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Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit 1st Edition

ISBN-13: 978-0195390384
ISBN-10: 0195390385
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Editorial Reviews


"The topics the book covers represent a pantheon of issues relating to genetic translation, from the political underpinnings to the historic uses of newborn screenings. The chapters covering prenatal and neonatal screenings are especially well done." -- Doody's

"There are several challenges in promoting genetics research to reduce disparities... most challenging is that social determinants of health are probably more important than genetics for reducing disparities. The editors and contributors of Achieving Justice in Genomic Translation rightly emphasize the importance of making 'these implicit trade-offs explicit in public debate' (p 197). They should be congratulated for initiating the conversation." -- Lainie Friedman Ross, MD, PhD, JAMA

About the Author

Wylie Burke, MD, PhD, is Professor and Chair of the Department of Bioethics and Humanities at the University of Washington, Seattle, WA. She is a physician, trained in internal medicine and genetics, whose work focuses on the ethical and policy implications of genetics in medicine, public health and research. She is Chair of the Institute of Medicine Roundtable on Translating Genome-based Research for Health and past President of the American Society of Human Genetics.

Kelly Edwards, PhD, is an Associate Professor in the Department of Bioethics and Humanities, Core Faculty in the Institute for Public Health Genetics. She is also a co-investigator with the NHGRI-funded Center for Genomics and Healthcare Equality, the NCRR-funded Institute for Translational Health Sciences, and the NIEHS-funded Center for Ecogenetics and Environmental Health.

Sara Goering, PhD, is Assistant Professor of Philosophy and member of the Program on Values in Society and the Program on Disability Studies at the University of Washington, Seattle, WA. She specializes in bioethics and her work combines feminist theory, disability studies, and concerns about justice for marginalized populations.

Suzanne Holland, PhD, is Professor of Ethics & Religion and Philip M. Phibbs Research Scholar at University of Puget Sound in Tacoma, WA. She is an Affiliate Professor at University of Washington's School of Medicine, Department of Bioethics and Humanities, and a past Board member of the American Society for Bioethics and Humanities. Her work focuses on issues of justice, gender, new genetic technologies, and the commodification of the human body.

Susan Trinidad, MA, is a qualitative researcher in the Department of Bioethics and Humanities and a co-investigator with the Center for Genomics and Healthcare Equality. Previously, she was Executive Director of Product Development for a company specializing in telephone nurse triage, patient education, and behavior-change counseling services for chronically ill patients.


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