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Babies with Down Syndrome: A New Parents' Guide Paperback – September 19, 2008

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Editorial Reviews

Review

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

This book was originally published in 1985 because so little accurate and positive information on Down syndrome was available. Revised for the first time in 13 years and featuring four new chapter authors, it covers information that will be most helpful for families with children from birth to age five. Including the experiences and advice of parents, this should be one of the first books parents read upon receiving their child s diagnosis. The contributors-- educators, medical professionals, adults with Down syndrome, and, primarily, parents of children with Down syndrome--along with editor Skallerup, mother of a child with Down syndrome, define Down syndrome and discuss adjusting to your baby, medical concerns and treatments (for example, 40 to 60 percent have some type of heart defect), daily care, family life, postnatal development, the importance of early intervention, and legal rights and hurdles. Highly recommended for parenting collections in public libraries. --Library Journal, *starred review, October 1, 2008

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

About the Author

The contributors are Sue Buckley, Jean Nelson Farley, Marian H. Jarrett, Emily Perl Kingsley, Chahira Kozma, Len Leshin, Mitchell Levitz, Joan B. Riley, Jo Ann Simons, Susan J. Skallerup, Marilyn Trainer, and Mary Wilt. A mix of parents of children and adults, an adult with Down syndrome, advocates, educators, early interventionists, medical professionals, and writers, all are dedicated to helping children with Down syndrome.
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Product Details

  • Paperback: 352 pages
  • Publisher: Woodbine House; third edition edition (September 19, 2008)
  • Language: English
  • ISBN-10: 1890627550
  • ISBN-13: 978-1890627553
  • Product Dimensions: 8.4 x 5.5 x 0.8 inches
  • Shipping Weight: 14.4 ounces (View shipping rates and policies)
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (40 customer reviews)
  • Amazon Best Sellers Rank: #127,813 in Books (See Top 100 in Books)

Customer Reviews

Most Helpful Customer Reviews

12 of 12 people found the following review helpful By Brittany R. Massey on October 19, 2009
Format: Paperback Verified Purchase
If you recently had a child that was diagnosed with Down syndrome, or like myself, had an amniocentesis come back with positive results for a baby with Down syndrome -- BUY THIS BOOK.

There's a lot of information on the internet, but this book not only compiles it together for you in an organized fashion (so you actually retain what you read...) but it also provides humanity. Short snippets at the end of every chapter help you cope with the array of emotions that you will be feeling -- without making you feel bad, dirty or even worse.

The information in this book is amazing. The information itself actually cheered me up and made me realize, "Hey, it's actually NOT that big of a deal." I'm truly indebted to the authors and contributors of this book.

You can find as much information as possible for children and teenagers with Down syndrome -- if you have a child passed the age of 9. This book provides you with information for NEWBORNS, INFANTS, TODDLERS and YOUNG CHILDREN. Again, invaluable.

If you're a family member (grandparent-to-be, or new grandparent) BUY this for yourself as well. There's a lot of teamwork involved in raising a child with Down syndrome, and whilst you may not be the main source of the team... your ability to cooperate with mom and dad's new way of raising this child will help tremendously. There's also a lot of legal issues in regards to the child's future that all grandparents need to know!
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6 of 6 people found the following review helpful By bobbie on January 28, 2012
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7/12/2011...We were blessed with a beautiful Down Syndrome grandchild, we thought my goodness we know nothing about what challenges lie ahead for our little man...this book is wonderful, it has informed us on what to expect and also what is expected of us...we have started to learn sign language already just in case he has a communication issue...This book makes life in general so much easier...
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3 of 3 people found the following review helpful By Beth S. on January 15, 2010
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This book is a MUST HAVE for families with children with Down syndrome - great resource and support for parents, grandparents and physicians (I have brought to pediatrician appointment on more than one occasion) Upbeat tone, with realistic information.
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3 of 3 people found the following review helpful By A. Jeffreys on September 14, 2009
Format: Paperback
This was an excellent first book right after we found out our child was born with Down syndrome. It answered all of our questions and concerns. I highly recommend this book for the beginner.
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2 of 2 people found the following review helpful By Amazon Customer on April 5, 2014
Format: Paperback Verified Purchase
The scariest thing about Down Syndrome for me was, quite honestly, the fact that I knew nothing about it. After a recent discovery of my boyfriend's nephew being born with the condition, I think the hardest part for our family to register was the intial shock and fear of not knowing what to do or how to do it. "Babies with Down Syndrome, A New Parent's Guide," was extremely helpful to me; I felt that the book provided intelligent and useful medical and parental information as a guide to help care for your newly diagnosed baby. Knowledge truly is power - and the sources listed in the back of the guide provide further information that one can look into, such as support groups, reliable websites, forums, etc. I did not feel overwhelmed by medical diction and felt humbled by snippets of realistic accounts submitted by parents of children with Down Syndrome. I would definitely recommend this book as a start to your understanding of Down Syndrome and have passed it throughout the family.
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3 of 3 people found the following review helpful By Julie M. on September 10, 2013
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I found this book after my young niece had a baby with Down Syndrome. I found it very informative. I highlighted it liberally and passed it on to her.
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3 of 3 people found the following review helpful By Patricia Taylor on December 14, 2013
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These were purchased to give to parents of babies born with Down syndrome. This is the perfect gift for families.
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2 of 2 people found the following review helpful By Meemaw on August 25, 2010
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As a soon to be grandmother of a baby with DS I found this book to be very informative. Written for parents it did contain some things that grandparents won't be involved with. It did, however, give me a much better understanding of what to expect when our little one arrives. Having read this book I believe I will also have a better understanding of what my daughter and son in law will be going through.
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