Customer Reviews

Childhood Cancer Survivors: A Practical Guide to Your Future

5 star:		(9)
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This book is a wonderful resource for survivors of all types of cancer, their families and friends. My son was so young when first diagnosed, but the effects of his treatment for leukaemia and a Bone Marrow Transplant will be far reaching, and this book will help him enormously to understand what he has been through, and what long-term medical follow-up he will need. The book manages to address all the issues, but at the same time there is so much that is positive in it too, with lots of quotes from survivors making it personal and full of heart. A book like this usually only exists in your dreams, I was delighted to find that the authors had actually turned it into a reality.

As a survivor of an adolescent cancer, this is the book I have been waiting for over the last thirty years. The information here is concise, well organized, readable and well presented. The authors do a great job of pulling together diverse and disparate medical research and setting it out for the lay reader. The book is compassionately tied together by the many stories of survivors who lend their voices and experiences to what might otherwise be overwhelming medical information. This is a book that every survivor of childhood/adolescent cancer should have.

I finished treatment for a chest wall Ewing's in 2000 and I have been looking for exactly what this book provides. It is simply fantastic. Being 21, I want and need to know about relationships, disclosure, fertility, post treatment side effects to watch for, employment issues, insurance issues, plus everything else in this book. It is the best $25 I have spent pertaining to survivorship of childhood cancer. I highly recommend this to be, at the very least, a starting point to knowing about your post-treatment needs and options.

I am an 18 year survivor of Osteoganic Sarcoma and I found this book to be one of the best and informative books I've ever read. I read things that I didn't even know about my disease or the long term late effects due to the chemotherapy I received. I will admit, at times it was TOO much information, but it was all factual and there were things that I read that I had to come to term with. I have an appointment at a Late Effects Clinic in a few weeks, and I am eager to get on with the rest of my life. A big Thank You to the authors who took so much time doing research and putting their own blood, sweat and tears into such an awesome project!!! Sincerely, Diane Trautman Smith

Once again Nancy Keene provides information for patients and families that is just not available in this detail anywhere else. Her disease specific description of late effects and life after chemotherapy enables the reader to receive benefits that will effect for the rest of their lives. Information such as monitoring potential life threatening effects from treatment are just invaluable for the future of children surviving cancer and continuing into adulthood. I would urge any patient/parent/family member coming off active chemotherapy to pick up this book. Trust me you will have many, many book-marked pages. Our child just concluded his treatment and this book has not been very far from my side.

Please join People Against Childhood Cancer (PAC2). We also have a petition to create awareness of childhood cancers.

Here is the link to our group site and petition....


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Thank you.

This book is what every survivor, their parent(s) and thier doctor needs! It is comprehensive and well laid out...I love how I can easily find information on areas of concern I have regarding my son's survival. It has come in handy during follow up appointments to ensure my son is receiving the proper long term care. There is a compact card in the back of the book where all information about the child's treatment can be recorded so the child will have easy to access, concise information regarding their surgeries, chemotherapy drugs, radiation amount and type, etc. I know this will be an indispensible tool for my son as he grows up. I applaud the authors for writing a much-needed book. This book is a MUST-HAVE for EVERY childhood cancer survivor!

In my opinion, this book is a must for childhood cancer survivors. The late effects of chemotherapy and radiation last for years past treatment for the disease. My 20 year old son is a survivor of leukemia; I got a copy for him and a copy for me. All the information he will need for follow-up medical care is easily accessible in this well-organized book. As a parent, I like the book for the medical and psychological information it contains as well as for the personal stories interwoven throughout the book. Childhood cancer survivors are in a special medical situation in that when they were diagnosed, decisions about their medical were mediated by their parents, while after treatment, the young adult survivor must make his or her own health care choices. This book does a good job of addressing this transition.

I think this is a great book, now we just need a book on finances and how to plan for lifes events like college, buying a home, and retirement planning.