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Alzheimer's from the Inside Out Paperback – December 31, 2006

ISBN-13: 978-1932529234 ISBN-10: 1932529233 Edition: Much of what is known about the experience of Alzheimer's disease comes from what care providers observe in the actions and behaviors of people diagnosed with this degenerative brain disease. The ability to describe the experience of the disease disappears into the mental fog it creates. Dr. Richard Taylor is a rare exception who offers a glimpse into an unfathomable existence. In short essays, he speaks eloquently and poignantly about the confusion, losses, and frustrations produced in a person's daily life, personal relationships, and deepest identity by this ravaging disease. Diagnosed in the early stages of the disease, this trained psychologist turns his talents to exploring the vagaries of his own mind and mental perceptions, and gives readers a revealing, philosophical account of his slow transformation and deterioration. This enlightening book is a collection of more than 70 short essays and vignettes accompanied by evocative black-and-white photos and brief facts about Alzheimer's disease. 12/5/07 AP - HPP Markeing announced price increase from $18.95 to $19.95. Four Distribution Customers (Ageless Design (12611), Alzheimer's Assoc of Mass (22977, 2592), Medifecta Healthcare Training (17952), and S & S Worldwide (2045)) we will honor inital $18.95 pricing through June 2008. 7/7/08 removed Invoice Alert from product record regarding honor old pricing for 4 Distributors (above) and removed Customer OE Alerts as offer has now expired Any Consumer Customers referencing F7L List Code honor initial $18.95 pricing
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Alzheimer's from the Inside Out + Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease + The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss
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Editorial Reviews

Review

"Dr. Taylor’s words shed light on a very dark experience and the reader is led out of the darkness by his frankness, his humor, and most of all his spirit “alive within me.” His penetrating and pleading comments related to care giving cause the reader to take a deep breath, pause, and move forward with much greater insight into the complexity of these emotional relationships. Are these innovative words asking too much of the reader? I think not. We have been shielded too long from the mysteries of Alzheimer’s disease; these fresh words compel us to shed our misperceptions and enter into the world of those who command our attention. Through Dr. Taylor’s beautiful language and poignant reflections, we approach some clarity about the long neglected and misunderstood phenomenological experience of those living with Alzheimer’s disease." (Naomi D. Nelson, Ph.D., Psychologist, Baylor College of Medicine 2001-01-01)

"This is not an ordinary book. It is an extraordinary collection of anecdotes, ruminations, insights, comparisons, literary allusion and blinding insights. Be prepared to be challenged. Be prepared to reflect on your own human failings and joy at not having Alzheimer's disease. But most importantly, be prepared to read this book." (Dementia Journal (UK) 2001-01-01)

"Such a personal telling of a tale . . . Part Eric Berne, part Henry Fonda in On Golden Pond, part the final movement of Mahler's Das Lied von der Erde, this work moves one to tears." (David O. Staats, M.D., University of Oklahoma Health Sciences Center Doody's Review Service 2001-01-01)

How poignant [these essays] are in expressing life with AD. [This] is a perspective I had not heard before and the insight is invaluable to me as a caregiver for my dad." (Molly G., family caregiver 2001-01-01)

"After reading this book I have come to the conclusion that this is perhaps the most important book in the field of dementia care ever written … Dr. Taylor writes with passion and humor about a wide range of topics that capture the experience of living with a diagnosis of "probable Alzheimer's disease" … These poignant essays come from the heart and the soul of a sensitive and intellectually gifted man who has become a national champion and advocate for the millions of people living with this disease." (Lind L. Buettner, Ph.D., CTRS, FGSA, Professor of Health Science, Florida Gulf Coast University 2001-01-01)

"[These essays] have given me lots of insight as to what goes on inside my mom’s mind. It’s hard being on the outside trying to figure out what’s going on inside." (Debra K., family caregiver 2001-01-01)

"Among the millions with this cruel disease, Richard is rare in that his preserved memory, language, and thinking skills made possible these essays about his experience of the disease. He offers valuable insights to family and professional caregivers seeking to uphold the dignity of all people living with the disease. A debt of gratitude is owed to him, his wife, and his family for refusing to go gentle into that good night." (Daniel Kuhn, M.S.W., author of Alzheimer's Early Stages 2001-01-01)

"Richard is our canary in the coal mine. He is chirping, trilling, humming. His advancement through life’s thickets lead him inside, around, and back. His questions, yearnings, satisfactions, regrets, challenges, humor, and provocations are warnings we all must head." (Laura S., caregiver 2001-01-01)

