Amyotrophic Lateral Sclerosis is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for ALS sufferers. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discover new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful both in managing the disease and living within its limitations.
Amyotrophic Lateral Sclerosis
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"...an excellent and well thought-out example of an important resource that should be made available to all... with ALS." -- Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders, March 2005
"You'll find answers to all [your ALS] questions and more in this highly readable book." -- MDA/ALS Newsmagazine, January 2005
"You'll find answers to all [your ALS] questions and more in this highly readable book." -- MDA/ALS Newsmagazine, January 2005
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7 of 8 people found the following review helpful:
5.0 out of 5 stars
I have ALS and was surprised this helped....,
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This review is from: Amyotrophic Lateral Sclerosis (American Academy of Neurology) (Paperback)
Cover to cover this book enlightened me to what I've expereinced, feared and now need to predict. Having lost my aunt and godmother to this disease made me feel guilty and aprehensive. I taught religion for 5 years to 8th graders in addition to my full time job. In the last year I had to tell them the truth about me, I now have ALS, the first group outside my family and very close friends. I did not think reading this book would encourage me to hope but it did. Although most of my family also are reading it too, it almost seems harder for them then me, but in the end its good advice and at least opens the door for good and educated communication when decisions will be needed.
3 of 3 people found the following review helpful:
4.0 out of 5 stars
Helpful and to the point! I wished they issued an updated edition!!!!,
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This review is from: Amyotrophic Lateral Sclerosis (American Academy of Neurology) (Paperback)
I found the chapters about insurance, clinical trials, and the resources appendix to be really practical and to the point. I have a neurobiology background but I do not know much about ALS: the first chapter provided me with an excellent road map I can take and run as a base to further my education as a health care provider whose relative was just diagnosed.
Thank you!!! PS Is there a new edition in the pipeline? a 2005 edition is somewhat outdated when it comes to diagnosis, outcomes, therapeutic options, clinical trials, and at times even legal/insurance issues. I would really appreciate it if someone could give me the heads up on it, or anything else pertaining to ALS education and treatment. I can be contacted through "the bookish trader" on amazon. Thanks, ECC
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52
books
cite this book:
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- Amyotrophic Lateral Sclerosis by Robert H. Brown Jr. on 6 pages
- Brain Damage and Repair: From Molecular Research to Clinical Therapy by T. Herdegen on page 587, page 599, and page 608
- Spinal Cord Diseases: Diagnosis and Treatment (Neurological Disease and Therapy) by Gordon Engler in Front Matter, page 413, and page 437
- Duchenne Muscular Dystrophy: Advances in Therapeutics (Neurological Disease and Therapy) by Jeffrey S. Chamberlain in Front Matter (1), and Front Matter (2)
- Handbook of Secondary Dementias (Neurological Disease and Therapy) by Roger Kurlan in Front Matter (1), and Front Matter (2)
See all 52 books citing this book
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