"Alzheimer's Disease: Caregivers Speak Out" is a guide for families, friends,professionals and students to better understanding those who have Alzheimer's disease and the people who care for them. Through their own heartfelt words and experiences, caregivers share feelings and ideas in an effort to teach others about this disease. Caregivers say they wish this had been the first book they had read when seeking information on Alzheiemr's disease.
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Editorial Reviews
From the Publisher
Alzheimer's is the most devastating disease for the family of anyone who has it. Other diseases may be harder on the patient, but nothing can compare to the effect of Alzheimer's on the patient's family. It has been called ‘the long good-bye’ among other things. It can last from a few years to as many as 20 years or more. Caregivers watch their loved ones deteriorate and regress back to infancy, eventually with no memory at all. It is as if the person you loved is no longer there. Actually, what you are caring for at the end is a physical body.”
People who have cared for a loved one with Alzheimer’s disease want to speak out on behalf of those loved ones. They want others to know what is like, so that together we can begin to understand and help one another. Caregivers have formed support groups throughout the world. They get caring support from talking with one another about the perils of having a loved one with Alzheimer’s disease. They learn ways to cope. They learn new ideas for care. And, they all seem to have the desire to SPEAK OUT. This book offers them an opportunity to tell all of us about their feelings as caregivers of persons with Alzheimer's disease.
From the Author
As a nurse, educator, support group facilitator, and Alzheimer’s disease researcher, I have heard words of despair from caregivers and families all too often. How can any of us understand, if we have not had to personally care for a person who has Alzheimer’s disease? How can we even try to help others, if we do not understand?
The first three chapters of my book will consist of information, facts, and findings about Alzheimer's as the disease. The subsequent chapters were, in essence, “written” by those who responded to a survey asking “What do you wish others knew and understood about Alzheimer's disease?”
I have compiled within this publication the responses to my surveys from over 200 caregivers. I personally thank each and every one of them who took the time to share their heartfelt stories and their personal feelings. Together we can begin to understand and learn new ways to cope and care for persons with this dementing disease, because we are learning from the finest teachers, the experienced--the caregivers of those afflicted with Alzheimer's disease.
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Most Helpful Customer Reviews
9 of 9 people found the following review helpful:
5.0 out of 5 stars
A Must Read,
By JAMIE SENECA (Florida) - See all my reviews
This review is from: Alzheimer's Disease: Caregivers Speak Out (Paperback)
I have read many books on Alzheimers' and dementia and I have found this one to be the most accurate of my own expereinces. I just wish this book was published when writting my college thesis on Alzheimer's. This book is definantly directed towards the caregiver and loved ones of the victim. It describes the disease process, creative solutions to common obstacles in the disease, as well as consistent emotions that one encounters when dealing with this disease. Pam Haisman, uses testimonies of caregivers who have and had to deal with the Alzheimer's disease. This gives the book a credibility that no other has. Due to the fact that I deal with caregivers day in and day out I am often confronted with emotion, anger and numerouse questions. I feel that the best gift that I could give them is the book,"Alzheimer's Disease". It is written in simple terms and doesn't assume that the reader is knowledgable of the disease. I have yet to have a person dissapointed in my reccomendation of this book. I give this book five stars as does everyone I have reccomended it to.
3 of 3 people found the following review helpful:
5.0 out of 5 stars
Welcome Addition to the Literature on Alzheimer's,
By A Customer
This review is from: Alzheimer's Disease: Caregivers Speak Out (Paperback)
This just published volume is a guide to understanding, caring, and coping written for family, friends, professionals, students and caregiver's. As the title suggests, this book is a compilation of heartfelt words and experiences from those who care for Alzheimer's patients, in an effort to teach others what this disease involves and the toll it can take for patient and caregiver. The book's first section introduces novices to Alzheimer's the disease, it's causes, current research, symptoms, etc. This section is particularly well organized and straightforward. Then the book presents chapter by chapter, personal experiences, stories, and pleas for understanding by professionals, adult children, young people, spouses, nurse caregivers, each of which are bravely shared. Lastly, the book's final chapters focus on ways to better manage and cope with caring for an Alzheimer's patient, and equally important, where to turn for help. This is a welcome addition to the literature on Alzheimer's disease and should be in every home connected to someone with the disease.
1 of 1 people found the following review helpful:
5.0 out of 5 stars
The Voices of Caregivers,
By Brenda Parris Sibley (Decatur, AL United States) - See all my reviews
This review is from: Alzheimer's Disease: Caregivers Speak Out (Paperback)
Pam Haisman is a nurse consultant for Alzheimer's Disease who went on the Internet to gather the stories of caregivers. Her book tells the facts about Alzheimer's, the statistics, and about the research that is being done, but the bulk of the book is the stories of caregivers, as the cover tells: "In their own words families seek compassion, professionals relate frustrations, spouses share their grief, teenagers pledge their love." This book expresses the emotions of caregiving as no other book has, in allowing over 200 caregivers to speak out about what it is really like.
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