More than just a history, this book provides a unique blend of science, clinical concerns, and warm personal accounts for the benefit of all who have been touched by Cystic Fibrosis. It tells the compelling story of the efforts of investigators, clinicians, and members of the CF community, documenting the rapid progress of research and treatment and dramatic improvement in survival rates since the first description of the disease in 1938. The editor has created a highly readable and well-organized tale in 32 stand-alone chapters, drawing on the heartfelt words and vivid narratives of patients, physicians, researchers, and volunteer leaders. The human dimensions of the disease emerge through frank discussions of political and social issues linked to vital discoveries, moments of triumph, uncertainties and disappointments.
Book Description
Editorial Reviews
Review
Fascinating book ... important contribution. Highly recommend[ed] ... to ... patients and their families... All will learn, and many will find inspiration. -- Bruce C. Marshall, M.D., Cystic Fibrosis Foundation, Respiratory Care, December 2002 Vol 47 NO 12
About the Author
Contributors: Phyllis S. and Lawson S. Anderson
Past Presidents, Cleveland Chapter, Cystic Fibrosis Foundation
Past Presidents, Cleveland Chapter, Cystic Fibrosis Foundation
Bruce L. Baskin
Member, Board of Trustees, National Cystic Fibrosis Foundation
Madeline C. and Henry I. Bernbaum
Past President, Cleveland and Rainbow Chapters, Cystic Fibrosis Foundation; Past Vice President, Cystic Fibrosis Foundation
Richard C. Boucher, M.D.
William R. Kenan Professor of Medicine, University of North Carolina at Chapel Hill
Amoz I. Chernoff, M.D.
Past Medical Director, Cystic Fibrosis Foundation; Past Director, Division of Blood Disease, National Heart, Lung, and Blood Institute, National Institutes of Health
Lourdes R. Laraya-Cuasay, M.D.
Professor of Pediatrics, UMDNJ-Robert Wood Johnson Medical School
Pamela B. Davis, M.D., Ph.D.
Professor of Pediatrics, Medicine, Physiology and Biophysics, and Microbiology and Molecular Biology, Case Western Reserve University School of Medicine
Paul A. di Sant’Agnese, M.D.
Past Chief, Pediatric Metabolism Branch, National Institute for Arthritis and Metabolic Diseases, National Institutes of Health; Clinical Professor of Pediatrics, Retired, Georgetown University
Jack M. Docter, M.D.
Clinical Professor of Pediatrics, Emeritus, University of Washington School of Medicine
Carl F. Doershuk, M.D.
Professor of Pediatrics, Emeritus, Case Western Reserve University School of Medicine; Past Vice President, Cystic Fibrosis Foundation
Mitchell L. Drumm, Ph.D.
Associate Professor of Pediatrics and Genetics, Case Western Reserve University School of Medicine
Philip M. Farrell, M.D., Ph.D.
Dean and Professor of Pediatrics, Alfred Dorrance Daniels Professor on Diseases of Children, University of Wisconsin Medical School; Vice Chancellor for Medical Affairs, University of Wisconsin
Lewis E. Gibson, M.D.
Professor of Pediatrics, Emeritus, Stritch School of Medicine, Loyola University, Chicago
C. Terrence Gillespie, M.D.
Associate Professor of Pediatrics, Retired, Dalhousie University Faculty of Medicine
Evelyn and Milton Graub, M.D.
A Founder and Past President, Cystic Fibrosis Foundation; Professor of Pediatrics, Emeritus, Hahnemann University School of Medicine
Nancy N. Huang, M.D.
Professor of Pediatrics, Emeritus, Temple University and Health Sciences Center, St. Christopher’s Hospital for Children
Michael R. Knowles, M.D.
Professor of Medicine, University of North Carolina at Chapel Hill
Charles C. Lobeck, M.D.
Professor of Pediatrics and Preventive Medicine, Emeritus, University of Wisconsin Medical School; Past Vice President, Cystic Fibrosis Foundation
Robert D. McCreery, Sr.
Past President, Cystic Fibrosis Foundation; Past President, International Cystic Fibrosis [Mucoviscidosis] Association
David M. Orenstein, M.D.
Antonio J. and Janet Palumbo Professor of Cystic Fibrosis, Children’s Hospital of Pittsburgh; Professor of Pediatrics, School of Medicine; Professor of Health, Physical Education and Recreation, School of Education, University of Pittsburgh
Barbara L. Palys
Chairperson, International Association of Cystic Fibrosis Adults; Editor, IACFA Newsletter
Paul M. Quinton, Ph.D.
Professor of Biomedical Sciences, University of California, Riverside; Nancy Olmsted Chair in Pediatric Pulmonary Medicine, University of California at San Diego
Robert C. Stern, M.D.
Professor of Pediatrics, Case Western Reserve University School of Medicine
Doris F. Tulcin
Past President, Cystic Fibrosis Foundation
William W. Waring, M.D.
Jane B. Aron Professor of Pediatrics, Emeritus, Tulane University School of Medicine
Warren J. Warwick, M.D.
Professor of Pediatrics and Medical Physics, Annilisa Marzotto Professor for Cystic Fibrosis Patient Care, University of Minnesota School of Medicine
Robert E. Wood, M.D., Ph.D.
Professor of Pediatrics and Otolaryngology, University of Cincinnati School of Medicine
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5.0 out of 5 stars
Personal Review -- A CF Patient's Perspective,
By Zay Bagwell (Cleveland, OH) - See all my reviews
This review is from: Cystic Fibrosis in the 20th Century: People, Events, and Progress (Hardcover)
"Cystic Fibrosis in the 20th Century" gives its reader a thoughtful and comprehensive look, from many perspectives, inside one of the most challenging genetic disorders, both to live with...and to treat. I have had the opportunity to read many, many books. And I have to admit that this very well-written book is a definite "must read" and is certainly a worthwhile addition, not only to those in the medical field, but to "anyone's" personal library.
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