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The Complete Crohnie Handbook: A Comprehensive Guide for the Crohn's Disease Patient
 
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The Complete Crohnie Handbook: A Comprehensive Guide for the Crohn's Disease Patient [Paperback]

Robert R. Pilkington (Author)
4.6 out of 5 stars  See all reviews (9 customer reviews)


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Book Description

March 5, 2003
This Crohnie Handbook came into being at the request of several of my friends and family members as I have done a tremendous amount of research on Crohn's disease and they all felt that I had acquired some valuable information about the disease and how to deal with it. Through trial and error, I have learned many different ways to keep my Crohn's under control and because I understand that there is no one exact standard about Crohn's disease treatment, the main purpose of this Handbook is to share a multitude of information with you and provide you with a reference tool that you can use to help you further understand your Crohn's. I also hope to provide some thoughts on how to keep your Crohn's under control with the realization that some suggestions may work and some may not. Your success is going to depend on your individual case, symptoms, environment and condition.

I will use laymen's terms and easy to understand English but I will have to use some technical and medical terms to tie it all together. Any technical or medical term that needs clarification will be defined. Also included are some reference information, medication information, medication side effects, vitamins and supplements, nutritional information, some support organizations and some helpful websites.

Many books have been written about Crohn's disease by those who have only studied or treated it and most books are written by more than one person. But for those of us who live with it from day to day, every day of our entire lives, we know what it is like to be sick by ourselves with no end in sight. This Handbook has been written from that perspective.

Even when I have my Crohn’s somewhat under control, I too endure the long sleepless nights, the pain, agony, suffering, loneliness, public embarrassment, and the fear that those who don't have this disease won’t really understand what we are going through. It is hard to explain that we are sick when we appear to be perfectly healthy.

As I have found in my research of Crohn's disease and other chronic illnesses, most people with Crohn's don't complain too much about being sick, but the sick feeling never goes away. I have also discovered that there are many support groups with many people who suffer greatly from Crohn's and you should make every attempt to become involved with some of these groups. The only way to know more about your disease is to know more about your disease.

Hopefully, this Handbook will assist you to understand Crohn’s disease a little better and help you to cope with and overcome that never-ending sick feeling.

Good luck in your endeavors and may better health and happiness be with you.


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Editorial Reviews

Review

Thought it was wonderful. It's quite simply a straight-forward guidebook to Crohn's. -- Gideon Sofer, Director, ibdcure.org Foundation International

Well written. Very accurate information and would be helpful to anyone with Crohn's Disease or any chronic illness. -- Dr. Gerald Wolfley, Physician

About the Author

Robert R. Pilkington was diagnosed with Crohn's disease on May 26, 1990. He was 29 years old. His first recorded day of sickness was August 8, 1988. Between these dates, Robert had three major surgical procedures performed and nearly lost his life because of an incorrect diagnosis and an improperly performed surgical procedure. Robert suffered debilitating and life-long damage to his body because of one surgical mistake. Because of the misdiagnosis, RobertÂ’s colon eventually ruptured and the damage was so severe that 2/3 of the colon was removed.

Robert also suffers many other health-related problems that are a direct result of Crohn's disease. At the writing of this Handbook, Robert has been a Crohnie for over 12 years.

Since he copes with many of the same symptoms, sicknesses, problems, public embarrassments and fears that most of you do, he understands what you have to live with, everyday, with no real end in sight. He also requires the same support, guidance and understanding that each of you does. Through this Handbook he hopes to provide some of that support, guidance and understanding about day to day life and what to do if you do have a relapse.

As a result of his constant and on-going daily battle with Crohn's disease, Robert has experienced almost all of the local and systemic side effects of the disease. He has also taken most of the medications available to Crohn's patients and has experienced most of the side effects of each.

Because of his CrohnÂ’s disease, Robert's weight dropped from 298 pounds on April 10, 1990 to 164 pounds on Christmas Day of that same year. In less than 7 months he went from playing semi-professional football with the Maricopa County Sheriff's Department to being almost bed ridden. His low point came when he had become so weak that he was unable to mow his lawn and had to ask his father to do it for him.

Robert has been fortunate because through diet and exercise, he found a way to control his Crohn's and again weighs over 200 pounds. Robert exercises and lifts weights regularly and has developed a diet and supplement routine that contains high protein, complex carbohydrates, balanced fiber, essential fatty acids, supplements and amino acids; a diet that he follows every day with very little changes in his day to day routine. He developed his diet through years of trial and error and finding out what his body would and would not tolerate.

