Children with Tourette Syndrome: A Parent's Guide (Special Needs Collection) [Paperback]

Tracy Haerle (Editor), Jim Eisenreich (Foreword)

Book Description

Series: Special Needs Collection | Publication Date: January 2003

This handbook for parents of children and teenagers with Tourette Syndrome offers up-to-date information and compassionate advice for dealing with what is perhaps one of the most misunderstood and misdiagnosed neurological disorders. Written by a team of professionals and parents Children with Tourette Syndrome covers medical, educational, legal, family life, daily care and emotional issues.

Editorial Reviews

From Library Journal

Tourette Syndrome (TS) is a physical disorder of the brain that causes involuntary muscle tics and vocal noises; obsessive-compulsive and attention deficit disorders are frequently present as well. Because symptoms of TS generally appear before the age of seven, this guide is a particularly important addition to the literature on this long-misunderstood and misdiagnosed illness. The medical, educational, social, and legal issues associated with TS are addressed through clear and comprehensive essays written by specialists and parents. The book also provides parents with useful coping strategies while focusing on ways to encourage children to reach their highest potential. Each chapter concludes with candid statements by parents that convey the pain and triumphs associated with this disorder. Recommended for public libraries and academic libraries supporting healthcare curricula.
- Linda Cullum, Lake Superior State Univ. Lib., Sault Sainte Marie, Mich.
Copyright 1992 Reed Business Information, Inc.

Review

"Recommended for public libraries and academic libraries supporting healthcare curricula." -- Library Journal

See all Editorial Reviews

Product Details

• Paperback: 340 pages
• Publisher: Woodbine House (January 2003)
• Language: English
• ISBN-10: 0933149441
• ISBN-13: 978-0933149441
• Product Dimensions: 8.5 x 5.5 x 0.7 inches
• Shipping Weight: 14.6 ounces
• Average Customer Review: 4.6 out of 5 stars  See all reviews (11 customer reviews)
• Amazon Best Sellers Rank: #1,179,014 in Books (See Top 100 in Books)

Customer Reviews

Most Helpful Customer Reviews

36 of 36 people found the following review helpful:

5.0 out of 5 stars Very informative, enormously helpful, with great advice, June 13, 2001

By 

franq "nolansmom" (Long Island, New York) - See all my reviews

This review is from: Children with Tourette Syndrome: A Parent's Guide (Special Needs Collection) (Paperback)

My 8-year-old son has ADHD, OCD and tic disorders (though not full-blown Tourette Syndrome). This book was an enormous help for me in understanding the tic disorder and also the ADHD and OCD which often co-occur with TS and tic disorders. It is written in a very easy to read, friendly, compassionate way. There is a lot of clear advice here. TS is complex and often misunderstood. The book helps you cope with and understand many of the related problems. It teaches acceptance, dealing with friends, relatives, schools, etc. It is a very thorough book. After reading it, I felt less helpless and more empowered to deal with these issues. The book talks about the importance of acknowledging your child's frustrations and feelings, which will help him to learn to share them more directly with you. For example, saying, "I know you're trying really hard, and it's frustrating when the other students can't seem to understand that you can't stop doing certain things." This book helps you to also empower your child, and to embrace what is special about him. It says, "If you believe in your child as an individual whose Tourette syndrome is only one aspect of her total being, your child will also be more likely to see herself as someone with abilities, rather than disabilities." I strongly recommend this book. It will help.

24 of 25 people found the following review helpful:

4.0 out of 5 stars Jam Packed Guide for Parents and Professionals, March 25, 2002

By 

Dr. Rosemary Bannon Tyksinski "www.rosemarys-... (Seattle, WA United States) - See all my reviews

This review is from: Children with Tourette Syndrome: A Parent's Guide (Special Needs Collection) (Paperback)

This is a compact little guide is packed with useful information both for parents and professionals. It is not cluttered with long narratives of people's "personal stories". While there is definitely a place for that approach, I needed a quick primer that would easily acquaint me with the full range of difficulties faced by a child with Tourette Syndrome as well as those faced by her parents. As a clinican, I needed to arm myself in a hurry with an understanding of the essential issues relevant to this population in order to manage a school crisis. It gave me everything I needed to effectively advocate for my young client and her parents.

It is a quick read, informative and clear. The book humanizes TS and provides basic information about etiology, development, and treatment, medication, symptom management, and guidlines on how to interact with school staff. Suggestions for designing an effective educational plans,advocacy strategies, and a basic description of legal rights are also included.

I recommend this book without hesitation.

17 of 17 people found the following review helpful:

5.0 out of 5 stars Excellent Resource For Parents, March 30, 2005

By 

E. Grimm "Book Worm Man" (Long Island) - See all my reviews
(REAL NAME)   

This review is from: Children with Tourette Syndrome: A Parent's Guide (Special Needs Collection) (Paperback)

My son has Tourettes. This was the first book that I bought when he was diagnosed and I found it to be invaluable. It is a great resource for the parents of the newly diagnosed or even those who have been dealing with it for some time. The book lets you know what to expect and how to cope. A must have for anyone dealing with a special needs child with this disorder.