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Childhood Leukemia: A Guide for Families, Friends, and Caregivers (Patient Centered Guides) [Paperback]

Nancy Keene
4.8 out of 5 stars  See all reviews (39 customer reviews)


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Childhood Leukemia: A guide for Families, Friends & Caregivers (Patient Centered Guides) Childhood Leukemia: A guide for Families, Friends & Caregivers (Patient Centered Guides) 4.8 out of 5 stars (39)
Out of Print--Limited Availability

Book Description

July 8, 1997 1565921917 978-1565921917 1st

This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child.



Editorial Reviews

From the Publisher

This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emtional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Our hope is that parents who read this book will encounter medical facts simply explained, will find advice that eases their daily life, and will feel empowered to be a strong advocate for their child.

About the Author

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.


Product Details

  • Series: Patient Centered Guides
  • Paperback: 568 pages
  • Publisher: O'Reilly and Associates; 1st edition (July 8, 1997)
  • Language: English
  • ISBN-10: 1565921917
  • ISBN-13: 978-1565921917
  • Product Dimensions: 8.9 x 6 x 1.3 inches
  • Shipping Weight: 1.6 pounds
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (39 customer reviews)
  • Amazon Best Sellers Rank: #4,950,937 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews
7 of 7 people found the following review helpful
5.0 out of 5 stars Essential Book for Parents of Children with Leukemia November 24, 1997
By A Customer
Format:Paperback
"Childhood Leukemia" is an essential reference for a parent of a child with leukemia. Packed with information and resources, it is also very readable. The inclusion of excerpts of stories of parents who've "been there" lends the book a friendly yet personal atmosphere. I am the parent of a child with leukemia, and Nancy Keene's work is more than just a book to our family, it's more like a Bible, if I may! I have found other sources of information, yes, but not altogether in one place. The book not only informs us on the medical aspects of the disease and treatment, it also helps us deal with emotional and financial issues. I would recommend this book not only to parents of children with leukemia, but other childhood cancers as well, since many of the treatments overlap. I would also recommend it for the extended family and friends, so that they can more fully understand what the family is going through.
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6 of 6 people found the following review helpful
5.0 out of 5 stars This Book is the Bible of Childhood Leukemia! September 17, 2003
Format:Paperback
When my son was diagnosed in July 2002 with ALL, I didn't even know what Leukemia was. I ordered this book from Amazon right away. Over a year later, I found myself still looking to this book for reference. After the doctors explain something to me I come home and look it up in this book and understand even better exactly what's going on with my son. If you know anyone with leukemia get a copy for yourself and for the parents of that child. (I have never written a review for a book before but felt compelled to tell people how helpful this book has been to me.)
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6 of 6 people found the following review helpful
5.0 out of 5 stars The one book that you need to get you through leukemia. November 23, 1998
By A Customer
Format:Paperback
Every family that has a child with leukemia should own this book. It helped our family immensely when our 6 year old daughter was diagnosed with leukemia. This book covers every aspect of what you will be dealing with on the road to remission and recovery. No other book on leukemia covers the subject with the depth and warmth of this book. The author's daughter is a childhood leukemia survivor. The book is written in a very easy to read style, and gives many helpful suggestions in dealing with the day to day, and long term problems that come up in dealing with childhood leukemia. Our oncologist read it and was overjoyed to finally see a book out that lays out all of the information so concisely.
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4 of 4 people found the following review helpful
5.0 out of 5 stars Donate a book to your local children's hospital. May 26, 2001
By Artist
Format:Paperback|Verified Purchase
This is an excellent book. If you are finished with your copy, please give it to someone in the waiting room with you next time you take your child in for chemo. Or better yet, buy a new one now and give it to someone who has a newly diagnosed child. Enjoy watching your donation change someone's experience for the better first hand. My grandson Jonnie, who has leukemia, also has a charity that benefits patients at Children's Hospital Los Angeles. We donate these books and also toys. Send a book there in his name. If you need to see bone marrow aspiration photos go to [...] These photos take the fear away for some kids who experience the procedure, but never get to see it done.