Robert was able to maintain his disease from December 1991 until October 2001 at which time he knew he was having a relapse. He was able to get to his doctor before his symptoms got too severe but even with that, he was sick for three months. As he has learned, the biggest challenge facing a Crohnie is knowing the difference between just being sick and actually having a relapse of the disease. By the way a Crohnie feels most days he knows that sometimes it's hard to tell the difference.

Robert holds a Bachelor of Science degree in Business Administration from the University of Phoenix and has earned a Certification in Procurement from UCLA. He is a member of the National Contract Management Association and has won several awards in Training, Negotiation, Management and Legal Writing & Editing.

Robert has trained the Procurement and Sales staff of several major corporations in the Phoenix area, has been a certified auditor for two Fortune 500 companies and was a certified ISO auditor for a division of one of the largest automobile manufacturers in the world.

Robert is the former Managing Director for The Automotive-Sales Training Group in Scottsdale, Arizona. The Automotive-Sales Training Group training modules that Robert personally developed specialize in training automobile Sales Professionals by promoting ethical behavior, honesty, hands on experience and classroom instruction. He currently owns Justice for Judgme


Product Details

  • Paperback: 376 pages
  • Publisher: Wolftracks Pub Co (March 5, 2003)
  • Language: English
  • ISBN-10: 0971887101
  • ISBN-13: 978-0971887107
  • Product Dimensions: 8.3 x 5.5 x 1 inches
  • Shipping Weight: 1.1 pounds
  • Average Customer Review: 4.6 out of 5 stars  See all reviews (9 customer reviews)
  • Amazon Best Sellers Rank: #1,565,265 in Books (See Top 100 in Books)

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Customer Reviews

9 Reviews
5 star:
 (7)
4 star:
 (1)
3 star:    (0)
2 star:
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Average Customer Review
4.6 out of 5 stars (9 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

19 of 20 people found the following review helpful:
5.0 out of 5 stars The best book I have read on Crohn's Disease, July 3, 2003
By A Customer
This review is from: The Complete Crohnie Handbook: A Comprehensive Guide for the Crohn's Disease Patient (Paperback)
I read this book with much apprehension because I am tired of everybody trying to make a buck off my health.

The "Complete" thing was something that I was totally afraid of. I was just simply tired of all the books that "promised" the best information about Crohn's Disease.

The best thing about this book is that it promises nothing but delivers everything.

After 7 years of dealing with a disease that just refuses to go away, it was nice to see that someone else realizes what it is like to deal with it and keep a sense of humor about it. Even with the problems of Crohn's Disease, Robert Pilkington delivers the information in language that I can understand and in situations I have actually had to experience and deal with.

The real world situations that are shown about the everyday reality of a Crohn's Disease is placed at the right time and in the right place throughout this book. I cannot express enough how this book made me take a look at my everyday life and how I, and I alone can control this disease.

It was nice to see that I am not the only one having to deal with the fact the my family and friends have no clue about what I live with.

I would recommend this book to every one that has Crohn's Disease and their family and friends.

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14 of 16 people found the following review helpful:
5.0 out of 5 stars Very Complete and Infomative, June 30, 2003
By 
Jules Zartkowsky (Chicago, Illinois) - See all my reviews
This review is from: The Complete Crohnie Handbook: A Comprehensive Guide for the Crohn's Disease Patient (Paperback)
This is one of the most complete books I have ever read on Crohn's Disease. The book consistently reduced the medical mumbo jumbo that I have always been told and made it make sense.

Well written with the non-medically educated patient in mind.

Excellent source for medical and nutritional information.

I also enjoyed the up-beat attitude that the author has regarding how he copes with such a terrible disease.

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14 of 17 people found the following review helpful:
5.0 out of 5 stars Read this Book!, September 4, 2004
This review is from: The Complete Crohnie Handbook: A Comprehensive Guide for the Crohn's Disease Patient (Paperback)
This book has everything!
I learned more about my digestive system, diet, vitamins, medications and how this disease affects me than in any other book I have read.
I have purchased several other book about crohn's disease from Amazon but this book was by far the best.
If you are looking for a book that will give you what you need to know about crohn's disease, this book will do just that.
This is the best book I have read on crohn's disease, period, paragraph.
For not being a doctor, Robert R. Pilkington has as much knowledge and information as any doctor that I have seen. His book will provide you with the information you need to get your crohn's disease under control and keep it under control
EXCELLENT BOOK AND INFORMATION!!!!!!!!!!!!!!
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