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The Complete Bedside Companion: A No-Nonsense Guide to Caring for the Seriously Ill
 
 
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The Complete Bedside Companion: A No-Nonsense Guide to Caring for the Seriously Ill [Paperback]

Rodger McFarlane (Author), Philip Bashe (Author)
4.8 out of 5 stars  See all reviews (8 customer reviews)

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Book Description

0684843196 978-0684843193 August 11, 1999 1
Nursing a parent, spouse, other relative, or friend through the painful progress of a terminal disease is not a road best traveled alone. The Complete Bedside Companion offers warmth, encouragement, and the medical, legal, financial, and emotional advice you need when caring for an ailing loved one.

Drawing on the experiences of dozens of ordinary people who have cared for relatives and friends ill or dying from cancer, Alzheimer's disease, heart disease, stroke, emphysema, diabetes, AIDS, and other serious conditions -- along with the practical wisdom of distinguished medical, legal, financial, and psychological experts -- this sound, compassionate guide provides field-tested advice on every aspect of caring for the sick including:

  • Doing battle with insurance companies
  • Managing symptoms such as nausea or pain
  • Exploring experimental and alternative therapies
  • Maintaining cash flow and coping with bills

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Editorial Reviews

From Booklist

Caring for someone who is seriously ill is a major responsibility. It is both a full-time job that is physically, emotionally, and financially demanding, and a rewarding act of love. This book, written by two experienced caregivers, "walks you down the road from the onset of symptoms through the very end and afterward." It offers practical information, advice, and support for those who undertake this monumental task.

The book is divided into two parts. The first covers the general aspects of caring for the sick: how to choose and deal with doctors, hospitals, and insurance providers; home nursing skills; legal matters; financial affairs; getting help from and dealing with family and friends; support groups and preserving personal health; preparing for death; and the grief process. The authors are very supportive. They encourage caregivers to do whatever they can without neglecting themselves and their families. They provide contact numbers for national support groups in the introduction.

The second part of the book provides information on caring for people with specific diseases. Chapters on cancer, chronic pulmonary disease, HIV/AIDS, kidney disease, heart disease, diabetes, and neurological disease include information on the symptoms, diagnosis, treatment, and course of the disease. Emphasis is on the practical aspects^-how to test blood glucose levels, proper diets, dealing with impaired mobility, incontinence, and dementia. Stories from people who have cared for someone with the disease inject a dose of reality. They speak about the difficulties and the joys of being a caregiver. There is a brief bibliography at the end of each chapter.

A series of appendixes offers referrals to organizations that provide information about specific diseases, social services, home and long-term care, and hospice services. The authors mention using the Internet as a resource, but they do not give any URLs. A bibliography of books and articles completes the text.

The Complete Bedside Companion lives up to its subtitle. By explaining everything from bedsore prevention and the pros and cons of clinical trials and alternative treatments to paying the bills and handling the dynamics of a family during a stressful time, and offering advice on surviving the ordeal intact, the authors have written an extremely valuable book. It belongs in both reference and circulating collections in public and health libraries. Those facing a family health crisis should purchase a copy for their personal library. --This text refers to an out of print or unavailable edition of this title.

Review

Mike Maza The Dallas Morning News This is the best all-around guide we've seen about helping others cope with serious illness while still taking care of yourself.

Diane Blum Executive Director, Cancer Care, Inc. This is an outstanding book, full of practical advice, warmth, and guidance. It is an essential guide for anyone who is striving to provide physical care and emotional support to a loved one.

Dick Scanlan Poz magazine This "how-to" with heart is a must-buy for any potential caregiver or any care receiver.

Product Details

  • Paperback: 544 pages
  • Publisher: Touchstone; 1 edition (August 11, 1999)
  • Language: English
  • ISBN-10: 0684843196
  • ISBN-13: 978-0684843193
  • Product Dimensions: 9.1 x 6 x 1.4 inches
  • Shipping Weight: 1.9 pounds (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (8 customer reviews)
  • Amazon Best Sellers Rank: #853,857 in Books (See Top 100 in Books)

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8 Reviews
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Average Customer Review
4.8 out of 5 stars (8 customer reviews)
 
 
 
