American Medical Association

"Excellent guidance and clear information of a kind that the family needs... The authors offer the realistic advice that sometimes it is better to concede the patient's frailties than to try to do something about them, and that a compassionate sense of humor often helps." -- New York Times

"An excellent, practical manual for families and professionals involved in the care of persons with progressive illnesses... The book is specific and thought-provoking, and it will be helpful to anyone even remotely involved with an 'impaired' person... Highly recommended, especially for public and nursing libraries." -- Library Journal

" The 36-Hour Day has served its readers well. The revised edition should be even more useful both to family caregivers and professional health care providers." -- HMO Practice

"The reader who is familiar with the first edition will recognize the strengths that continue in the revised edition -- numerous case examples, practical advice, thoroughness of coverage, and communication of caring and humane attitudes while presenting information that may be sensitive and upsetting to families." -- Clinical Gerontologist



Editorial Reviews

From Library Journal

It has been estimated that five percent of older people suffer from severe intellectual impairment. So these two eloquent and readable guides will be much in demand as the number of families facing the challenge of caring for a relative with some form of dementing illness continues to grow. First published in 1981, The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during the various stages of the disease (for example, place a picture of a toilet on the bathroom door), the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions. Appendixes list recent books, videos, web sites, and U.S. and international organizations. The thrust of GentlecareR is a well-argued plea for a radical change in the way we care for Alzheimer's patients. In outlining her program, Jones states that this rethinking involves people, physical space, and individualized programs. Everyone in the physical plant, from maintenance worker to director, belongs to the care-giving team, as do family members and volunteers. Only when impaired persons can no longer perform for themselves a task like feeding themselves or dressing should it be done for them. Care should concentrate on what can be done, not what cannot. Because her emphasis is on the need for a comprehensive program of care and concentrates more on the institutional setting, Jones does not provide as many practical suggestions or the depth of advice for home care that Mace and Rabins do. Rather, her book describes how facilities can be designed and staffs trained to optimize the quality of life for patients. Both titles are highly recommended: Rabins and Mace for the practical help and advice, Jones for her eloquent presentation of a comprehensive program that treats patients with dignity.AJodith Janes, Cleveland Clinic Fdn.
Copyright 1999 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

Review

"Both a guide and a legend." -- Bard Lindeman, Chicago Tribune



"Thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during various stages of the disease (for example, place a picture of a toilet on the bathroom door), the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions... Highly recommended." -- Library Journal


Product Details

  • Paperback: 608 pages
  • Publisher: The Johns Hopkins University Press; 3rd edition (January 2, 2001)
  • Language: English
  • ISBN-10: 0801865212
  • ISBN-13: 978-0801865213
  • Product Dimensions: 9.2 x 6.1 x 1.1 inches
  • Shipping Weight: 2 pounds
  • Average Customer Review: 4.2 out of 5 stars  See all reviews (19 customer reviews)
  • Amazon Best Sellers Rank: #1,398,701 in Books (See Top 100 in Books)

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Customer Reviews

19 Reviews
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Average Customer Review
4.2 out of 5 stars (19 customer reviews)
 
 
 
 
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51 of 52 people found the following review helpful:
5.0 out of 5 stars Excellent for entire family system, especially the caregiver, September 15, 1999
By A Customer
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The book is informative, explicit for people who know nothing about mental health and diseases of the mind. Good for the lay person, the afflicted person, all of the family. Gives insight and helps with understanding care of the patient, and the grief involved for those around the patient. Good reference--I will be using it in a church group setting also.
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17 of 17 people found the following review helpful:
5.0 out of 5 stars A "Must Have" for anyone dealing with Alzheimer's, March 20, 2001
By 
J. Daniels (Philadelphia, PA) - See all my reviews
This book covers every aspect of the disease, and will be dog eared and reread as things progress. It helps the reader understand what is happening, how to deal with a person's deterioration more effectively, useful strategies, and preparation for the next phase of the disease. You will feel that you are not alone, and the book provides a sense of comfort and empowerment in dealing with this catastrophic illness. It was by the bedside table on each member of the family, during the entire 7 and a half year decline of a loved one. An essential resource.
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10 of 10 people found the following review helpful:
5.0 out of 5 stars Essential for families experiencing Alzheimer's, January 4, 2001
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The small type notwithstanding, this book has been so helpful to us in understanding how to deal with our family member and her spouse. Each experience we have had seems to be covered; I wish we had bought this when we first noticed symptoms, long before she was diagnosed, and long before her spouse would admit there was a problem. However, we did find that when we gave it to the (elderly) spouse, he did not read it and found the large amount of material daunting. I don't think a smaller type face would have helped, as the other reviewers indicated, because it would have then been even a longer, larger book. What he finally *would* read was only a brochure from the doctor, which was very basic.
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Inside This Book (learn more)
First Sentence:
For two or three years Mary had known that her memory was slipping. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
home ombudsperson, people with dementing illnesses, confused person, people with dementia, forgetful person, forgetful people, impaired person, catastrophic reaction, person with dementia, wandering behavior, nursing home reform, irreversible dementia
Key Phrases - Capitalized Phrases (CAPs): (learn more)
Alzheimer's Association, United States, Department of Veterans Affairs, Department of Motor Vehicles, Medical Assistance, Supplemental Security Income
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