This disease is rare. We're very lucky to have a book like this. Let's do what we can to see that everyone who can use it has a copy.
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3 of 3 people found the following review helpful
Format:Paperback
I don't know how I functioned with the care of my leukemic daughter before I bought this book! I have asked the doctors office questions about the same drugs over and over. This book lets me refer to any chemo drug and see its common and rare side-effects, how its given, generic names, everything I need to know!
The book is sprinkled throughout with quotes from real people like me going through the same thing. Their experiences and coping methods have been a lifeline. They remind me that I'm not alone!
The author delivers medical information in simple terms that are easy to comprehend.
Advice is given on how to deal with the financial aspects and support groups and so much more.
This book will be within arms reach for a long time!
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3 of 3 people found the following review helpful
By A Customer
Format:Paperback
My family and I have been trying to cope with our 4 year olds diagnosis with Leukemia. This book describes from the diagnosis to the outcome and everything in between. I have shared this book with my whole family and even my daycare provider. I would recommend this to any family who has come in contact with this deadly but curable disease.
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3 of 3 people found the following review helpful
5.0 out of 5 stars "Childhood Leukemia" - best practical guide for parents November 11, 1997
By A Customer
Format:Paperback
Nancy Keene's book, "Childhood Leukemia", is the best book in print for parents and other caregivers who have a child facing the arduous but very successful treatment for a once incurable disease. "Childhood Leukemia" bridges the gap between the hoodoo of inspirational books and the voodoo of medical texts. Using her background in biology, Nancy dispels the terror that the word cancer engenders - a terror that needn't be, now that over 85 percent of children with leukemia are cured -- by describing medical terms and procedures in lay terms, and offering practical methods for coping with pain, boredom, depression and uncertainty, as well as childhood development after cancer. This book is organized so that one can read and assimilate only what's meaningful and absorbable at a given stage, yet its comprehensive scope insures that this will be the book you check first to find the answers you need. Nancy pays special attention to the emotional aspects of coping with childhood cancer, merging many first-person accounts from parents who have found unique ways to handle each obstacle that has arisen. Indeed, this book would serve well as a reference for anyone coping with any childhood cancer.
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Most Recent Customer Reviews
4.0 out of 5 stars very helpful
have a 2.5 yr old grandson recently diagnosed , and want to know as much as I can to be supportive as I can.
Published 4 months ago by Susan Howe
5.0 out of 5 stars Great book
This is a must have for a leukemia family. It covered lots of things I had questions about and also helped me to know what might be coming. Read more
Published 14 months ago by Lesley Minear
4.0 out of 5 stars research
Used this book for college class research paper. Donated after class ended as our local library didnt offer many of this subject
Published 14 months ago by annette yount
5.0 out of 5 stars One Single Stop for ALL
One Single Stop for ALL. Very Useful Book. Its an eye opener for most of the questions. We could manage ALL better with this guide.
Published 23 months ago by rpk
5.0 out of 5 stars Great resource
Our friend purchased this book for us when our son was diagnosed with leukemia. It has been a very good resource to refer to. Read more
Published on May 9, 2012 by Motherfirst
5.0 out of 5 stars Childhood Leukemia a guide for family friends and caregivers 4th edit
This book was give by the support group "RedKITE" in Australia to my daughter,when her daughter, aged 5 was diagnosed with childhood leukemia... Read more
Published on January 18, 2012 by Quentin Thompson
5.0 out of 5 stars Basically All You Need to Know about Childhood Leukemia
This book is a fantastic resource for any family, friends of, educators, etc - anyone dealing with childhood leukemia in their lives. Read more
Published on September 28, 2011 by scrumdiddlyumptious
5.0 out of 5 stars A Great Resource for Families
My daughter was diagnosed with leukemia in June of 2007. This book was given to me in the hospital, shortly after her diagnosis. Read more
Published on July 16, 2011 by Julia Monson
5.0 out of 5 stars Great Book!!!
The book is very informative but simple enough for the common joe. Tells what to expect, what to prepare for and how to respond to different phases of the sickness and treatment,... Read more
Published on June 16, 2011 by jimmy
4.0 out of 5 stars Bought for friends
I bought this for friends when their daughter was dx with Leukemia. I read some of it when it arrived and found it helpful in helping them. Read more
Published on January 10, 2011 by MamaZ
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