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5 of 5 people found the following review helpful:
5.0 out of 5 stars
Much Needed Affirmation in Critical Treatment Choice!, May 8, 2010
This review is from: Beat Crohn's! Getting to Remission with Enteral Nutrition (Perfect Paperback)
My 7 year old has primarily small bowel Crohn's Disease and we were trying to make the very painful choice of a biologic medication or enteral nutrition for his next treatment. He was steroid dependant and that kept him from growing. He was also taking an immunosuppressant that was not working to keep him in remission.
I had searched the internet for medical publications, and even met with a specialist who is considered one of the top rated in the US for pediatric Inflammatory Bowel Disease for a second opinion on treatment. The enteral nutrition was recommended but not exactly embraced.
When I quite literally stumbled upon this book, it was much needed affirmation and refreshing validation that we were making the right choice for my son. It blessed the treatment by compiling years of published research and international data in an easy to read, layperson friendly format.
The question becomes, why would you choose a 'big-gun' treatment or surgery before trying a much safer method, that allows children to grow and mature normally?
My son began this treatment on April 8, 2010 and is now in remission from Crohn's Disease. I brought this book to the hospital with us to share with medical students and residents since no one had any experience with this treatment. Ben is now gaining weight and off all medications (after only 4 weeks). The treatment is easy and well tolerated by my son. Every parent with a child with Crohn's Disease should be given this book at the time of diagnosis. Some day, this treatment will be the first line choice for Pediatric Crohn's Disease in the US as it is in Europe, Japan and Canada.
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4 of 4 people found the following review helpful:
4.0 out of 5 stars
Good Information that May Not Work for Everyone, July 21, 2009
This review is from: Beat Crohn's! Getting to Remission with Enteral Nutrition (Perfect Paperback)
I've lived with Crohn's for 10 years and I am glad to have this information. I think that if someone is in a full blown flareup and isn't responding to medication, it might be worth it to try this. It would be extremely difficult, for sure. After I had surgery (I had one inch of intestine removed, not a lot compared to many of the people discussed in this book), I was put on complete paraenteral feeding (through an IV) for six days, and I wasn't hungry at all, but this isn't quite the same.
I honestly don't know if I could do it. Oppenheimer does discuss the pros and cons of enteral nutrition, and I think, at least in my case, it's not really a viable option. But I have responded to medication. If I hadn't, I can say for sure that two or three weeks of drinking your nutrients is a MUCH better option than surgery. Your body is not the same afterwards, trust someone who's been there.
In any event, it's good to educate yourself as much as possible, and Oppenhemier has done her research well. Check it out, it may not be the best option for you, but at least it's a viable one.
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2 of 2 people found the following review helpful:
5.0 out of 5 stars
Every Patient with Colitis or Crohn's MUST READ THIS BOOK, November 4, 2009
This review is from: Beat Crohn's! Getting to Remission with Enteral Nutrition (Perfect Paperback)
In my practice as a clinical nutritionist I use enteral nutrition(liquid supplementation or liquid diet) with great success for patients with Crohn's and ulcerative colitis.Unfortunately, very few patients know about the benefits of enteral nutrition and how to use this simple and very effective diet to promote colon healing.
The author, Margaret A. Oppenheimer explains beautifully why enteral nutrition is "a time-tested treatment" for children with Crohn's disease; how enteral nutrition can help kids to get off steroids and achieve complete gut healing without toxic drugs. Readers can even learn how to make their own enteral formula at home with liquid foods (other patients stories are used as an example).
Finally, I can recommend to my patients an easy to understand, well researched book on the benefits of enteral nutrition.
Galina Kotlyar, MS RD -Digestive Health Expert-
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