Customer Reviews

Cystic Fibrosis: A Guide for Patient and Family

5 star:		(11)
4 star:		(1)
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This book is an essential read for: Anyone who has a child with CF, anyone who has a friend with CF, anyone who has a sibling with CF, anyone who has a spouse with CF, anyone who has a parent with CF, anyone who works with people with CF. In short, if you have any contact at all with someone with CF, this book can help educate you. I have had CF for 25 yrs now, and I learned more than a few things.

My daughter was just diagnosed with CF. The pulmonary specialist gave me a copy of this book and I couldn't put it down. It is certainly a valuable reference tool in how to best combat this condition. We only hope a third edition will be put into print soon so as to update all of us on the constantly changing advances made in the field. Buy this book and keep it accessible, you will need it!

Since my daughter was diagnosed 11 years ago with CF I have searched for any bit of material of this disease I could find. What I did find was bits and pieces that did not cover all the aspects of CF. This book leaves nothing out. I have shared it with my whole family.

This book is a must-read for all parents that have children who are diagnosed with Cystic Fibrosis. It answers many questions before you even know how to ask them! It explains what is going on in the body in terms that anyone can understand. Reading this book helped me to understand what the doctors were telling me at one of our appointments. I highly recommend it.

i was given this book as a 'free' gift from a drug company that makes
cystic fibrosis medication. my son diagnosed was diagnosed at age 5 when he had his pre-k physical. yes...it was very useful after my husband and myself could not find any detailed UPTODATE material on cystic fibrosis...thank goodness more helpful information and websites on cf are out now for newly diagnosed patients and their parents...new parents stay away from grandma's old medical guide on cf you will only find very brief and very grim outdated material...ask your medical team for info or search the web for info on cf

Im a teenager and was diagnosed with CF when I was born in 1989.
It was recently that I wanted to do some more reading on my disease. I looked through some books and was shocked by what I was reading. As many of you know, the out-of-date books on CF can have some very frightening information, like death and more infections, and etc. It was I discovered this book that I was so much more relaxed about my condition. This book is up-to-date and tells the real facts about this disease. After reading this, my disease doesn't scare me anymore.
If you are a teen, like me, I suggest you read thid.
If you know anybody with CF, you should read this book or have them read this. Don't let them read those early books on CF with the grim facts...have them read this with the true and helpful facts.

I use this book as a reference guide for cystic fibrosis. My 5 year old daughter was diagnosed in 1993. I use it to answer many of my questions before calling the doctor.

My daughter was diagnosed in 1997 at 1 month of age. Fortunately for our family we had the best specialist to help diagnose and treat her condition almost from day 1 of her life. And her doctor is none other than Dr. Orenstein himself (or just Dr. O to us). I can speak from personal knowledge that he is without a doubt the most informative doctor I have ever been around. He truly cares about the children in his care and he takes a proactive role in their health and well-being. His book is considered the CF bible by those in the know in the Pediatric Pulmonary field. As you read this picture a man with a bow tie and sandals explaining this to you. It is very easy to read and understand which when it comes to this disease is very important. I am happy to say that my daughter is almost 12 and thanks to Dr. O and his staff is in excellent health. If you know someone with this disease get them this book or better yet get it for yourself as well. Knowledge and understanding of the disease can really help.

I really enjoyed this book. Anyone who needs to learn anything about Cystic Fibrosis should definitely buy this. It covers everything! I read the whole thing in 4 days and I understand so much more now.

This is a great book. My daughter has CF and this is the book the Doctors gave us. My daughter is treated at one of the top CF centers in the world, so if they use this book only that said a lot to me. I read another before this one and this is by far the best around. Dr O is talking about an update, but is really busy with research. they hope to do another soon. either way it still has lots of valuable info in it. priceless.