"Dr. Taylor’s words shed light on a very dark experience and the reader is led out of the darkness by his frankness, his humor, and most of all his spirit “alive within me.” His penetrating and pleading comments related to care giving cause the reader to take a deep breath, pause, and move forward with much greater insight into the complexity of these emotional relationships. Are these innovative words asking too much of the reader? I think not. We have been shielded too long from the mysteries of Alzheimer’s disease; these fresh words compel us to shed our misperceptions and enter into the world of those who command our attention. Through Dr. Taylor’s beautiful language and poignant reflections, we approach some clarity about the long neglected and misunderstood phenomenological experience of those living with Alzheimer’s disease." (Naomi D. Nelson, Ph.D., Psychologist, Baylor College of Medicine 2001-01-01)
"This is not an ordinary book. It is an extraordinary collection of anecdotes, ruminations, insights, comparisons, literary allusion and blinding insights. Be prepared to be challenged. Be prepared to reflect on your own human failings and joy at not having Alzheimer's disease. But most importantly, be prepared to read this book." (Dementia Journal (UK)
"Such a personal telling of a tale . . . Part Eric Berne, part Henry Fonda in On Golden Pond, part the final movement of Mahler's Das Lied von der Erde, this work moves one to tears." (David O. Staats, M.D., University of Oklahoma Health Sciences Center Doody's Review Service
How poignant [these essays] are in expressing life with AD. [This] is a perspective I had not heard before and the insight is invaluable to me as a caregiver for my dad." (Molly G., family caregiver 2001-01-01)
"After reading this book I have come to the conclusion that this is perhaps the most important book in the field of dementia care ever written … Dr. Taylor writes with passion and humor about a wide range of topics that capture the experience of living with a diagnosis of "probable Alzheimer's disease" … These poignant essays come from the heart and the soul of a sensitive and intellectually gifted man who has become a national champion and advocate for the millions of people living with this disease." (Lind L. Buettner, Ph.D., CTRS, FGSA, Professor of Health Science, Florida Gulf Coast University 2001-01-01)
"[These essays] have given me lots of insight as to what goes on inside my mom’s mind. It’s hard being on the outside trying to figure out what’s going on inside." (Debra K., family caregiver 2001-01-01)
"Among the millions with this cruel disease, Richard is rare in that his preserved memory, language, and thinking skills made possible these essays about his experience of the disease. He offers valuable insights to family and professional caregivers seeking to uphold the dignity of all people living with the disease. A debt of gratitude is owed to him, his wife, and his family for refusing to go gentle into that good night." (Daniel Kuhn, M.S.W., author of Alzheimer's Early Stages 2001-01-01)
"Richard is our canary in the coal mine. He is chirping, trilling, humming. His advancement through life’s thickets lead him inside, around, and back. His questions, yearnings, satisfactions, regrets, challenges, humor, and provocations are warnings we all must head." (Laura S., caregiver 2001-01-01)
"Written with sensitivity, humor, and passion, Alzheimer's from the Inside Out describes the author's sometimes bumpy, but always insightful, journey with Alzheimer's disease. Telling his stories in a series of informative vignettes, Richard challenges us all to be more authentic and work to make life better for persons with dementia--not tomorrow, but today!" (Virginia Bell, M.S.W., co-author, The Best Friends Approach to Alzheimer's Care 2001-01-01)
"I thought I understood what life was like for my Alzheimer's-affected parents-until Richard's story enlightened me with insight into an unimaginable world. Every family with an elderly loved one, and every medical professional who works with elders, should read this gripping and marvelous book!" (Jacqueline Marcell, author of Elder Rage and host of Coping with Caregiving radio program 2001-01-01)
"Extraordinary, brilliantly insightful, inspirational, courageous, thought-provoking--there is no end to the positive descriptors that can be attached to this amazing book by Richard Taylor. Alzheimer's from the Inside Out is not only a must read for persons with Alzheimer's and their personal and professional care partners, it is, plain and simple, a must-read book." (Carol Bowlby Sifton, family caregiver, clinical dementia consultant, author of Navigating the Alzheim and editor of Alzheimer's Care Quarterly
Thoughtful and self-reflective, this collection of illuminating essays offers a rare glimpse into the often incomprehensible world of individuals living with Alzheimer's disease. Diagnosed at age 58, psychologist Richard Taylor shares a provocative and courageous account of his slow transformation and deterioration, and of the growing divide between his reality and the reality of others.
With poignant clarity, candor, and humor, Taylor addresses the complexity and emotions surrounding issues such as the loss of independence and personhood, unwanted personality shifts, the struggle to communicate, changing relationships with loved ones and friends, continuous declines in ability to perform familiar tasks, and never-ending uncertainty about the future.
Alzheimer's from the Inside Out is a captivating read for anyone affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.