"Written with sensitivity, humor, and passion, Alzheimer's from the Inside Out describes the author's sometimes bumpy, but always insightful, journey with Alzheimer's disease. Telling his stories in a series of informative vignettes, Richard challenges us all to be more authentic and work to make life better for persons with dementia--not tomorrow, but today!" (Virginia Bell, M.S.W., co-author, The Best Friends Approach to Alzheimer's Care 2001-01-01)

"I thought I understood what life was like for my Alzheimer's-affected parents-until Richard's story enlightened me with insight into an unimaginable world. Every family with an elderly loved one, and every medical professional who works with elders, should read this gripping and marvelous book!" (Jacqueline Marcell, author of Elder Rage and host of Coping with Caregiving radio program 2001-01-01)

"Extraordinary, brilliantly insightful, inspirational, courageous, thought-provoking--there is no end to the positive descriptors that can be attached to this amazing book by Richard Taylor. Alzheimer's from the Inside Out is not only a must read for persons with Alzheimer's and their personal and professional care partners, it is, plain and simple, a must-read book." (Carol Bowlby Sifton, family caregiver, clinical dementia consultant, author of Navigating the Alzheim and editor of Alzheimer's Care Quarterly 2001-01-01)

From the Back Cover

Thoughtful and self-reflective, this collection of illuminating essays offers a rare glimpse into the often incomprehensible world of individuals living with Alzheimer's disease. Diagnosed at age 58, psychologist Richard Taylor shares a provocative and courageous account of his slow transformation and deterioration, and of the growing divide between his reality and the reality of others.

With poignant clarity, candor, and humor, Taylor addresses the complexity and emotions surrounding issues such as the loss of independence and personhood, unwanted personality shifts, the struggle to communicate, changing relationships with loved ones and friends, continuous declines in ability to perform familiar tasks, and never-ending uncertainty about the future.

Alzheimer's from the Inside Out is a captivating read for anyone affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

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Product Details

  • Paperback: 224 pages
  • Publisher: Health Professions Press; Much of what is known about the experience of Alzheimer's disease comes from what care providers observe in the actions and behaviors of people diagnosed with this degenerative brain disease. The ability to describe the experience of the disease disappears into the mental fog it creates. Dr. Richard Taylor is a rare exception who offers a glimpse into an unfathomable existence. In short essays, he speaks eloquently and poignantly about the confusion, losses, and frustrations produced in a person's daily life, personal relationships, and deepest identity by this ravaging disease. Diagnosed in the early stages of the disease, this trained psychologist turns his talents to exploring the vagaries of his own mind and mental perceptions, and gives readers a revealing, philosophical account of his slow transformation and deterioration. This enlightening book is a collection of more than 70 short essays and vignettes accompanied by evocative black-and-white photos and brief facts about Alzheimer's disease. 12/5/07 AP - HPP Markeing announced price increase from $18.95 to $19.95. Four Distribution Customers (Ageless Design (12611), Alzheimer's Assoc of Mass (22977, 2592), Medifecta Healthcare Training (17952), and S & S Worldwide (2045)) we will honor inital $18.95 pricing through June 2008. 7/7/08 removed Invoice Alert from product record regarding honor old pricing for 4 Distributors (above) and removed Customer OE Alerts as offer has now expired Any Consumer Customers referencing F7L List Code honor initial $18.95 pricing edition (December 31, 2006)
  • Language: English
  • ISBN-10: 1932529233
  • ISBN-13: 978-1932529234
  • Product Dimensions: 9.1 x 7.5 x 0.7 inches
  • Shipping Weight: 1.1 pounds (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (44 customer reviews)
  • Amazon Best Sellers Rank: #179,805 in Books (See Top 100 in Books)

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Most Helpful Customer Reviews

