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After the Cure: The Untold Stories of Breast Cancer Survivors [Hardcover]

Emily K. Abel (Author), Saskia K. Subramanian (Author)
4.0 out of 5 stars  See all reviews (2 customer reviews)

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Book Description

September 1, 2008 0814707254 978-0814707258 1

2009 Choice Outstanding Academic Title

2009 Association of American University Presses Award for Jacket Design

Chemo brain. Fatigue. Chronic pain. Insomnia. Depression. These are just a few of the ongoing, debilitating symptoms that plague some breast-cancer survivors long after their treatments have officially ended. While there are hundreds of books about breast cancer, ranging from practical medical advice to inspirational stories of survivors, what has been missing until now is testimony from the thousands of women who continue to struggle with persistent health problems.

After the Cure is a compelling read filled with fascinating portraits of more than seventy women who are living with the aftermath of breast cancer. Emily K. Abel is one of these women. She and her colleague, Saskia K. Subramanian, whose mother died of cancer, interviewed more than seventy breast cancer survivors who have suffered from post-treatment symptoms. Having heard repeatedly that "the problems are all in your head," many don't know where to turn for help. The doctors who now refuse to validate their symptoms are often the very ones they depended on to provide life-saving treatments. Sometimes family members who provided essential support through months of chemotherapy and radiation don't believe them. Their work lives, already disrupted by both cancer and its treatment, are further undermined by the lingering symptoms. And every symptom serves as a constant reminder of the trauma of diagnosis, the ordeal of treatment, and the specter of recurrence.

Most narratives about surviving breast cancer end with the conclusion of chemotherapy and radiation, painting stereotypical portraits of triumphantly healthy survivors, women who not only survive but emerge better and stronger than before. Here, at last, survivors step out of the shadows and speak compellingly about their "real" stories, giving voice to the complicated, often painful realities of life after the cure.

This book received funding from the Susan G. Komen Foundation.


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Editorial Reviews

From Publishers Weekly

A professor and an assistant research sociologist, respectively, at the University of California, Los Angeles, Abel and Subramanian speak with scores of breast cancer survivors to explore, in depth, the post-treatment symptoms caused by radiation, chemotherapy and surgery, "giving voice to a neglected aspect of the breast cancer experience." The women talk with Pat Garland, for example, whose treatment left her with several debilitating symptoms, including chronic joint pain in her arms and legs, that her doctors dismissed: "there was no validation... They saved my life, but then the value of my life after they saved it with the chemotherapy was zero." The authors hear similar stories from other women such as Ida Jaffe and Leanne Thomas, whose post-treatment symptoms include "hot flashes, dental and vision problems, insomnia, memory loss, fatigue and depression." With cogent, compassionate analysis, Subramanian and Abel (herself a survivor) remind us of the lasting effects of cancer diagnoses, and the tremendous work still ahead for patients who must learn to trust their gut, and doctors who must learn to listen more considerately.
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.

Review

“With cogent, compassionate analysis, Subramanian and Abel (herself a survivor) remind us of the lasting effects of cancer diagnoses, and the tremendous work still ahead for patients who must learn to trust their gut, and doctors who must learn to listen more considerately.”
-Pubishers Weekly

,

“An in-depth exploration of the symptoms experienced by some women after breast cancer treatment, giving voice to a neglected aspect of the breast cancer experience. . . . This book calls important attention to the plight of these women.”
-Patricia A. Ganz,University of California, Los Angeles, Schools of Medicine and Public Health



“Reveal[s] the long-term posttreatment symptoms that physicians fail to address. . . . Women who have felt more isolated after treatment will welcome this validation that they are not alone.”
-Library Journal

,

“Reveals the long-term post-treatment symptoms that physicians fail to address.”
-Library Journal

,

“After the Cure provides voice to breast cancer survivors thrust into a netherworld of chronic disability.”
-Macleans.ca

,

Product Details

  • Hardcover: 208 pages
  • Publisher: NYU Press; 1 edition (September 1, 2008)
  • Language: English
  • ISBN-10: 0814707254
  • ISBN-13: 978-0814707258
  • Product Dimensions: 8.3 x 5.6 x 0.8 inches
  • Shipping Weight: 11.2 ounces (View shipping rates and policies)
  • Average Customer Review: 4.0 out of 5 stars  See all reviews (2 customer reviews)
  • Amazon Best Sellers Rank: #1,304,111 in Books (See Top 100 in Books)

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14 of 14 people found the following review helpful:
5.0 out of 5 stars Excellent -- for medical professionals, survivors, family and friends, September 30, 2008
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This review is from: After the Cure: The Untold Stories of Breast Cancer Survivors (Hardcover)
This book fills a very important void. As a psychologist working with many breast cancer survivors, I have witnessed the harm that occurs when women report disturbing symptoms, and are unable to find validation that these symptoms are real, and are, indeed, associated with breast cancer treatment. We know that human resilience is enhanced when the person suffering is able to share her experience with others. Knowing that she is not alone, and that she is not imagining the symptoms, will certainly enhance a woman's willingness to share. Rather than purely theoretical information, the book provides personal stories of numerous women. Not only do their stories illuminate common physical symptoms, but also, the emotional experience of having these symptoms, and of having breast cancer. My hope is that these first person accounts will influence researchers to examine the side effects of treatment. Until we find ways to avoid the side effects, we can, at the very least, validate the reality that breast cancer survivors endure.

The authors have treated the women, and the subject, with remarkable sensitivity. The book is extraordinarily engrossing. I highly recommend the book to women undergoing breast cancer treatment, to their family members and friends. And I strongly encourage the health care professionals to read the book, and consider sharing it with their patients.
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0 of 2 people found the following review helpful:
3.0 out of 5 stars Interesting stories but not so helpful guidance, December 13, 2011
I read this book as a spouse of a cancer survivor (my wife) who recovered from Hodgkins. I didn't realize the format of the book was really quotes from cancer survivors. Overall, I thought the book did a good job at capturing the sentiments of breast cancer survivors, and is a good resource to bring survivors out of the emotional isolation that comes with being around hospitals.

That being said I thought there was a lot of quotes of resentment and anger towards the medical community - justified, to be sure - but which I do not think are healthy attitudes for people recovering from cancer. One woman describes a response to her friend who said cancer is a "blessing". "So then finally I said to her, 'You know, I have you on my prayer list. I pray you get cancer so you see the wonderful happiness and goodness that comes out of this'".

I'm pulling this quote from the entire book to give you it's more cynical side. Obviously there are good parts of the book - Chapters 3 and 4 in particular, which talk about healthy recovery.
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Inside This Book (learn more)
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
bad experience into something good
Key Phrases - Capitalized Phrases (CAPs): (learn more)
New Ground, Something Good, Narrowed Lives, Bad Experience, Ida Jaffe, Pat Garland, Rose Jensen, Greta Shaw, Marge Barlow, African American, Nina Worth, Annie Briggs, Leanne Thomas, Jean Trawick, Marsha Dixler, Remedying Managing, Los Angeles, United States, American Cancer Society, Wellness Community, New York
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