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A Caregiver's Guide to Alzheimer's Disease (300 Tips for Making Life Easier) [Kindle Edition]

Patricia R. Callone MA MRE , Connie BS Kudlacek , Barabara C. MA Vasiloff
4.4 out of 5 stars  See all reviews (75 customer reviews)

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  • Print ISBN-10: 1932603166
  • Print ISBN-13: 978-1932603163
  • Edition: 1
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Book Description

An estimated 5 million Americans have Alzheimer's disease. That number continues to grow - by 2050 the number of individuals with Alzheimer's could range from 11.3 million to 16 million. Alzheimer's disease is not a normal part of aging. It is a devastating disorder of the brain's nerve cells that impairs memory, thinking, and behavior. Written for patients, their families, and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier will help readers understand what is physically happening to the brain so they can empower their own special skills and talents throughout the disease process. The book is divided into three sections that correspond to the progression of Alzheimer's and the unique challenges encountered at each stage.

Section A: The major part of the book divides the progression of the disease into Stages: the Pre-Clinical Stage; Early-To-Mild Stage, which marks the onset of the disease; Moderate Stage; and the Severe Stage. Hundreds of practical tips geared to coping and compensating at each level of the disease provide support for the affected individual and the caregiver.

Section B: A bonus section of questions and answers addresses specific issues caregivers face and give them points to reflect on as they continue the process. Key topics covered include:

  • Legal and financial issues
  • Family Forums in the caregiving process
  • The role of medication at various stages of the disease
  • Helping children understand what is happening to a loved one
  • Handling the holidays and celebrations
  • Making the living environment more stimulating and enjoyable

Section C: Lists resources and suggests websites to find additional information about the disease itself as well as related valuable networks.

With an abundance of pointers and guidelines for affected individuals, their families, friends and caregivers, A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier is essential for all readers who want to focus on the capabilities that remain instead of those that have been lost.;Letter to the Reader; Acknowledgements; Introduction; SECTION A: Tips to Make Life Easier For Persons With Alzheimer's Disease, Their Caregivers, Family Members, and Friends. Pre-clinical stage: Wonder and Worry Overview of the Pre-Clinical Stage; The Brain of a Healthy Person; Explanation of the Seven Key Functions of the Brain; Is it Old Age or Dementia?; How the Disease Affects the Seven Key Functions; II. Early-To-Mild Stage: (3-5 years) - Something's Going Wrong; Moderate Stage: (3-5 years) - So Many Changes; Severe Stage: Making Every Moment Count. SECTION B: Helpful Information Concerning Alzheimer's Disease or Related Dementia That is Not Stage-Specific. SECTION C: Resources Available for Those Affected With Alzheimer's Disease, Their Caregivers, Family Members, and Friends; What local Resources are Available?; Webliography: Alzheimer's Information on the Internet.;"As the authors of this handy, elucidating and empathetic guide take readers through the progression of Alzheimer's disease, they pay special attention to the patient, having them understand what will be happening to them and making sure that they, and those entrusted with their care as the disease takes its course, tap into their special skills and talents as long as they are able...The authors effectively relate the importance of empathy and patience, as well as having a plan and a network of friends and advisors to deal with the progression of Alzheimer's disease."--Kirkus Reports

"This book, which I can thoroughly recommend, is certainly revealing and contains much that is critical for caregivers to know. I believe every professional working with those in dementia and their caregivers would do well to have a copy. The book lends itself to reading straight through and then to being used as and when it is necessary as a reference. It is easy to find specific information as the framework is helpful and logical. The sections on the spiritual needs of those with dementia were welcome topics... I wish I had had this book when I set out on the caregiving journey."--International Journal of Geriatric Psychiatry"



Editorial Reviews

Review

"As the authors of this handy, elucidating and empathetic guide take readers through the progression of Alzheimer's disease, they pay special attention to the patient, having them understand what will be happening to them and making sure that they, and those entrusted with their care as the disease takes its course, tap into their special skills and talents as long as they are able....The authors effectively relate the importance of empathy and patience, as well as having a plan and a network of friends and advisors to deal with the progression of Alzheimer's disease."--Kirkus Reports

"This book, which I can thoroughly recommend, is certainly revealing and contains much that is critical for caregivers to know. I believe every professional working with those in dementia and their caregivers would do well to have a copy. The book lends itself to reading straight through and then to being used as and when it is necessary as a reference. It is easy to find specific information as the framework is helpful and logical. The sections on the spiritual needs of those with dementia were welcome topics... I wish I had had this book when I set out on the caregiving journey."--International Journal of Geriatric Psychiatry (International Journal of Geriatric Psychiatry 2010-05-03)

About the Author

Patricia R. Callone is the Vice President of Institutional Relations for Creighton University. For six years she served on the Board of Directors of the Alzheimer's Association Midlands Chapter. She has experience with Alzheimer's as both an educator and as a caregiver.

Connie Kudlacek, BS is the Executive Director of the Alzheimer's Association Midlands Chapter.

Barbara C. Vasiloff is the co-founder and President of Discipline With Purpose, Inc.

Janaan Manternach is a well respected author and educator.

Dr. Roger A. Brumback is a Professor of Pathology and Psychiatry and the Chairman of the Department of Pathology at the Creighton University School of Medicine.

Product Details


Customer Reviews

Most Helpful Customer Reviews
56 of 57 people found the following review helpful
3.0 out of 5 stars A Helpful Guide April 16, 2010
Format:Paperback|Verified Purchase
I purchased 3 books on Alzheimer's from Amazon. This one is helpful for all the tips and suggestions. It covers resources available, suggestions on how to handle legal matters, and many other issues.

It's very important for the caregiver of an Alzheimer's patient to have this type of information.

