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A Caregiver's Guide to Lewy Body Dementia [Kindle Edition]

Helen Buell MS, BSN Whitworth , James Whitworth
4.8 out of 5 stars  See all reviews (69 customer reviews)

Digital List Price: $19.95 What's this?
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  • Print ISBN-10: 193260393X
  • Print ISBN-13: 978-1932603934
  • Edition: 1

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Book Description

Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregivers Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is.

A Caregivers Guide to Lewy Body Dementia is written in everyday language, and is filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms.

This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.;Introduction , 1. What Is Lewy Body Dementia? , 2. How Do I Find a Specialist and Get a Diagnosis I Can Trust? , 3. Slowing the Progress of Dementia, 4. Coping With Cognitive Symptoms , 5. Coping With Motor Dysfunctions , 6. Sleep Disorders and Lewy Body Dementia , 7. What Are Perceptual Dysfunctions? , 8. Drug Sensitivities and Adverse Reactions , 9. Managing Acting-Out Behaviors, 10. Coping With Autonomic Nervous System Dysfunctions, 11. Coping With Urinary Tract Dysfunctions, 12. How Do I Build a Health Care Team? , 13. Managing Legal and Financial Issues , 14. End-of-Life Issues , 15. How Do I Take Care of Myself? , Glossary , Acronyms, Online Resources , References , Index;"It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients. This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications."-Doody's


"Lewy body dementia is a common cause of memory, motor, emotional and behavioral disturbance in the older adult, yet many people (including physicians) are unfamiliar with the signs, symptoms, and course of the illness. This lack of information can have devastating consequences on the patient, their family, and by extension their healthcare providers. Jim and Helen Whitworth have done an outstanding job not only of collecting a comprehensive compendium on all aspects of LBD, but they also have provided a personal touch with a moving compilation of anecdotes, stories, and quotes. I commend them for their efforts and will most certainly recommend this book as required reading for all my LBD patients and their families."-James E. Galvin, MD, MPH, Professor of Neurology and Psychiatry, Director of Clinical Operations, Center of Excellence on Brain Aging. Director, Pearl Barlow Center for Memory Evaluation and Treatment, New York University Langone School of Medicine


"This book will make a difference in the lives of caregivers who help to manage the LBD patient with the ever constant fluctuations and the many issues that come with the disease."-Irene Selak, a 5-year volunteer with the Lewy Body Dementia Association



Editorial Reviews

Review

"It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients. This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications."-Doody's

"Lewy body dementia is a common cause of memory, motor, emotional and behavioral disturbance in the older adult, yet many people (including physicians) are unfamiliar with the signs, symptoms, and course of the illness. This lack of information can have devastating consequences on the patient, their family, and by extension their healthcare providers. Jim and Helen Whitworth have done an outstanding job not only of collecting a comprehensive compendium on all aspects of LBD, but they also have provided a personal touch with a moving compilation of anecdotes, stories, and quotes. I commend them for their efforts and will most certainly recommend this book as required reading for all my LBD patients and their families."-James E. Galvin, MD, MPH, Professor of Neurology and Psychiatry, Director of Clinical Operations, Center of Excellence on Brain Aging. Director, Pearl Barlow Center for Memory Evaluation and Treatment, New York University Langone School of Medicine

"This book will make a difference in the lives of caregivers who help to manage the LBD patient with the ever constant fluctuations and the many issues that come with the disease."-Irene Selak, a 5-year volunteer with the Lewy Body Dementia Association (Natalya V. Shneyder Doody's 2011-02-04)

About the Author

Helen Buell Whitworth is a retired nurse, an educator and a writer. She served the Lewy Body Dementia Association in a number of positions including Volunteer Coordinator and was named the 2007 LBDA Volunteer of the Year. Today Helen and her husband Jim operate The Whitworths of Arizona and sell Lewy Body Dementia Training Kits to long-term care and memory care facilities.

James Whitworth's first wife was diagnosed with Lewy Body Dementia. Propelled by the lack of information on the disease, he co-founded the now nationally known Lewy Body Dementia Association and served as its first president. Today Jim and his wife Helen operate The Whitworths of Arizona and sell Lewy Body Dementia Training Kits to long-term care and memory care facilities.

