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Conquer Chiari: A Patient's Guide To The Chiari Malformation [Paperback]

Rick Labuda (Author)
4.9 out of 5 stars  See all reviews (16 customer reviews)

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Book Description

March 7, 2008 1434847004 978-1434847003 1
Facing Chiari can be an overwhelming experience. Most people have never heard of Chiari, so when they or a loved one are diagnosed, they are thrown into a confusing world of tests and medical jargon without knowing what to do or expect. In the midst of this whirlwind, patients are faced with having to make important decisions with profound consequences. Based on hundreds of published medical studies combined with the author's personal experience, A Patient's Guide takes readers through the different stages of dealing with Chiari, and provides the information and tools necessary for people to take charge of their health care and make informed, intelligent decisions.

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Conquer Chiari: A Patient's Guide To The Chiari Malformation + The Chiari Book: A Guide for Patients, Families, and Health Care Providers + Chiari Malformation: Causes, Tests, and Treatments
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Editorial Reviews

About the Author

Rick Labuda is the Founder and Executive Director of Conquer Chiari. As a Chiari patient himself, he knows firsthand the pain and frustration of dealing with this disease. As the Editor of Chiari & Syringomyelia News he has personally authored over 150 articles on Chiari and related topics, has communicated with more than 1,000 Chiari patients, and has interviewed many of the top neurosurgeons in the world.

Product Details

  • Paperback: 320 pages
  • Publisher: CreateSpace; 1 edition (March 7, 2008)
  • Language: English
  • ISBN-10: 1434847004
  • ISBN-13: 978-1434847003
  • Product Dimensions: 9.8 x 6.9 x 0.9 inches
  • Shipping Weight: 1.5 pounds (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (16 customer reviews)
  • Amazon Best Sellers Rank: #383,728 in Books (See Top 100 in Books)

 

Customer Reviews

16 Reviews
5 star:
 (15)
4 star:
 (1)
3 star:    (0)
2 star:    (0)
1 star:    (0)
 
 
 
 
 
Average Customer Review
4.9 out of 5 stars (16 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

12 of 12 people found the following review helpful:
5.0 out of 5 stars A valuable tool for people with Chiari!!, March 16, 2008
This review is from: Conquer Chiari: A Patient's Guide To The Chiari Malformation (Paperback)
If you've been diagnosed with Chiari Malformation, this book will assist you in every way imaginable. Not only does the author give you an extensive background on what it is, but he walks you through from diagnosis to hopeful outcomes. The story at the beginning of Chapter 8 lends some hope, whether you are just diagnosed or have been dealing with Chiari for years. Unlike many doctor's who write about health conditions, the author is a Chiari sufferer as well and writes this book with imput from his own experience. As any Chiari or Syringomyelia sufferer well knows, sometimes its seems no one can relate to the pain and frustration you face everyday. Well this author can! Not only has he suffered from the effects of Chiari and Syringomyelia, but he has devoted much of his time in educating others and helping them to make more informed decisions. Definitely a must read!! I read that there may also be a book in the future about Syringomyelia (I have this disorder as well) as I've learned that they sometimes go hand in hand. I plan on passing this book around to members of my family, so that they may better understand what I am living with, and travel along side me in my journey with knowledge, not simply as observers. Thank You Mr. Labuda for this valuable weapon in MY battle with Chiari.
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6 of 6 people found the following review helpful:
5.0 out of 5 stars Best Chiari Book that I have read so far, April 1, 2008
This review is from: Conquer Chiari: A Patient's Guide To The Chiari Malformation (Paperback)
I was diagnosed and had decompression surgery in 2003. Five years later I still struggle with headaches. I read anything that I can get my hands on that has to do with Chiari. This by far is the best book written on Chiari that I have read. I am going to make everyone in my family read it so that they have a better understanding of what I go through. Rick did a really wonderful job writing things so that everyone can understand.
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4 of 4 people found the following review helpful:
5.0 out of 5 stars excellent book, June 19, 2008
This review is from: Conquer Chiari: A Patient's Guide To The Chiari Malformation (Paperback)
This is an excellent book packed full of info. Wish I had been able to read it when I was first diagnosed. Gives technical info and info from the patient's perspective. Because this is a large book, it is a bit much to expect family and friends to read it, so I recommend you also get Dr. Oro's book The Chiari Book: A Guide for Patients, Families, and Health Care Providers.
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Inside This Book (learn more)
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
wide syrinx, occult tethered cord, syringomyelia patients, scoliosis group, oropharyngeal problems, posterior fossa region, decompression surgery, bony decompression, tight filum, dural patch, cerebellar tonsils, posterior fossa decompression, tonsillar herniation, intracranial compliance, incidental diagnosis, syrinx formation, dural grafts, spinal area, pain group, basilar invagination
Key Phrases - Capitalized Phrases (CAPs): (learn more)
Conquer Chiari, Patient's Guide, Personal Experience, Practical Tip, Conquering Chiari, The Basics, National Institutes of Health, Syringomyelia News, Journal of Neurosurgery, Multiple Sclerosis, Patient Outcomes, Patient Experiences, Magnetic Resonance Imaging, Quick Overview, Patient Education Foundation, United States, Did You Know, Ray D'Alonzo, Hans Chiari, The Americans, Severe Case, Case Reports
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Front Cover | Table of Contents | First Pages | Back Cover | Surprise Me!
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