This comprehensive guide covers every aspect of the management of ALS, beginning with discussions of clinical features of the disease, diagnosis, and an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance.
Amyotrophic Lateral Sclerosis
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Book Description
Editorial Reviews
Review
"...serve(s) as a useful introduction to clinicians...dealing with ALS...as well as a guide to patients and families." -- Physical Therapy, January 2002
You couldn't ask for a more comprehensive (book) than this latest volume from Demos. -- Quest, Vol. 8, No. 4, 2001
You couldn't ask for a more comprehensive (book) than this latest volume from Demos. -- Quest, Vol. 8, No. 4, 2001
About the Author
Hiroshi Mitsumoto, M.D., is director of the Eleanor and Lou Gehrig MDA/ALS Center and professor of neurology at Columbia-Presbyterian Medical Center in New York. He is a past chairman of the Medical Advisory Board of the ALS Association. Drs. Mitsumoto and Munsat are internationally acclaimed experts in the management of ALS.
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Most Helpful Customer Reviews
30 of 31 people found the following review helpful:
5.0 out of 5 stars
Must read for newly diagnosed and families.,
By
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families (Paperback)
My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
10 of 10 people found the following review helpful:
4.0 out of 5 stars
Excellent Resource,
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families (Paperback)
I used this book religiously before my dad passed away from complications due to ALS last July. The book was very helpful to understand what was happening and what was coming. As depressing as it all is, it was better to understand the situation so I could do all I could to help my loved one. I was just looking at my copy the other day and the amount of highlighting in it and stickies hanging out of it reminded me of how used the book was.
8 of 11 people found the following review helpful:
5.0 out of 5 stars
It's a 5,
By "als_daddys_girl" (Franksville, WI United States) - See all my reviews
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families (Paperback)
This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS. Ideas shared in the book are practical and helpful. A good read for families dealing with ALS...especially care givers.
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Inside This Book
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First Sentence:
With those words, Lou Gehrig announced his retirement from the New York Yankees on July 4, 1939, at the age of 36, ending one of the most remarkable careers in the game of baseball. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
wheelchair system, antitip devices, anryotrophic lateral sclerosis, ventilator dependent adults, upper motor neuron dysfunction, swallowing management, lower motor neuron signs, wheelchair frame, lower motor neuron dysfunction, home mechanical ventilation, denervated muscle fibers, nurse coordinator, bulbar symptoms, power wheelchairs, noninvasive ventilation, home ventilation, upper motor neuron signs, spondylotic myelopathy, tracheostomy tube, lower motor neurons, home health aid, manual wheelchairs, swallowing process, bulbar palsy, bulbar muscles Key Phrases - Capitalized Phrases (CAPs): (learn more)
New York, United States, Muscular Dystrophy Association, Lou Gehrig, Neurol Sci, Woodland Hills, Holding Together, World Federation of Neurology, Arch Neurol, North America, San Diego, Singular Publishing Group, Study Group, Ventura Blvd, Losing Ground, San Francisco, Staying Afloat, Adv Nurs, Clinically Probable, Completion Form, Del Bene, Morrie Schwartz, National Institutes of Health, Ann Neurol, Hiroshi Mitsumoto New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
With those words, Lou Gehrig announced his retirement from the New York Yankees on July 4, 1939, at the age of 36, ending one of the most remarkable careers in the game of baseball. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
wheelchair system, antitip devices, anryotrophic lateral sclerosis, ventilator dependent adults, upper motor neuron dysfunction, swallowing management, lower motor neuron signs, wheelchair frame, lower motor neuron dysfunction, home mechanical ventilation, denervated muscle fibers, nurse coordinator, bulbar symptoms, power wheelchairs, noninvasive ventilation, home ventilation, upper motor neuron signs, spondylotic myelopathy, tracheostomy tube, lower motor neurons, home health aid, manual wheelchairs, swallowing process, bulbar palsy, bulbar muscles Key Phrases - Capitalized Phrases (CAPs): (learn more)
New York, United States, Muscular Dystrophy Association, Lou Gehrig, Neurol Sci, Woodland Hills, Holding Together, World Federation of Neurology, Arch Neurol, North America, San Diego, Singular Publishing Group, Study Group, Ventura Blvd, Losing Ground, San Francisco, Staying Afloat, Adv Nurs, Clinically Probable, Completion Form, Del Bene, Morrie Schwartz, National Institutes of Health, Ann Neurol, Hiroshi Mitsumoto New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
Citations (learn more)
This book cites 26
books:
See all 26 books this book cites
- Amyotrophic Lateral Sclerosis by Hiroshi Mitsumoto on 5 pages
- Communication and Swallowing Management of Tracheostomized and Ventilator Dependent Adults (Dysphagia Series) by Karen J. Dikeman on page 144, and page 145
- Tuesdays with Morrie: An Old Man, a Young Man, and Life's Greatest Lesson by Mitch Albom on page 276, and page 325
- New Mexico (Portrait of America) by Kathleen Thompson in Front Matter
- Amyotrophic Lateral Sclerosis (American Academy of Neurology) by M.D. Robert G. Miller in Front Matter
See all 26 books this book cites
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