Product Details

  • File Size: 694 KB
  • Print Length: 312 pages
  • Publisher: Demos Health; 1 edition (October 20, 2010)
  • Sold by: Amazon Digital Services, Inc.
  • Language: English
  • ASIN: B004Q9SVF2
  • Text-to-Speech: Enabled
  • X-Ray:
  • Lending: Not Enabled
  • Amazon Best Sellers Rank: #100,878 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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Customer Reviews

Most Helpful Customer Reviews
12 of 12 people found the following review helpful
5.0 out of 5 stars Excellent! 2 Thumbs Up! November 13, 2010
By Medic 1
Format:Paperback
Excellent and very informative. As a child of a parent with Lewy Body this book is a must. This easy to read book describes in a clear and concise manner the very complicated triad of Lewy Body Dementia, Parkinsons Disease, and Parkinsons Disease Dementia. This book is also a wonderful resource not only for the care of our loved ones but also the caregiver. I would recommend this book to anyone interested in learning and/or reading about LBD and dementias in general. This will definitely NOT be a waste if purchased.
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6 of 6 people found the following review helpful
5.0 out of 5 stars Quality Care for Dementia Patients November 7, 2010
By Devika
Format:Paperback
As an RN with a specialty in dementia care, I was not knowledgeable about Lewy Body dementia until I was introduced to the information in this book. Specifically, there are differences in the medical treatment of Lewy Body and Alzheimer's. Inappropriate medications given to Lewy Body patients can harm them. This book is an invaluable resource for Long Term Care facilities education, as well as Home Health Care training. Practical, concise and invaluable for families and direct caregivers at all levels.
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4 of 4 people found the following review helpful
5.0 out of 5 stars Great information, easy to understand July 5, 2012
Format:Paperback|Verified Purchase
My mother has had LBD for 3 years. I live several hundred miles away and my sisters bear the brunt of her care. Due to other circumstances, I spent 3 weeks taking care of her in May. I bought this book (Kindle edition) and nothing else I had read about LBD even came close to helping me as much as this book did.

I recommended it to both of my sisters, who read it after I left. They have both told me since that they learned more from this book that they have from any other source, including the neurologist.

I think that the writing style of taking short, real-life issues and then explaining the reasons for the behavior made this book more readable but also helps the reader remember and understand the explanations.

I would recommend this book to anyone who has a family member with LBD, even if you aren't the primary care giver.
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4 of 4 people found the following review helpful
5.0 out of 5 stars Practical, clear, informative February 28, 2011
Format:Paperback
As the daughter to a person who suffers from Lewy Body Dementia, I hungrily read everything I can find about this disease to help me better understand and care for my mom. This is the best I've found; a very well written, informative book, written in language the lay person can easily understand. I am recommending it to members of my family and anyone else who may benefit.
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3 of 3 people found the following review helpful
5.0 out of 5 stars understanding Lewy Body Dementia July 24, 2012
By spice
Format:Paperback|Verified Purchase
This book gave me so much insight into my husbands condition, it helped realise I was not imagining things that were not seen by other people and even Drs., every Dr that deals with Parkingson Dementia should have to study and understand what a person with this illness and their caretaker are going thru. Thankyou for all the helpful info to deal with this frustrating illness. I gave the book my his daughter to read in the hope she will have more appreciation of what I have been dealing with for several years and what her father is going thru also.
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3 of 3 people found the following review helpful
5.0 out of 5 stars GET THIS BOOK May 30, 2012
Format:Paperback|Verified Purchase
A lady I spoke to at the Alzheimer's Association recommended this book to me after I told her my mother has LBD. It explains so much about the disease, symptoms, reactions to medications, cognitive problems, sleeping disorders, etc. etc. You name it, it covers it. If your loved one has LBD or you suspect they have it, get this book. It can help improve the quality of your loved one's life and your's too!
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3 of 3 people found the following review helpful
5.0 out of 5 stars Very Informative May 22, 2012
Format:Paperback|Verified Purchase
As a spouse of someone with Lewy Body Dementia and as a Lewy Body support group facilitator, I found this book to be very helpful and informative. There was medical information and personal stories. I love and relate to the personal stories because each and every person is affected differently from Lewy Body Dementia. The professionals & researchers can only tell us so much but it is the caregivers that live it day to day and need help from each other's stories to help deal with all the unexpected situations that may come up. I would highly recommend this book to both caregivers and professionals.
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3 of 3 people found the following review helpful
5.0 out of 5 stars A must-have purchase for those fighting "Lewy" May 10, 2012
By Mrs. M
Format:Paperback|Verified Purchase
It's been 5 months since my mother was diagnosed with Lewy Body Dementia, and this has been my go-to book time after time. I love having it on my Kindle so I can do a quick search for the information I need. Sometimes I need ideas, sometimes I just need the reassurance from the persona antidotes. It makes it easier to go down this road, knowing others have been there ahead of me.

