Top critical review
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I bought this book because I have Cerebral Palsy.
on March 5, 2013
I must commend the author for her efforts both emotionally and physically for putting this tribute to her sister in writing. That had to take great courage.
However I could not finish reading this book. This review is coming from someone whow KNOWS what Cerebral Palsy is like. I type this with 2 fingers.
My heart goes out to Annie's family, but there is no way I could continue reading this. It seemed to me it was more about death than life. Far too much, too hard for me to read, beyond my comprehension, I am at a complete loss for words. What I read will litterally haunt me for the rest of my life!
I know beyond a shadow a doubt that Annie IS dancing in heaven.
I know I will be Dancing in heaven someday too. Perhaps we shall meet up there.
I found this entire book EXTREMELY disturbing. It's probably going to give me nigtmares, and I am not affected this way by anything!
I would be mortified that after my demise, someone, no matter how well meaning, would publish intimate details of my care.
I was fortunate to have parents who were extremly devoted to my physical therapy and my education. Because of the physical therapy mostly done by my mother alone, I was able to learn to walk by age four, I learned to ride a trike, then a bike, then I went after my Mortorcycle endorsement, and was granted that.
I went on the get married and have two children and 8 grand children.
None of this would have been possible with out my parents and the Lord Jesus Christ.
I am now 59 years old. I have given up my Motorcycle license this year for the first time since I aquired it. I can no longer walk with out the aid of a walker full time. I have had to watch many abilities vanish. As I am sure more will also leave me in the future. This is a certainty.
I am thankful for my awesome husband, who cares for me, and is faithful to my needs. He is one in a million!
I would stress to anyone who has a child with any disabilty to put physical therapy, and education at the top of the list of daily care. We know more and preceive more than you could possibly imagine. Do not tell them ever, they can not do something, everythig I was told I could not do, I set out to prove them wrong. My Family let me go, they let me spread my wings and fly, and I did just that. It had to take great courage on my parents part to let me go, knowing I could get hurt.
I did get hurt. I got hit by a car while riding my bike. As a result I am deaf in one ear. The poor guy that hit me thought he made me walk the way I do. I was protected by gaurdian angels. The bike was demolished, and I was able to get up and walk home! Still, my parents let me go, and even bought me my first little Honda mini bike.
If this book were written about a "normal" person, would you read it? I could not read the intimate details of Annie's care, it was embarassing. I was embarassed for Annie! If she could read, what would she have thought? Would she have wanted these intimate details published to the whole world? Annie most likely preceived far more than you believe she could. This book should have been written for friends and family, or some of the intimate details should have been left out. If it were you, would you want the world to know? I wouldn't!
The familiy's thoughts and feelings are legitimate, and could have been shared without the details. I thank God that Annie had such a devoted, loving family. That was evident in the pages I did read. She was fortunate to be so loved.
I want the world, my world, which consists of my circle of family and friends, to remember me by my smile, my devotion to them, and the things I did for others in little ways I could do.
Kudos to Annie for her beatiful smile. Her pictures made me smile.
Let's think of Annie as a normal person, she most certainly was. Inside. Trapped in a body that would not do what her mind wanted it to do. She desrved the respect anyone deserves, privacy. Inside her body was a person with thoughts and feelings like anyone else, she was unable to express them in anyway. She was special. Personal things should have been kept personal.
I enjoyed reading the fun parts, taking Annie camping and to the beach, some of my favorite things. My parents did the same for me. Annie and I share a love of Neil Diamond Music. I was enlightened reading what it was like being a sibling of a differently abled sister. I do not know what my twin brother thinks of having a differently abled sister. Both my parents worked full time jobs and saw to my care and needs, themselves. As well as the care of my brother. We were born weighing only two pounds 10 ounces, and 2 pounds, 5 ounces. I was born 2 and a half hours after my brother, probably the cause of my Cerebral Palsy. We were both adopted. Chosen. We both had medical issues.
The two star rating stems from my feelings that Annie deserved privacy, intimte details of her care should have remained private. I speak for those who can't speak. There are many, and they will tell you the same thing. Take it from one who lives with Cerebral Palsy. I do not mean to be critical. But feel I need to speak out for others who are differently abled and I know would not want the things that were published in this book published about them.
I can be very out spoken when it comes to the rights of the differently abled!
Kudos again, to Annie for her smile. Annie was so fortunate to not know what death is, she passed from one loving life into love beyond all comprehension. A love that permeates our very being.