 
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9 of 9 people found the following review helpful:
5.0 out of 5 stars A handbook on caring for the seriously ill at home., March 25, 1999
By A Customer
This extremely comprehensive handbook "traces the sequence of events common to a life-threatening illness and examines the innumerable concerns and crises that arise along the way." Caring for the seriously ill has not been a concern for several years. High technology, new drugs, and caregiving organizations have taken this burden off of the loved ones of those whose life is being threatened. In the early part of the century, families knew what had to be done and took care of the sick in their homes. They made do with what they had, rearranged rooms and furniture, and tried to make life as comfortable as possible for those who were seriously sick. With the AIDS epidemic, taking care of the seriously ill at home has made a come back because no one wanted to deal with an individual who had such a misunderstood malady. A large majority of these individuals did not have the ways and means to be able to afford any other kind of care except what could be given by the loved ones around them. This remarkable book is for those people who are faced with taking care of someone they love. These individuals become advocates for the sick person. "the term advocate sounds more daunting than it really is. Simply, an advocate is the person who looks out for the patient's best interests and sees to it that his or her needs are met."

Part one, "Caring for the Sick," provides useful information that will be of initial importance to anyone faced with caring for someone seriously ill. The 11 chapters cover: "The Hospital and the Medical Team: Who's Who and What's What," "Dealing with the Doctors," "The Everyday Angel's Cram Course in Essential Nursing Skills, 101," "Matters of the Heart," "Mustering the Troops," "The Caregiver as Consumer Activist," "Care for the Caregivers," "Paying the Bills," "Preparing for the Worst," "Journey's End," and "Aftermath." The second part, "The Everyday's Angel's Cram Course in Adult Medicine," covers 9 illness that affect a large number of people: cancer, cardiovascular disease, cerebrovascular stroke or traumatic brain injury, emphysema and chronic bronchitis, diabetes, AIDS/HIV, liver disease, kidney disease, and progressive neurological disease. Each chapter describes the disease, provides symptoms, treatment regimens, complications, what can be done, and much more, ending with recommended readings.

The three appendices are useful resources: "Recommended Resources," "Miscellaneous Resources," and "For Referrals to Home Health Care, Hospice Care, Long-Term Care, Adult Day Care, Respite Care, and Rehabilitation Facilities." This is one of the best books available on caring for the seriously ill and should be available to anyone who has the responsibility of doing the caring. It is a highly recommended book for all public, academic, and medical libraries.

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8 of 8 people found the following review helpful:
5.0 out of 5 stars The most informative and resourceful book I seen., October 12, 1999
By A Customer
As a professional in the medical field and as a lay person, I found this to be the most educational, practical and comforting book I have read on this subject. This book contains information, resources and references for every aspect of caring for the seriously ill. The layout is organized and finding topics is effortless. Everyone should have this book, preferably before they need it. This book touched my heart and my mind.
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7 of 7 people found the following review helpful:
5.0 out of 5 stars A very useful guide for patients and caregivers alike, August 30, 2003
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The overall description of this book in the Review section seems to describe the contents and features of this book quite well, so I will simply add my impressions.
I have recently begun sharing caregiver duties for a terminally ill parent and recommend this book as perhaps the best single introduction I have found. Looking at thirteen years of full-time undergraduate and post-graduate work, I found I had not a single hour of instruction in how to navigate the emotional and technically difficult art of caring for a terminally ill patient. Such caring is not given much coverage in today's world, and I have to admit I was nearly clueless as the process began. I would not hesitate to recommend this book to those who are beginning this potentially beautiful yet potentially treacherous path, either as a caregiver or a patient. The book is a tremendous "how-to" resource and elementary caregiving, and it provides a decent list resources for further information. I hope to use the book to prepare my own way as well. My only criticism is it gives little help in things like preparing eulogies or funeral etiquette, and it gives little help in managing the sibling difficulties which can arise during the process of caregiving.
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Inside This Book (learn more)
First Sentence:
Even at seventy-one years of age, Robert Angelo McFarlane was a strapping, vigorous man. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
ailing loved one, everyday angel, thrombolysis therapy, renal diet, medical proxy, respiratory therapy technician, home hemodialysis, cerebrovascular stroke, advance medical directives, care partners, notify the doctor
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New York, Social Security, Diane Young, Betty Lindstrom, Nola Miller, Lou Gehrig, United States, Mary Vitro, Louise Fradkin, Mary Ann Reeks, National Kidney Foundation, American Cancer Society, Area Agency, Walter Miller, Johnetta Romanowski, Suzanne Hardy, Alvin Novick, American Association of Retired Persons, Audree Siden, Catholic Charities, Children of Aging Parents, Christine Beebe, Debra Bulkeley, Gerri Clarke, American Heart Association
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