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Childhood Cancer Survivors: A Practical Guide to Your Future (Patient Centered Guides) Paperback – April 8, 2000


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Product Details

  • Series: Patient Centered Guides
  • Paperback: 520 pages
  • Publisher: O'Reilly & Associates (April 8, 2000)
  • Language: English
  • ISBN-10: 1565924606
  • ISBN-13: 978-1565924604
  • Product Dimensions: 9 x 6.1 x 1 inches
  • Shipping Weight: 1.7 pounds
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (10 customer reviews)
  • Amazon Best Sellers Rank: #3,149,749 in Books (See Top 100 in Books)

Editorial Reviews

About the Author

Wendy Hobbie is one the editors and chapter authors of Survivors of Childhood Cancer: Assessment and Management. She has published numerous articles in peer reviewed journals on topics such as the late effects of treatment of childhood cancer, the role of the nurse practitioner in follow-up care, and risk taking and decision making of survivors of childhood cancer. She is frequently invited to lecture health care professionals, cancer survivors and their families on a variety of cancer survivorship issues. Wendy Hobbie is the Associate Director of the Pediatric Oncology Nurse Practitioner Program at the University of Pennsylvania and the Coordinator of the Follow-Up Program at Children's Hospital of Philadelphia. During the past 15 years, Wendy has devoted her professional life to the follow-up and treatment of survivors of childhood cancer and their families. Through education, Wendy has empowered survivors with the knowledge to advocate for themselves in the health care system and society. Wendy lives with her husband and two children, Jonathan and Sarah, in Philadelphia.

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

Kathy Ruccione is the Nursing Administrator in the Childrens Center for Cancer and Blood Diseases at Childrens Hospital Los Angeles. Her particular interests are in three areas: preparing patients and families to be informed participants in their care; the long-term follow-up of childhood cancer survivors; and the epidemiology and genetics of childhood cancer. She has published extensively and is frequently invited to speak on these topics. Kathy has lived in Southern California most of her life. She is the mother of one child, Daniel, who is now 12 years old. Living with Daniel, who is profoundly deaf, has brought many new challenges and opened new worlds. Her personal experience as a mother of a child with a disability has enriched her perspective and deepened her commitment to finding ways to help children and their families survive and transcend the experience with cancer.


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Most Helpful Customer Reviews

18 of 18 people found the following review helpful By Cathy Shilling on April 27, 2000
Format: Paperback
This book is a wonderful resource for survivors of all types of cancer, their families and friends. My son was so young when first diagnosed, but the effects of his treatment for leukaemia and a Bone Marrow Transplant will be far reaching, and this book will help him enormously to understand what he has been through, and what long-term medical follow-up he will need. The book manages to address all the issues, but at the same time there is so much that is positive in it too, with lots of quotes from survivors making it personal and full of heart. A book like this usually only exists in your dreams, I was delighted to find that the authors had actually turned it into a reality.
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18 of 18 people found the following review helpful By Linda Goettina on April 17, 2000
Format: Paperback
As a survivor of an adolescent cancer, this is the book I have been waiting for over the last thirty years. The information here is concise, well organized, readable and well presented. The authors do a great job of pulling together diverse and disparate medical research and setting it out for the lay reader. The book is compassionately tied together by the many stories of survivors who lend their voices and experiences to what might otherwise be overwhelming medical information. This is a book that every survivor of childhood/adolescent cancer should have.
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6 of 6 people found the following review helpful By P. Feist on December 13, 2000
Format: Paperback
In my opinion, this book is a must for childhood cancer survivors. The late effects of chemotherapy and radiation last for years past treatment for the disease. My 20 year old son is a survivor of leukemia; I got a copy for him and a copy for me. All the information he will need for follow-up medical care is easily accessible in this well-organized book. As a parent, I like the book for the medical and psychological information it contains as well as for the personal stories interwoven throughout the book. Childhood cancer survivors are in a special medical situation in that when they were diagnosed, decisions about their medical were mediated by their parents, while after treatment, the young adult survivor must make his or her own health care choices. This book does a good job of addressing this transition.
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6 of 6 people found the following review helpful By Emily on August 13, 2000
Format: Paperback
I finished treatment for a chest wall Ewing's in 2000 and I have been looking for exactly what this book provides. It is simply fantastic. Being 21, I want and need to know about relationships, disclosure, fertility, post treatment side effects to watch for, employment issues, insurance issues, plus everything else in this book. It is the best $25 I have spent pertaining to survivorship of childhood cancer. I highly recommend this to be, at the very least, a starting point to knowing about your post-treatment needs and options.
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5 of 5 people found the following review helpful By Diane Smith on June 2, 2001
Format: Paperback
I am an 18 year survivor of Osteoganic Sarcoma and I found this book to be one of the best and informative books I've ever read. I read things that I didn't even know about my disease or the long term late effects due to the chemotherapy I received. I will admit, at times it was TOO much information, but it was all factual and there were things that I read that I had to come to term with. I have an appointment at a Late Effects Clinic in a few weeks, and I am eager to get on with the rest of my life. A big Thank You to the authors who took so much time doing research and putting their own blood, sweat and tears into such an awesome project!!! Sincerely, Diane Trautman Smith
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