19 of 20 people found the following review helpful
on December 19, 2010
My sister has suffered from odd symptoms most of her life. Her story is so similar to this it is frightening. Tells the story that the insurance and medical communities don't want you to hear. I'm ordering another copy for a friend. The story is very engaging while presenting a lot of relevant information about a misunderstood disease. Caroline does a great job blending fact with fiction. My wife finished this book in one sitting. She could not put it down.
14 of 15 people found the following review helpful
on January 4, 2011
I have a family member who has CFS, so I decided to purchase CFS: A Novel as a coping mechanism. The book was great! I literally could not put it down. The author did a good job of explaining the situation while keeping the audience interested with an intense storyline.
11 of 12 people found the following review helpful
on January 10, 2011
If you have Chronic Fatigue Syndrome, or know someone who does, this book is a must read. I absolutely could not put this book down. Not only does it have a lively backdrop storyline, but it gives one an idea as to how the medical industry sees people with CFS as a whole.
With recently being diagnosed with CFS, I try to find out everything that I can about the disease. After reading this book, I gave it to my husband and children to read so that they too would understand the difficulties that CFS sufferers are attacked with on a daily basis.
I HIGHLY recommend this book to CFS sufferers, family members of CFS sufferers, and the medical profession. Not only is it well worth the money, but well worth the time to read, and learn just what CFS means.
9 of 10 people found the following review helpful
on May 22, 2011
This book is essentially a follow-up of sorts to Hillary Johnson's brilliantly researched and written book, Osler's Web. Ms. Anderson, the author of Chronic Fatigue Syndrome: A Novel, brings the ME/CFS sick forward to the current period of solid research on a Retrovirus that was found by the Whittemore-Peterson Institute in Nevada and also throws backwards a bit to the Retrovirus that was found by Drs. Defrietas, Bell, Cheney in the mid 1980's (when the CDC deliberately damaged replication, stopped further research on this Retrovirus until WPI took up research 30 years later). The book gives enough medical background so that those without knowledge of what ME/CFS is really about will learn quickly about the extremes of the disease and devastation it causes, and the rather criminal/unethical activities of the US Centers for Disease Control (CDC) in Atlanta during the last 30 plus years. For those with a strong knowledge of the ME/CFS events, the discovery of the TWO Retrovirus families (1980s and 2006)and the deliberate damage caused by the US CDC and the UK's Wessely and White (and the 40 page document in the UK National Archives in Kew that had been locked down for 73 yrs until January 2071 - [...] )the book is a good read with an ending that the millions of very sick ME/CFS sick will be pleased with. It should be also noted that the Retrovirus family found in the 1980s and then again by Whittemore-Peterson Institute, National Cancer Institute (NCI), Harvard University and then a replication study by the US Federal health organizations FDA and National Institutes of Health (NIH) has made links to other deadly diseases (e.g., Autism, MS, a dementia, other diseases) and the cancers including lymphoma, leukemia, prostate cancer, and breast cancer (30% of breast cancers were found to have the retrovirus IN the cancerous breast tissue). So, although the book deals with only the ME/CFS aspect of the criminal activities of the CDC and insurance industry in keeping ME/CFS a psychosomatic disease rather than the very real disabling and deadly disease it is, do a bit more research and read the studies that show the link between this Retrovirus (XMRV is a good search term) and ME/CFS, Autism, MS, leukemia, lymphoma, breast and prostate cancers. Also read what the CDC has done to medical and scientific research for the last 30 years that may well have cost hundreds of millions of people their lives by keeping this disease and the Retrovirus(es) associated with it out of the public arena. Could the two Retrovirus families be the key or part of the key to many dreadful diseases and cancers? We don't know YET, but shortly the role of the CDC as water boy for other organizations (possibly other Federal organizations, the Military, the Department of Defense, etc) will be finally revealed.
Lastly, I would also read Hillary Johnson's book "Osler's Web" as that book gives a great deal of historical background into the role of the CDC in a massive, deadly cover-up.
Buy the book, read it and hand it off to those that don't know the history of ME/CFS and the role of the CDC in damaging medical and scientific research. Sadly, the insurance companies are very much implicated in the cover-up of this disease and the retrovirus families all because of the pay-outs that would have been made to the sick and disabled. However, once the entire story comes out in the light of day, many of those insurance companies will be financially damaged and the CDC and other organizations complicit in this over 30 year cover-up will also be damaged and the public of the US, UK, Canada and other countries will be outraged - especially those people who are/were affected or lost loved ones because of this cover-up by the CDC and the greed of the insurance companies. Wait for it...
6 of 6 people found the following review helpful
on March 25, 2011
If you are suffering from Chronic Fatigue Syndrome, or know someone who is you have to read this book. I could not put this book down. I had ordered 2 other books along with it and this was a last minute buy. When they came I picked this one up and read it straight through.
If you suffer from CFS or Fibromyalgia you will read your story in this book. It will leave you questionning, "they" know something "they are not telling us".
7 of 8 people found the following review helpful
on January 15, 2011
I just finished reading "Chronic Fatigue Syndrome:A Novel" and was extremely impressed. It's an enjoyable read full of real information about Chronic Fatigue Syndrome. The author was successful in the combination of an interesting novel to read and the input of vital information. I'm a woman in my 50's and have suffered
from this illness for over seven years. I've been ridiculed, abused by doctors and had very unfair experience with my Long Term disability Insurance Company. the author revealed how and why this happens. This is the situation that thousands of patients with this illness have to face every year. I applaud the author for writing this book!
6 of 7 people found the following review helpful
on January 15, 2011
A friend recommended that I read CFS: A Novel since my husband was recently diagnosed. I read the book in two days and was very impressed! Before my husband's diagnosis, I knew nothing of CFS, nor did I understand what he was going through. Now, I understand CFS and I am now able to be my husband's number one supporter.
The book was very creative. The ending was intense and kept me reading. The character development was great, I felt like I knew Allister.
6 of 7 people found the following review helpful
on January 21, 2011
I recently read Chronic Fatigue Syndrome: A Novel and could not put the book down. I was impressed with the knowledge that the author showed on CFS and would highly recommended it to people who are experiencing this illness and those of us who are interested in it. We need to speak up to protect individuals who are suffering from CFS. Thank you Caroline T. Anderson for a job well done.
3 of 3 people found the following review helpful
on January 30, 2011
The author has obviously done extensive research! Great job!
I've only gotten a little over 50 pages into the book and can't wait to finish. I recommend the book for several reasons.
Those with the illness will see themselves among the characters. Those active on certain forums will be able to fill in some gaps in their knowledge, connect the dots in the big picture, and add some details. Many of us have become very good at research ourselves!
For family members and friends of people with CFS, it is a great source for understanding the illness and the barriers that have been placed to overcoming it.
I will be sharing this with many and most likely will need more copies!