"Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze? You'll find answers to all these questions and more in this highly readable book" -- MDA/ALS Newsmagazine
"*****"All of [the authors] have extensive experience helping individuals affected by ALS and their families. Thus, the information they offer in the book is practical, realistic, and specific... All in all, Amyotrophic Lateral Sclerosis provides up-to-date, comprehensive information on living with ALS, which make it very useful for individuals affected by ALS and their families." -- About.com
"Informative, accurate and even reassuring, and will be valuable to readers internationally. In particular, the description of the major features and symptoms caused by ALS is excellent, and the methods of managing these problems are simply and lucidly explained... This book is an excellent and well thought-out example of an important resource that should be made available to all those suffering with ALS." - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
"The authors are all experts in the management of ALS, and this book will be much appreciated by patients and professionals alike."-- From the foreword by Lewis P. Rowland, MD, Neurological Institute, Columbia University Medical Center (Lewis Rowland, MD From the foreword, Neurological Institute, Columbia University Medical Center 2010-05-03)
About the Author
Dr. Robert G. Miller is Director of the Forbes Norris MDA/ALS Research Center at the California Pacific Medical Center in San Francisco; Clinical Professor of Neurology in the Department of Neurology at the University of California, San Francisco; Clinical Professor of Neurology and Neurological Sciences in the Department of Neurology at Stanford University Medical School; and Director of Neuromuscular Research and Chairman of the Department of Neurosciences at California Pacific Medical Center (CPMC) in San Francisco. He is the author of nearly 200 scientific articles on neuromuscular disease and ALS, and chairs the Medical Advisory Board of the ALS CARE program, a North American ALS patient database project designed to enhance the standard of care for people with ALS.
Dr. Deborah Gelinas is the Clinical Director of the Forbes Norris MDA/ALS Research Center. She is the principal investigator for several ongoing clinical drug trials in ALS, sponsored by both federally funded agencies and pharmaceutical companies. She has received numerous awards throughout her career that include the Outstanding Physician Scientist Award of the California Pacific Medical Center and an Army Meritous Service Medal.
Patricia O'Connor, RN graduated from the City College of New York with a Bachelor of Science in Nursing. She is the nurse case manager and coordinator of the Multidisciplinary Clinic at the Forbes Norris MDA/ALS Research Center in San Francisco, CA. Ms. O'Connor has extensive experience in the fields of rehabilitation and case management and has specialized in the care of ALS patients since 1997.