Well written and a wonderful resource for a disease that it out of the spotlight.
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Most Recent Customer Reviews
5.0 out of 5 stars Very interesting
I give this book a five star, very informative lots of good information easy to understand. Real life situations to relate too.
Published 1 day ago by Debbie Justice
5.0 out of 5 stars A true guide to caring!
My Mom has LBD and I am her soul caregiver. I found the information contained in this guide to be invaluable! Read more
Published 15 days ago by Susan Parket
5.0 out of 5 stars Thank you!
Very informative! Just what I needed to help me prepare for the future and live in the present of this very challenging experience of caring for my husband with LBD.
Published 19 days ago by Roberta J. Kuhns
4.0 out of 5 stars Informative
We actually bought it for our neighbor. Her husband had Lewy Body Dementia. She read it and said it did help her understand.
Published 23 days ago by 49erGold
5.0 out of 5 stars Excellent overview of Lewy Body Dementia
This is one of the most informative books I read about LBD. The section explaining the need to understand sensitivities to various drugs should be read by all caregivers of a... Read more
Published 28 days ago by Judy T. Jennings
5.0 out of 5 stars Helpful insight into the future for those diagnosed with Lewy Body
Helpful insights into the future for those diagnosed with Lewy Body. I got the Kindle version but will buy the hard copy too because of info about meds and how some are harmful. Read more
Published 1 month ago by Marlys Hendrickson
4.0 out of 5 stars Educational
Most people have never heard of Lewy Body Dementia. This book gives you an insight into what to expect. I would recommend this book to caregivers.
Published 2 months ago by Amazon Customer
5.0 out of 5 stars helpful
this book answered many of my questions concerning the progress of my husbands disease. I recommend it to anyone caring for an LBD patient.
Published 2 months ago by mmathis3
5.0 out of 5 stars Everyone who has a loved one with lewy body should have this
Everybody who has a loved one with lewy body dementia should have this. it has saved me. my husband was diagnosed with lewy body a month ago and I ordered this on the kindle and it... Read more
Published 2 months ago by leslie padgett
5.0 out of 5 stars Best Caregiver's Guide for Lewy Body!!
This book is the most helpful book I have read about on Lewy Body Dementia! It is like a field guide for caring for someone with Lewy Body!!
Published 3 months ago by Gretchen Burt
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More About the Author

When James (Jim) Whitworth's first wife was diagnosed with Alzheimer's, he researched it on the internet and found that her symptoms fit Lewy body dementia "to a T." Excited, he shared his research with her doctors but they said, "Never heard of it," and continued to treat her for Alzheimer's. Jim now believes this treatment decreased the quality and length of her life. After her death in 2003, he made it his mission to increase awareness of this little known but all to common type of dementia. He and four other caregivers started the Lewy Body Dementia Association (lbda.org), now recognized as the premier caregiver organization specializing in LBD.

Helen Buell Whitworth is a retired nurse, educator and writer. She has acted as caregiver for several family members, including a sister with Parkinson's, a disease closely related to LBD. Her first book, Betsy (by Helen Buell, Trafford Publishing) is a historical novel, available on Amazon.com. The sequel she still promises her readers was put off when she met Jim and became involved with his mission. As a nurse, Helen especially loved teaching and her dream was that when she retired, she'd travel and teach--"about anything," she said. "Just provide me with a subject."

And so when Jim and Helen met and married, it was the perfect match. Helen's nursing background took Jim's mission to a new level. His strong attention to detail complimented Helen's creativity. Together, they developed a training program that they and others have presented to nursing students, care staff and support groups in seven states--so far. A Caregiver's Guide to Lewy Body Dementia evolved from their in-depth research for the programs. Their everyday language and collection of personal stories make this book an easy and interesting read. Their latest venture is an LBD Training Kit for memory care facilities, for sale on their website, lbd.whitworth2.com, so that facilities can be their own experts on this baffling disease.

Jim and Helen live in a 55+ community in Arizona where they stay young by playing golf, swimming and editing a monthly newsletter.

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