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Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 2nd Edition Paperback – July 15, 2002

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Product Details

  • Series: Patient-Centered Guides
  • Paperback: 560 pages
  • Publisher: Patient Centered Guides; Second Edition edition (July 15, 2002)
  • Language: English
  • ISBN-10: 0596500149
  • ISBN-13: 978-0596500146
  • Product Dimensions: 9.2 x 7 x 1 inches
  • Shipping Weight: 1.8 pounds
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (8 customer reviews)
  • Amazon Best Sellers Rank: #1,215,578 in Books (See Top 100 in Books)

Editorial Reviews

From Library Journal

Each year, 11,000 children and adolescents in this country are diagnosed with cancer. Although numerous medical textbooks have been written on this subject, not many are aimed at parents and families. The authors, both mothers of children who had cancer and patient advocates in the Children's Oncology Group (Keene is also the author of Childhood Leukemia), fill in the gap with this guide to six solid-tumor childhood cancers: neuroblastoma, Wilms' tumor, liver tumors, soft tissue sarcomas, retinoblastoma, and bone sarcomas. The description for each tumor covers tumor origins, diagnosis, treatment, and prognosis. There are also chapters explaining clinical trials, surgery, radiation therapy, and chemotherapy in general. Emotional and psychological issues are addressed as well, with personal accounts to help parents and families cope with daily stress or in the event of death. This practical guide will empower parents to understand the disease better and participate more actively in the treatment process. Recommended for all consumer health collections.ALily Liu, Arkansas Children's Hosp. Medical Lib., Little Rock
Copyright 1999 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

About the Author

Honna Janes-Hodder's youngest son Matthew was diagnosed with neuroblastoma on his third birthday, and passed away at age seven on September 3, 1997. She loved, cared for, and advocated for Matthew during his long struggle with cancer. She lives with her husband, 14-year-old son, and 11-year-old daughter in beautiful Paradise, Newfoundland, and Labrador, Canada. Honna is founder of ChildCan, The Childhood Cancer Research Association of Newfoundland and Labrador, Inc., and president of the International Pediatric Cancer Alliance, Inc. Honna manages most of the pediatric discussion groups for ACOR, the Association of Cancer Online Resources, Inc. ACOR, based in New York, provides accurate and timely medical support and information for all those affected by cancer, in both the pediatric and adult communities. She is the administrator of five online discussion groups, providing support and reliable information to families dealing with childhood cancers globally. In addition, Honna sits on the Public Issues Committee for the Newfoundland and Labrador division of the Canadian Cancer Society and writes a regular health section for a national newspaper in Canada. Honna spends a great deal of time advocating on behalf of children diagnosed with cancer. She does not view this as a job, but as an important part of her identity. Honna attends Memorial University of Newfoundland as a part-time student when time permits, working toward a Ph.D. in biochemistry. Honna and Nancy were two of the first five people appointed as patient advocates to the Children's Cancer Group (CCG), a research organization consisting of pediatric cancer specialists from Canada, the United States, and Australia. They attend CCG meetings and facilitate communication between CCG investigators and the patient community.

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

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Most Helpful Customer Reviews

12 of 12 people found the following review helpful By Mom of a kid with cancer on November 27, 1999
Format: Paperback
This book is filled with loads of good information in lay terms to help family members, friends, teachers, social workers, etc. understand the various childhood cancers and their often complex treatments. Every family having a child diagnosed with cancer should automatically be given this book, because it contains so much information on diagnosis, procedures, tests, treatments and side effects. It also realistically discusses the potential effects on a whole family when a child is diagnosed with cancer, and provides tips on how to have an active and constructive relationship with doctors and nurses. The authors apparently interviewed a lot of parents who've been down this road and you can read their ideas and suggestions about how to deal with all sorts of issues from the mundane (how to get your child to take a certain medication) to the tremendously difficult (how to deal with relapse or talk to a child about death). I wish this had been available when my child was first diagnosed!
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6 of 6 people found the following review helpful By Ruth Hoffman on March 3, 2000
Format: Paperback
Candlelighters Childhood Cancer Foundation fully endorses this book and places it on the 'must have resource list' for any parent whose child is diagnosed with any type of solid tumor cancer. This comprehensive guide provides extensive information on the diagnosis, prognosis, procedures, treatment and side effects of neuroblastoma, Wilms Tumor, retinoblastoma, rhabdomyosarcoma and bone sarcomas. Included is a thorough explanation of the various chemotherapy drugs used in treatment and their common side effects. Detailed information on radiation therapy, surgery and bone marrow transplantation is also included. Additionally, the book provides practical advice to families on related issues such as nutrition, returning to school and the end of treatment. The book addresses the emotional impact that such a cancer diagnosis places upon the child, their family and friends and offers practical insight on how to cope. A comprehensive list of childhood cancer websites, support organizations and additional reading materials is listed at the back of the book. The authors'extensive interviewing of families who have 'walked down this road' offers hope to those whose 'journey' has just begun.
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5 of 5 people found the following review helpful By Lois Kelley on October 20, 2001
Format: Paperback
This book was recommended to me after my daughter was diagnosed with nueroblastoma. It explains it all. The book is broken down by topic (ie radiation and chemotherepy) and also by tumor.
The language used was easy to understand. The book was my map through the world of childhood cancer.
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4 of 4 people found the following review helpful By L. Randall on April 2, 2001
Format: Paperback
If you have found yourself catapulted into the nightmare of having a child with cancer, this book will help you to understand much of the journey to come. No matter what stage your child is in treatment...beginning, middle, finished treatment, relapsed, or palliative...this book is an indispensible resource. Personal stories peppered throughout the book help you come to realize that you are not alone in this battle. This book also has a wonderful list of resources to help families through this hard time. Buy one for yourself, family members (especially in-laws!), your child's pediatrician, your child's teacher, and your closest friends so they can have a glimpse into what you and your child are facing and can help you along the way. This book should be given to EVERY parent when they hear those horrible words, "Your child has cancer..."
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