Childhood Leukemia: A Guide for Families, Friends, and Caregivers (Patient Centered Guides) 1st Edition

41 customer reviews
ISBN-13: 978-1565921917
ISBN-10: 1565921917
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Editorial Reviews

From the Publisher

This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emtional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Our hope is that parents who read this book will encounter medical facts simply explained, will find advice that eases their daily life, and will feel empowered to be a strong advocate for their child.

About the Author

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

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Product Details

  • Series: Patient Centered Guides
  • Paperback: 568 pages
  • Publisher: O'Reilly and Associates; 1st edition (July 11, 1997)
  • Language: English
  • ISBN-10: 1565921917
  • ISBN-13: 978-1565921917
  • Product Dimensions: 6 x 1.2 x 9 inches
  • Shipping Weight: 1.6 pounds
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (41 customer reviews)
  • Amazon Best Sellers Rank: #7,355,716 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews

7 of 7 people found the following review helpful By A Customer on November 24, 1997
Format: Paperback
"Childhood Leukemia" is an essential reference for a parent of a child with leukemia. Packed with information and resources, it is also very readable. The inclusion of excerpts of stories of parents who've "been there" lends the book a friendly yet personal atmosphere. I am the parent of a child with leukemia, and Nancy Keene's work is more than just a book to our family, it's more like a Bible, if I may! I have found other sources of information, yes, but not altogether in one place. The book not only informs us on the medical aspects of the disease and treatment, it also helps us deal with emotional and financial issues. I would recommend this book not only to parents of children with leukemia, but other childhood cancers as well, since many of the treatments overlap. I would also recommend it for the extended family and friends, so that they can more fully understand what the family is going through.
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6 of 6 people found the following review helpful By A Customer on November 23, 1998
Format: Paperback
Every family that has a child with leukemia should own this book. It helped our family immensely when our 6 year old daughter was diagnosed with leukemia. This book covers every aspect of what you will be dealing with on the road to remission and recovery. No other book on leukemia covers the subject with the depth and warmth of this book. The author's daughter is a childhood leukemia survivor. The book is written in a very easy to read style, and gives many helpful suggestions in dealing with the day to day, and long term problems that come up in dealing with childhood leukemia. Our oncologist read it and was overjoyed to finally see a book out that lays out all of the information so concisely.
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6 of 6 people found the following review helpful By Cheryl D. on September 17, 2003
Format: Paperback
When my son was diagnosed in July 2002 with ALL, I didn't even know what Leukemia was. I ordered this book from Amazon right away. Over a year later, I found myself still looking to this book for reference. After the doctors explain something to me I come home and look it up in this book and understand even better exactly what's going on with my son. If you know anyone with leukemia get a copy for yourself and for the parents of that child. (I have never written a review for a book before but felt compelled to tell people how helpful this book has been to me.)
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4 of 4 people found the following review helpful By Artist on May 26, 2001
Format: Paperback Verified Purchase
This is an excellent book. If you are finished with your copy, please give it to someone in the waiting room with you next time you take your child in for chemo. Or better yet, buy a new one now and give it to someone who has a newly diagnosed child. Enjoy watching your donation change someone's experience for the better first hand. My grandson Jonnie, who has leukemia, also has a charity that benefits patients at Children's Hospital Los Angeles. We donate these books and also toys. Send a book there in his name. If you need to see bone marrow aspiration photos go to [...] These photos take the fear away for some kids who experience the procedure, but never get to see it done.
This disease is rare. We're very lucky to have a book like this. Let's do what we can to see that everyone who can use it has a copy.
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6 of 7 people found the following review helpful By A Customer on September 22, 2000
Format: Paperback
This book may be useful, especially to friends or grandparents who want to better understand what it means to have a child diagnosed with leukemia, but it is not the definitive guide that the other rewiews led me to believe.
When my child was first diagnosed I wanted to learn everything I could. The other reviews led me to believe that this would be a good resource. However, there is very little scientific information and I found the personal accounts to be very anecdotal and for the most part not to apply to our experience. One area that I was particularly interested in finding out more about was the long term side-affects of the drugs commonly used in chemotherapy such as learning disabilities and heart damage and this book didn't touch those issues in very much depth. Also, the section which discussed dealing with the death of a child was not the best thing for me to read when my daughter was newly diagnosed. It is my opinion that something like that cannot be addressed with in a relatively short chapter and would be best dealt with in its own book.
All that said, I gave this book 3 stars because I do think many people would find emotional support reading about other people's experience dealing with childhood leukemia. It just wasn't the book that I was looking for.
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3 of 3 people found the following review helpful By A Customer on November 11, 1997
Format: Paperback
Nancy Keene's book, "Childhood Leukemia", is the best book in print for parents and other caregivers who have a child facing the arduous but very successful treatment for a once incurable disease. "Childhood Leukemia" bridges the gap between the hoodoo of inspirational books and the voodoo of medical texts. Using her background in biology, Nancy dispels the terror that the word cancer engenders - a terror that needn't be, now that over 85 percent of children with leukemia are cured -- by describing medical terms and procedures in lay terms, and offering practical methods for coping with pain, boredom, depression and uncertainty, as well as childhood development after cancer. This book is organized so that one can read and assimilate only what's meaningful and absorbable at a given stage, yet its comprehensive scope insures that this will be the book you check first to find the answers you need. Nancy pays special attention to the emotional aspects of coping with childhood cancer, merging many first-person accounts from parents who have found unique ways to handle each obstacle that has arisen. Indeed, this book would serve well as a reference for anyone coping with any childhood cancer.
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