There is another book I found even more helpful. It's called 'Learning How to Speak Alzheimer's'.
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35 of 36 people found the following review helpful
5.0 out of 5 stars Wonderful source of information June 1, 2007
Format:Paperback
This book gives a clear and concise summary of changes which occur in the brain and in the behavior of the patient with Alzheimer's Disease. Dividing the book into three sections based on the stages of the disease is very useful. The tips for making life easier can easily be implemented.
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35 of 37 people found the following review helpful
5.0 out of 5 stars The book I wanted to write October 24, 2008
Format:Paperback
I am a geriatric care manager and was the primary caregiver for my aunt for 7 years before she died from AD. The experience of caring for her was challenging but also very positive and life transforming for me. This book captures the heart of my experience and presents Alzheimer's Disease and caring for a loved one with it in a very life affirming way. It gives hope and meaning to a difficult but not hopeless situation. The many practical ideas presented in the book are invaluable and come straight from the real lives of experienced caregivers. I can highly recommend it.
The companion volume, "Alzheimer's Disease: The Dignity Within: A Handbook for Caregivers, Family and Friends" is also excellent.
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16 of 16 people found the following review helpful
4.0 out of 5 stars If you plan to care for your loved one at home September 10, 2009
Format:Paperback
If you plan to care for your loved one at home for as long as possible, this book is very helpful. It helped me understand the abilities that are present throughout the disease process (much like other books on the subject) but had a lot of very practical suggestions on how to compensate as the different abilities are lost. I never would have thought of painting the wall behind the toilet, reflector tape on the floor, etc.
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6 of 6 people found the following review helpful
5.0 out of 5 stars Needed Help in the Beginning October 7, 2012
Format:Paperback|Verified Purchase
I bought 2 books through Amazon. I actually read this one because it was smaller and the thought of reading about this topic was daunting enough. I must say I was so enlightened. Every turn of the page gave me a greater understanding of dementia/AD...the place I was/am living in with my dear grandmother. While the details of how the disease attacks the brain is not necessarily of great importance to me, it is to someone like an engineer such as my husband who found it very well explained. I just needed the practical put-to-use and understanding information. Excellent book. Quick read - I finished it in 2 nights, cover to cover. I haven't read a book in over 2o years. So glad I found the book.A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier
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11 of 13 people found the following review helpful
5.0 out of 5 stars Great explanation of the loss of brain function April 20, 2010
Format:Paperback|Verified Purchase
The pie charts that show the disease's progression were spectacular. The tips were well organized and succinct. I highlighted much in this book, to use as a handy guide and reference. It was an eye-opening experience to read about bizarre behaviors that I thought were unique to my 91 year old Godmother. As I learn more about this awful disease, I now see and understand she is exhibiting classic symptoms of advanced Alzheimer's. It helps to know that her behaviors are not directed at me as I originally thought, but that she is sick. If you think you are alone and there is no escape, you must read this book. I finished in less than a couple of hours. Best investment of my time and money that I have made in a long time.
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5 of 5 people found the following review helpful
Format:Paperback|Verified Purchase
Maybe others will find this more useful than I did. Mum is in the early to mid-stages of the disease, and there wasn't much in this book that I haven't already figured out by myself or read on-line in the various Alzheimer's websites. I wanted to find help in figuring out whether I can manage this disease on my own by taking care of Mum at home with the help of caregivers or whether I should start moving her to assisted memory care living now. Maybe it's impossible to provide that information, but in any case - it's not in this book. There are certainly good tips in here. Remove waste paper baskets, because the loved one may mistake them for toilets. Yep - I can see it coming and appreciate that thought. Other statements were not so helpful. "Those who have been caregivers for someone through the progressing stages of Alzheimer's disease will tell you that their own faith has been tested and grown." "Arrange for a senior companion or a friend to visit weekly, to take the person with Alzheimer's disease to the movies or zoo or to shop." I started with two stars and moved to three, figuring there probably are no answers for me - just a lot of hard times ahead.
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6 of 6 people found the following review helpful
Format:Paperback
Has excellent information and guides you with suggestions as the disease progresses. Gives you some choices along the way to caring for your loved one.
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Most Recent Customer Reviews
1.0 out of 5 stars ok
It was ok. I learned some stuff. Not so detailed but good enough. Very easy reading. Too much repetition involved.
Published 5 days ago by Karla Georges
5.0 out of 5 stars Helpful resource
While we didn't discover any "New" insights, this book helps breaks down the stages of Alzeimers Disease and what to expect. Helpful to share some of these items with in laws.
Published 15 days ago by Jan Reads and Crafts
5.0 out of 5 stars Five Stars
f
Published 1 month ago by R. Little
3.0 out of 5 stars Had some interesting information. Did not seem to be ...
Had some interesting information. Did not seem to be arranged well. Not a book to sit down and read all the way through, just to reference things.
Published 1 month ago by Sheridan Haynes
5.0 out of 5 stars Five Stars
Information was very helpful to myself and family
Published 1 month ago by Toni R. Yagmin
5.0 out of 5 stars Five Stars
Great ideas.
Published 2 months ago by Julie J. Duncan
5.0 out of 5 stars Helpful and easy to understand.
My mother has Alzheimer's and this book helped explain the disease and was glad I bought the book.
Published 2 months ago by Nancy White
5.0 out of 5 stars Five Stars
Excellent book to read on.Alzheimer's!!
Published 3 months ago by Terri Wilkes
5.0 out of 5 stars Five Stars
Ok
Published 4 months ago by Bill
3.0 out of 5 stars wanted more detail
Have relative caretaker of Alzheimer's and was trying to find literature that might help her. Did like the list of resources. Sent book to my relative.
Published 4 months ago by J. Deacon
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