Customer Reviews

Amyotrophic Lateral Sclerosis (American Academy of Neurology)

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Cover to cover this book enlightened me to what I've expereinced, feared and now need to predict. Having lost my aunt and godmother to this disease made me feel guilty and aprehensive. I taught religion for 5 years to 8th graders in addition to my full time job. In the last year I had to tell them the truth about me, I now have ALS, the first group outside my family and very close friends. I did not think reading this book would encourage me to hope but it did. Although most of my family also are reading it too, it almost seems harder for them then me, but in the end its good advice and at least opens the door for good and educated communication when decisions will be needed.

I found the chapters about insurance, clinical trials, and the resources appendix to be really practical and to the point. I have a neurobiology background but I do not know much about ALS: the first chapter provided me with an excellent road map I can take and run as a base to further my education as a health care provider whose relative was just diagnosed.
Thank you!!!
PS Is there a new edition in the pipeline? a 2005 edition is somewhat outdated when it comes to diagnosis, outcomes, therapeutic options, clinical trials, and at times even legal/insurance issues.
I would really appreciate it if someone could give me the heads up on it, or anything else pertaining to ALS education and treatment. I can be contacted through "the bookish trader" on amazon.
Thanks,
ECC