Children with Spina Bifida: A Parents' Guide [Paperback]

Edited by Marlene Lutkenhoff (Author), R.N. (Author), M.S.N. (Author)

Book Description

Publication Date: November 30, 2007

Now thoroughly revised and updated, Children with Spina Bifida--the complete and highly acclaimed guide for parents and professionals--is available in a new edition. Children with this congenital condition, which occurs in approximately 1 out of 1,000 births, can have complex medical and therapeutic needs. Every aspect of their care and development from birth to age six is covered in this comprehensive resource.

Chapters focus on specific issues, such as:
Causes of spina bifida;

Prenatal diagnosis;

Neurosurgery;

Urological & bowel management;

Orthopedic concerns;

Physical therapy;

Common medical problems;

Development;

Day-to-day parenting issues;

Education & accommodations;

A child s emotional health;

Legal rights & hurdles;

Perspectives from adolescents & adults with spina bifida.

New to this edition is the latest information on research and medical advancements on spina bifida, including prenatal testing and surgery; new treatments & medications; the link between low folic acid levels and spina bifida; new rating systems for assessing mobility; an overview of orthotics & wheelchair options; changes to federal education law (IDEA); and much more. It also features a resource guide, glossary of terms, and dozens of delightful photographs of children with spina bifida.

Editorial Reviews

Review

"This book is like an encyclopedia on spina bifida. You don't have to read the whole book at once--use it as a reference as needed. It will be especially helpful to new parents, but it could be a lifesaver to parents of children of every age."

About the Author

Marlene Lutkenhoff, RN, MSN, is the clinical nursing manager in the Division of Developmental and Behavioral Pediatrics at Cincinnati Children's Hospital Medical Center. She served on the National SBA Board for four years and during that time served as Conference Chair for the National Conference in 06 and 07. She has also advocated on Capitol Hill three times for individuals with spina bifida.

Product Details

• Paperback: 415 pages
• Publisher: Woodbine House; 2nd edition (November 30, 2007)
• Language: English
• ISBN-10: 1890627771
• ISBN-13: 978-1890627775
• Product Dimensions: 8.4 x 5.6 x 0.8 inches
• Shipping Weight: 1 pounds (View shipping rates and policies)
• Average Customer Review: 5.0 out of 5 stars  See all reviews (4 customer reviews)
• Amazon Best Sellers Rank: #492,182 in Books (See Top 100 in Books)

Customer Reviews

Most Helpful Customer Reviews

1 of 1 people found the following review helpful:

5.0 out of 5 stars Easy to Understand, November 30, 2008

By 

Alicia Schott (Stockton, CA) - See all my reviews
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This review is from: Children with Spina Bifida: A Parents' Guide (Paperback)

I ordered another book when I first found out about my daughter. I found it tailored toward the medical profession and definately hard to understand. Then I found this book. It was much easier to read; it spoke to me in words I could understand as opposed to just medical terminalogy. I refer to it often. It seems to have a little bit of information about everything that my daughter either has, or will have, to deal with during her life.

1 of 1 people found the following review helpful:

5.0 out of 5 stars Best resource I've found for SB, April 7, 2008

By 

K. Buchanan (Tennessee) - See all my reviews
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This review is from: Children with Spina Bifida: A Parents' Guide (Paperback)

I've done a lot of Internet searches for information about spina bifida. This book is the best overall source I've found. I highly recommend this book for parents and caregivers of children with spina bifida. My daughter is now two years old, and I still refer to this resource often.

5.0 out of 5 stars Great resource!, March 28, 2011

By 

tousek26 - See all my reviews

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This review is from: Children with Spina Bifida: A Parents' Guide (Paperback)

I really like this book. It has really made me understand what I may go through with my child. I found out over Christmas that my child would be born in April with Spina Bifida and immediately my family went into research mode trying to find out everything possible about this birth defect. When I found this book in February I knew I had to own it and it would end up being a staple in my bag of things going to many doctors' appointments. I will be having a C-Section on April 19 and then our journey will begin with our little one outside of me. My husband and I are prepared for whatever may come our way.