74 of 76 people found the following review helpful By Susan L. Mccandless on January 30, 2007
Format: Paperback
Very few books can be all things to all people. This comes very close. I have read most of the others, including the very few written by the people affected by some kind of brain condition that changes them, their behavior, their perceptions of themselves, and people's and society's perceptions of them as individuals. This book, written by a highly intelligent and verbal retired psychologist, a professional, about his own progression through the early stages of dementia, probably of the Alzheimer's type (medical people have to use that phrase as only a biopsy of the brain is definitive right now), is for everyone. Those affected, their loved ones, professionals working with those affected, academicians/researchers looking for insights, psychologists, sociologists, psychoneurologists, etc. etc. It is not just about dementia. Any brain problem that changes the person is equally relevant. I know what I speak about. I am also a retired psychologist, diagnosed with Pick's Disease, a dementia of the frontotemporal form. The causes may be irrelevant to most readers (build-up of certain proteins in the brain, vascular misfunctioning, whatever). It is the existential reality that is explored here, with exquisite insight, and humor as well. I have never met this man, but I certainly know him well now. I can't recommend this book highly enough.
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34 of 36 people found the following review helpful By Mona Johnson on March 13, 2007
Format: Paperback Verified Purchase
Alzheimer's from the Inside Out is a stunning achievement. In this collection of essays, Richard Taylor gets at the essence of dementia, and how it has redefined his relationships with family, friends and even with himself.

There are no answers when it comes to Alzheimer's, but Richard asks all the right questions. Alzheimer's from the Inside Out is much more than a resource for anyone dealing with the disease. Although the book includes plenty of practical information, Richard goes beyond test scores, standard medications and neuroimaging to the more important philosophical and psychological aspects of life after diagnosis. He takes the focus off the disease, and puts it back on the person.

I wish I'd read this book when my father were alive. I would have worried less about what was wrong with him and worried more about just being with him.
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24 of 25 people found the following review helpful By Alan Hall on February 10, 2008
Format: Paperback Verified Purchase
I have early dementia, fitting the criteria for Alzheimer's. Like the author, I was a psychotherapist in my 50s when my difficulties became such that I couldn't work. It's incredibly powerful to read his words, and see what I would have said if I were only so gifted. Most importantly, I want doctors to read this book, as most of them relate only to dementia as it looks in the end stage, and aren't familiar with what the early disease process looks like.
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21 of 24 people found the following review helpful By L. Elderly Health on August 30, 2007
Format: Paperback
This book gives a unique perspective on the feelings of the person with Alzheimer's disease. Examining how it feels to be ignored by family and doctor's as if they are not in the room as they are discussed. It is a good book for families and other caregivers to read as it can help them understand some of the behaviors that the person with Alzheimer's disease exhibit, especially fear, anger, outrage, embarrassment, etc., often they cannot explain these reactions in words and thus act out their feelings. This book helps the caregiver understand this better and helps them to see that a change in their behavior might improve their loved one's behavior.
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10 of 10 people found the following review helpful By Maeve on March 3, 2009
Format: Paperback
Yesterday I hear Mr. Taylor speak to a room of spellbound seniors in a bridge (between independent and assisted) home in Atlanta. One of these seniors is my 89 year old mother, who has been diagnosed with cardio-vascular dementia. Mr. Taylor showed me, like no book or outside expert could, what a person with dementia feels and thinks inside. As he warned the caregivers not to treat their family as children, not to snatch chores and precious belongings away, not to order them about, not to show their frustration, and so many other feelings I know I have been guilty of, I knew I had been invited into a world I needed desperately to FEEL, not just learn about, but FEEL. The room full of nodding heads and murmured agreements convinced me of the harm we who try so hard to help can do to the ones we love in our rushed quest for expediency.
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14 of 15 people found the following review helpful By Chris M. Kurth on May 14, 2007
Format: Paperback Verified Purchase
This book is a wonderful insight to the affects of Alzheimer's from a patient's perspective. It is a reminder of why we must continue to be patient, loving and understanding when dealing with anyone with the disease.

This is a book I will share and recommend to others.
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14 of 15 people found the following review helpful By Deborah Uetz on May 27, 2007
Format: Paperback
Whether you are a care giver or have been diagnosed with Alzheimer's this book will enrich your knowledge. Richard Taylor has the insight of personal experienc. He also has the gift of being able to convey that experience with passion, honesty and grit.
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11 of 12 people found the following review helpful By Raymond Andries on September 28, 2007
Format: Paperback
What a great book! Alzheimer's, one of the cruelest of afflictions, touches so many families. This book is a must read for all to understand what it means to live through the progress of Alzheimer's. Mr. Taylor takes a positive attitude towards this problem, and shares with all of us on the progress of Alzheimer's. I'm sure most people would just give up and get depressed - but, not Mr. Taylor. He continues to live life to the fullest, and, shares his experiences in a most professional way. My admiration for him has no bounds. My best wishes go to this brave man.
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