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Beyond Regulations: Ethics in Human Subjects Research (Studies in Social Medicine) [Paperback]

Nancy M. P. King (Author), Jane Stein (Author)

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Book Description

March 31, 1999 0807847704 978-0807847701 1
Across a broad range of disciplines—in medicine, social science, and the humanities—researchers, scholars, teachers, and administrators increasingly are looking for new ways to approach ethical issues in research with human subjects. Questions about how relationships between funders and researchers should affect research design, for example, or whether the potential benefits of research can outweigh the importance of its subjects' interests are inadequately addressed by the prevailing, regulation-based research ethics paradigm.

This book constitutes a reexamination of research ethics. It combines case studies and commentaries by a multidisciplinary group of scholars and researchers to explore such topics as informed consent, conflict of interest, confidentiality, and research on illegal behavior. All human subjects research takes place within complex social, cultural, and political contexts, the contributors argue. Increased consideration of the relationships between researchers and their subjects, funders, and institutions within these contexts will facilitate research that is sensitive and responsible as well as scientifically fruitful.

Beyond Regulations features a keynote essay by Ruth Macklin. Other contributors are Marcela Aracena Alvarez, Jorge Balán, B. Susan Bauer, Alan F. Benjamin, Lynn Blanchard, Allan M. Brandt, J. Pat Browder, Barbara Entwisle, Sue E. Estroff, Renée C. Fox, Lara Freidenfelds, Gail E. Henderson, Nancy M. P. King, Loretta M. Kopelman, Ernest N. Kraybill, Barry M. Popkin, Silvina Ramos, Desmond K. Runyan, Jane Stein, Ronald P. Strauss, Keith A. Wailoo, and Cynthia Waszak.


Editorial Reviews

Review

Clearly illustrates the importance of a relationship-based perspective to research ethics as a necessary complement to the principalist paradigm.

Journal of Medical Ethics

This superb collection of essays, carefully structured around six cases, analyzes the attendant policy issues with great insight.

Alexander M. Capron, School of Law, University of Southern California

From the Inside Flap

These essays provide timely reexamination of the ethical issues in research with human subjects as conducted in medicine, social science, and the humanities. This is the first volume in a new series, Studies in Social Medicine.

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Inside This Book (learn more)
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First Sentence:
The first case, presented by anthropologist Alan Benjamin, directly addresses power issues that are integral to research. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
emergency medicine research, emergency research, child abuse researchers, deferred consent, vaccine efficacy trials, relationships paradigm, ethical review committee, individual informed consent, research with human subjects, human subjects research, ethical imperialism, prospective subjects, industry funding, research ethics, research involving human subjects, breast milk substitutes, fundamental ethical principles, informed consent requirement, syphilis study
Key Phrases - Capitalized Phrases (CAPs): (learn more)
North Carolina, United States, African Americans, Alan Benjamin, Public Health Service, Chapel Hill, Acute Brain Injury Study, Community Advisory Board, Durham County, National Institutes of Health, Philip Morris, Nuremberg Code, Population Council, San Francisco, Sue Estroff, Buenos Aires, Carolina Population Center, City Council, Conflict Tactics Scale, Jay Katz, National Commission, United Netherlands Portuguese Congregation, University of California, University of Pennsylvania
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