Children with Spina Bifida provides parents with information, guidance, and support to help meet their child's often intensive needs from birth through childhood. In one comprehensive volume, it provides easy-to-understand, compassionate coverage of: Symptoms of spina bifida; Prenatal diagnosis; Neurosurgery; Bowel management; Physical therapy, braces, casts; Emotional health; Education; Causes of spina bifida; Working through grief; Urological concerns; Childhood development; Parenting issues; Legal rights and insurance.
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Book Description
Editorial Reviews
From Library Journal
In the United States, nearly 3000 children a year are born with neural tube defects. Of these, about half have myelomeningocele, the most common form of spina bifida. Parents of these special children need a text that provides them with information in an easy-to-understand, nonfrightening, supportive way. With Children with Spina Bifida, Woodbine House once again proves its commitment to parents of children with special needs. Edited by Lutkenhoff (who coedited SPINAbilities: A Young Person's Guide to Spina Bifida), the book follows Woodbine House's well-established format of reader-friendly chapters written by noted professionals or fellow parents. Each chapter closes with insights from other parents. The chapters deal with issues parents will face, from prenatal diagnosis to adulthoodAlegal issues, education, health concerns, treatments, therapies, and causes. The extensive Resource Guide at the back of the book is remarkable, and is, by itself, well worth the cost of the book. This is an essential purchase for all parenting and consumer health collections.AKellyJo Houtz Griffin, Auburn, WA
Copyright 1999 Reed Business Information, Inc.
Copyright 1999 Reed Business Information, Inc.
Review
Informative easy to read, this guide touches on all aspects of the development and care of children with Spina Bifida. Comprehensive reading list and resource guide are included. A 2000 Parents' Choice® Recommended winner.
Reviewed by Parents' Choice® 2000 -- From Parents' Choice®
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Most Helpful Customer Reviews
6 of 6 people found the following review helpful:
5.0 out of 5 stars
A very comprehensive book,
By
This review is from: Children with Spina Bifida: A Parents' Guide (Special Needs Collection) (Paperback)
This is one of the two books we ordered when we found out that our baby would be born with sb. We have read lots of books since then and still think this is the best. It is very comprehensive, presents the information well, and I have referred to it often over the past 8 months. We ended up purchasing several copies to give to our family members so they would understand what is going on with our son.
6 of 6 people found the following review helpful:
5.0 out of 5 stars
Great for parent of a child with spina bifida,
By
This review is from: Children with Spina Bifida: A Parents' Guide (Special Needs Collection) (Paperback)
I am the nurse practitioner in a spina bifida clinic. I give this book out to all new parents of children with spina bifida. Many of them tell me that they refer to this book often.
7 of 8 people found the following review helpful:
5.0 out of 5 stars
"Must" reading for all parents of spina bifida children.,
By Midwest Book Review (Oregon, WI USA) - See all my reviews
This review is from: Children with Spina Bifida: A Parents' Guide (Special Needs Collection) (Paperback)
Children With Spina Bifida: A Parent's Guide offers parents and family members the background, guidance, and supported needed to make proactive, informed decisions regarding a child's complex medical needs and other important considerations. Provided is a complete and compassionate overview of the symptoms of spina bifida; prenatal diagnosis; neurosurgery; bowel management; physical therapy, braces, and casts; nurturing an emotionally healthy child; education; causes of spina bifida; working through grief; urological concerns; orthopedic concerns; childhood development; parenting issues; legal rights and insurance. Of special interest is a chapter on adults with spina bifida written by a physician with spina bifida; and a chapter by a by a young woman with spina bifida who writes about her journey toward independence. Children With Spina Bifida: A Parent's Guide is "must" reading for all parents and family members with a child or loved one afflicted by spina bifida.
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Inside This Book
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First Sentence:
When you first find out that your baby has (or will be born with) spina bifida, you will naturally be scared and confused. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
most children with spina bifida, spina bifida need, spina bifida team, adults with spina bifida, person with spina bifida, individuals with spina bifida, child with spina bifida, many children with spina bifida, people with spina bifida, adult with spina bifida, spina bifida clinic, bowel management program, baby with spina bifida, bifida clinics, tethered cord syndrome, bowel program, catheterization program, spina bifida association, stool mass, shunt malfunction, mobility device Key Phrases - Capitalized Phrases (CAPs): (learn more)
Parent Statements, United States, Bureau of Vocational Rehabilitation, The Arc, Resource Guide, Spina Bifida Association of America, Social Security, Disabilities Act, Children's Hospital, Disabilities Education Act New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
When you first find out that your baby has (or will be born with) spina bifida, you will naturally be scared and confused. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
most children with spina bifida, spina bifida need, spina bifida team, adults with spina bifida, person with spina bifida, individuals with spina bifida, child with spina bifida, many children with spina bifida, people with spina bifida, adult with spina bifida, spina bifida clinic, bowel management program, baby with spina bifida, bifida clinics, tethered cord syndrome, bowel program, catheterization program, spina bifida association, stool mass, shunt malfunction, mobility device Key Phrases - Capitalized Phrases (CAPs): (learn more)
Parent Statements, United States, Bureau of Vocational Rehabilitation, The Arc, Resource Guide, Spina Bifida Association of America, Social Security, Disabilities Act, Children's Hospital, Disabilities Education Act New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
Citations (learn more)
This book cites 39
books:
See all 39 books this book cites
- Raising a Child Who Has a Physical Disability by Donna G. Albrecht on page 41, and Back Matter
- The Early Intervention Dictionary: A Multidisciplinary Guide to Terminology by Jeanine G. Coleman in Back Matter (1), and Back Matter (2)
- Teaching Young Child with Motor Delays: A Guide for Parents & Professionals by Marci J. Hanson in Back Matter
- Your Perfect Right: A Guide to Assertive Living by Robert E. Alberti in Back Matter
- Uncommon Fathers: Reflections on Raising a Child with a Disability by Donald J. Meyer in Back Matter
See all 39 books this book cites
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