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Amyotrophic Lateral Sclerosis (American Academy of Neurology Press Quality of Life Guide Series) 1st Edition

4.2 out of 5 stars 4 customer reviews
ISBN-13: 978-1932603064
ISBN-10: 1932603069
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Editorial Reviews

Review

"Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze? You'll find answers to all these questions and more in this highly readable book" -- MDA/ALS Newsmagazine

"*****"All of [the authors] have extensive experience helping individuals affected by ALS and their families. Thus, the information they offer in the book is practical, realistic, and specific... All in all, Amyotrophic Lateral Sclerosis provides up-to-date, comprehensive information on living with ALS, which make it very useful for individuals affected by ALS and their families." -- About.com

"Informative, accurate and even reassuring, and will be valuable to readers internationally. In particular, the description of the major features and symptoms caused by ALS is excellent, and the methods of managing these problems are simply and lucidly explained... This book is an excellent and well thought-out example of an important resource that should be made available to all those suffering with ALS." - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders

"The authors are all experts in the management of ALS, and this book will be much appreciated by patients and professionals alike." --From the foreword by Lewis P. Rowland, MD, Neurological Institute, Columbia University Medical Center (Lewis Rowland, MD From the foreword, Neurological Institute, Columbia University Medical Center 20100503)

About the Author

Dr. Robert G. Miller is Director of the Forbes Norris MDA/ALS Research Center at the California Pacific Medical Center in San Francisco; Clinical Professor of Neurology in the Department of Neurology at the University of California, San Francisco; Clinical Professor of Neurology and Neurological Sciences in the Department of Neurology at Stanford University Medical School; and Director of Neuromuscular Research and Chairman of the Department of Neurosciences at California Pacific Medical Center (CPMC) in San Francisco. He is the author of nearly 200 scientific articles on neuromuscular disease and ALS, and chairs the Medical Advisory Board of the ALS CARE program, a North American ALS patient database project designed to enhance the standard of care for people with ALS.

Dr. Deborah Gelinas is the Clinical Director of the Forbes Norris MDA/ALS Research Center. She is the principal investigator for several ongoing clinical drug trials in ALS, sponsored by both federally funded agencies and pharmaceutical companies. She has received numerous awards throughout her career that include the Outstanding Physician Scientist Award of the California Pacific Medical Center and an Army Meritous Service Medal.

Patricia O'Connor, RN graduated from the City College of New York with a Bachelor of Science in Nursing. She is the nurse case manager and coordinator of the Multidisciplinary Clinic at the Forbes Norris MDA/ALS Research Center in San Francisco, CA. Ms. O'Connor has extensive experience in the fields of rehabilitation and case management and has specialized in the care of ALS patients since 1997.
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Product Details

  • Series: American Academy of Neurology
  • Paperback: 246 pages
  • Publisher: Demos Health; 1 edition (October 1, 2004)
  • Language: English
  • ISBN-10: 1932603069
  • ISBN-13: 978-1932603064
  • Product Dimensions: 6 x 0.7 x 9 inches
  • Shipping Weight: 14.4 ounces (View shipping rates and policies)
  • Average Customer Review: 4.2 out of 5 stars  See all reviews (4 customer reviews)
  • Amazon Best Sellers Rank: #1,581,336 in Books (See Top 100 in Books)

Customer Reviews

Top Customer Reviews

Format: Paperback
Cover to cover this book enlightened me to what I've expereinced, feared and now need to predict. Having lost my aunt and godmother to this disease made me feel guilty and aprehensive. I taught religion for 5 years to 8th graders in addition to my full time job. In the last year I had to tell them the truth about me, I now have ALS, the first group outside my family and very close friends. I did not think reading this book would encourage me to hope but it did. Although most of my family also are reading it too, it almost seems harder for them then me, but in the end its good advice and at least opens the door for good and educated communication when decisions will be needed.
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Format: Paperback Verified Purchase
I found the chapters about insurance, clinical trials, and the resources appendix to be really practical and to the point. I have a neurobiology background but I do not know much about ALS: the first chapter provided me with an excellent road map I can take and run as a base to further my education as a health care provider whose relative was just diagnosed.
Thank you!!!
PS Is there a new edition in the pipeline? a 2005 edition is somewhat outdated when it comes to diagnosis, outcomes, therapeutic options, clinical trials, and at times even legal/insurance issues.
I would really appreciate it if someone could give me the heads up on it, or anything else pertaining to ALS education and treatment. I can be contacted through "the bookish trader" on amazon.
Thanks,
ECC
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Format: Paperback Verified Purchase
Explained the disease fairly well, but I wish it had gone more into the methods of diagnosis. Will keep as a reference.
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Format: Paperback Verified Purchase
In good condition. Very reasonable price.
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