Cystic fibrosis is one of the most common genetic diseases in Caucasian populations. One in 2,500 babies are born with the disease, usually to parents who have no idea that they each carry one defective CF gene. CF affects the respiratory and digestive systems and, despite major improvements in treatment over the last 20 years, the disease is usually lethal before the third decade of life. Treatment is lifelong and time-consuming, necessitating eating enzyme capsules with every meal to help digest food, daily physiotherapy to keep the lungs clear of mucus, and frequent courses of antibiotics to control lung infections. Written for those suffering from CF and their families, this book explores all aspects of the disease from basic clinical information on what is going wrong in the organs affected by CF to the conventional treatments for CF lung and digestive disease. Since the second edition, which was published just after the CF gene was identified, major advances have occurred in our understanding of the genetic basis of CF. The third edition includes this new information and also has a new section on the potential for gene therapy being used in the future for the long-term treatment of this disease.
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Book Description
Editorial Reviews
Review
From reviews of the previous edition:"The contents fluently and comprehensively cover all aspects of the disease and its treatment." Physiotherapy ... provide(s) a comprehensive introduction ... The text, which includes personal accounts of children and parents, is easy to read. Nursing Times
About the Author
Ann Harris is University Lecturer in Paediatrics at Oxford University. Maurice Super is Consultant Paediatric Geneticist at the Royal Manchester Paediatrics Genetics Unit.
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1.0 out of 5 stars
Not impressed.,
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This review is from: Cystic Fibrosis (Facts) (Paperback)
My daughter has CF. I was looking for a good refresher on the basics to keep up with everything. This book is written partially in Euorpean Slang. It is slightly difficult to understand. Overall, not impressed with the purchase.
2 of 8 people found the following review helpful:
5.0 out of 5 stars
very informative,
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This review is from: Cystic Fibrosis: The Facts (Paperback)
it helped me write a paper for cystic fibrosis for school
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Inside This Book
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First Sentence:
Cystic fibrosis is an inherited disease that has its main effects on the digestive system and the lungs. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
meconium ileus equivalent, sweat test, coding units, respiratory tree, enzyme supplements Key Phrases - Capitalized Phrases (CAPs): (learn more)
North America, John Panchaud, United Kingdom New!
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Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
Cystic fibrosis is an inherited disease that has its main effects on the digestive system and the lungs. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
meconium ileus equivalent, sweat test, coding units, respiratory tree, enzyme supplements Key Phrases - Capitalized Phrases (CAPs): (learn more)
North America, John Panchaud, United Kingdom New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
Citations (learn more)
This book cites 7
books:
See all 7 books this book cites
4
books
cite this book:
- Cystic Fibrosis (Your Personal Health Series) on 5 pages
- Buenos Aires (Cities of the World (Childrens Press Paperback)) by Deborah Kent in Back Matter
- Cell Biology (Modern Views in Biology) by B. King in Back Matter
- Cystic Fibrosis by Margaret E. Hodson on page 107
- Costa Rica (Enchantment of the World, Second) by Marion Morrison in Back Matter
See all 7 books this book cites
- Special Kids Problem Solver: Ready-to-Use Interventions for Helping All Students with Academic, Behavioral & Physical Problems by Kenneth Shore Psy.D. on page 292
- Special Kids Problem Solver: Ready-to-Use Interventions for Helping All Students with Academic, Behavioral, and Physical Problems by Kenneth Shore Psy.D. on page 292
- The Student With a Genetic Disorder: Educational Implications for Special Education Teachers and for Physical Therapists, Occupational Therapists, and Speech Pathologists by Diane M. Plumridge on page 125
- The Breathing Disorders Sourcebook (Sourcebooks) by Francis Adams in Back Matter
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