A wife's diary of steadfast love, lighthearted hope, and abiding faith through the duration of her husband's debilitating disease. Regina prays this book will inspire others stricken with neuromuscular disorders.
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New Book Gives Hope to Victims of Guillain-Barré Syndrome LONGWOOD, FL—What could cripple the central nervous system of a healthy man in just two short days? One day Professor Roland Roth was lecturing to mammalogy lab students at the University of Delaware and the next he couldn’t even tie his own shoelaces—the victim of Guillain-Barré Syndrome, a rare disorder that strikes suddenly, without respect to age or race. The story of how Roth and his wife, Regina, came to grips with this life-altering illness fills the pages of Regina Roth’s diary, now available in book format. Regina Roth believes that through increased awareness of GBS, future victims might be more quickly diagnosed, enhancing their chances for a better recovery. That inspired mission is at the root of The Darkness Is Not Dark: Overcoming Guillain-Barré Syndrome (August, $9.99, 1-59467-109-5). Meticulously journaling her husband’s ups and downs from onset to recovery, Regina opens her private reflections in a story that will build your faith and make you alternate between tears and laughter.
Few people have heard of Guillain-Barré Syndrome (GBS) or known anyone who has been stricken by it. Affecting 8 out of every 100,000 persons—including Andy Griffith and Joseph Heller, author of Catch-22—the disorder can easily be misdiagnosed as various other auto-immune maladies with symptoms of numbness and tingling. GBS, which usually follows an infection, occurs after the antibodies mistake nerve tissue for invading proteins. In essence, the body destroys its own control network. The illness debilitates from mild to severe degrees. For Roland this meant being unable to feed himself, having his eyes taped shut when resting, and hallucinating. After nearly six years he now only suffers mild limitations with his fingers and lower legs.
Regina Roth, an Arkansas native, is a reserved, private, ordinary person who believes strongly that her story might help at least one person. The Darkness Is Not Dark documents the day-to-day events in living through her husband's terrible illness and developing a faith in God that she previously only talked about, but never deeply lived. Through their trials, she and Roland learned how vitally important the community of family and friends is. She recognized the need to live every day with an attitude of gratitude. Sharing her raw feelings of fear, anger, and despair, as well as joy and thanksgiving, the author hopes this book will inspire others stricken with neuromuscular disorders. Regina also hopes they will accept, beyond a doubt, that God loves them completely and will never desert them. Regina and Roland Roth live in Newark, Delaware.
Xulon Press is the world’s largest Christian publisher, with more than 2,500 titles published to date. Retailers may order the book through Ingram Book Company and/or Spring Arbor Book Distributors. # # #
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5 of 5 people found the following review helpful:
5.0 out of 5 stars
Inspiration and Comfort In Times of Trouble,
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This review is from: The Darkness Is Not Dark: Overcoming Guillain-Barre Syndrome (Paperback)
This book is full of humor and heart! In a time of serious illness, when the outcome is unknown, we all tread new ground. This book actually maps that ground in the form of a personal diary. The painful feelings that arise--fear and anguish, helplessness and anger--are here, but along with them are wonderful humor and humility, faith and gratitude. I was drawn into the fast pace of this true story immediately. By the time I had finished I decided to buy it for anyone I know who has to deal with a devastating illness and needs inspiration!
3 of 3 people found the following review helpful:
5.0 out of 5 stars
The Darkness is not Dark -- an inspirational read,
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This review is from: The Darkness Is Not Dark: Overcoming Guillain-Barre Syndrome (Paperback)
The Darkness is not Dark is a powerful, personal account of the physical, spiritual, and emotional challenges faced by Dr. Roland Roth and has family as they struggled together though his sudden affliction with Guillian-Barré Syndrome. This is a story of faith, courage, patience, and hope. The candid, day-by-day account in this diary takes the reader though the entire progression of GBS, through the terrifying periods of uncertainty and fear in the hospital to moments filled with hope and touched with humor. As the reader, you witness the remarkable and victorious struggle of Roland to overcome GBS, and you experience the perspective of his wife and family who had to watch helplessly the deterioration of their loved one. For those facing GBS and their families, this book will be a comforting companion which will provide you with insight into what to expect and offer hope and encouragement to get though the difficult times. For everyone, this inspirational book is a testament to the love and devotion between a wife and her husband, the comfort and courage found through prayer and faith in God, and the strength that unites friends and family members to help each other through times of need.
2 of 2 people found the following review helpful:
5.0 out of 5 stars
The Darkness Is Not Dark,
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This review is from: The Darkness Is Not Dark: Overcoming Guillain-Barre Syndrome (Paperback)
Suddenly thrust into the unforeseen grip of Guillian-Barre Syndrome (GBS), Regina Roth candidly writes about her husband's illness.Their faith in Christ shines through the pages of the book lighting the way as they travel through a valley of darkness. The author's words are spiked with love for her husband and gratitude for the creative kindnesses of others. For the professional, patient, family or other caregiver, this book provides a case history of one man's personal encounter with GBS.
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