Customer Reviews

Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends & Caregivers

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As a parent to a child who had a brain tumor, I feel that this book covers all the major topics. When our son was diagnosed back in '98, I searched for such a book but none existed. Our son has since passed away but we are thankful that this book is available - particularly for newly diagnosed families. We purchased copies for our public library and for The Jimmy Fund in memory of our three year-old son, Kevin Kirsch. Thank you for writing this much needed guide. It will be a resource for caregivers and medical professionals alike.

When our 5 year old daughter was diagnosed with a Brainstem Glioma, the hospital and Child Cancer Foundation (in New Zealand) gave us books to read, if you wanted to wade through all the technical stuff, personally I couldn't cope with it all. Then when I was looking at sites on the internet, I read about this book. I had a look at it at Amazon, and thought about it for a few days, trying to weigh up if it would be relevant to NZ'ers. I finally took the plunge and got it. I am soooo relieved that I did. Suddenly I was able to read something and actually get some benefit from it. The inserts from the parents are wonderful - suddenly I don't feel so alone, and the advice is universal. It relates to anyone in any country going through this nightmare.

This book is loaded with information you NEED to know to help you understand the disease, what the doctors are talking about, sources of information, the problems that pop up along the way, as well as tips to help make the child much more comfortable. This should be the first book you read on the subject.

This book is very informative if your child has a brain or spinal cord tumor. It is broken into easy to read sections. The quotes from people who already lived through this were priceless. I helps put things in perspective for you. It gives you tips on how to deal with unusual circumstances. It has lots of resources for contacting other organizations on the web as well. Very helpful for me and my family.

Having a daughter die of a Brain Stem Glioma, this book would have helped tremendously.