An Eight Step Protocol - Developed by the author which enabled her to fully recover from CFS - When I was three months pregnant with my second child, I caught a flu virus that changed my life. For the next four years I lived in the clutches of Chronic Fatigue Syndrome. When I realized that most of the medical profession considered my illness to be "in my head", I felt so isolated, struggling to understand what was wrong with me knowing that it was a real physical illness. CFS shut down my life as I knew it and forced me to become a recluse spending most of my time in bed between short lived efforts to have a "normal" life. But slowly, through much trial and error, I began to understand the patterns and the cruelty of CFS. In the end, I defeated Chronic Fatigue Syndrome and now live a full and healthy life - totally free of CFS. This book shares in detail the eight step protocol that I developed and followed as I slowly and steadily regained my health. It s written in a clear, concise format, understanding the struggle that CFS sufferers have with memory and concentration. By consistently following these steps, I hope that you too can defeat Chronic Fatigue Syndrome. You don t have to live with it! My motivation for writing this book is to bring a new voice to the Chronic Fatigue dialogue - contrary to the message of a permanently compromised lifestyle which is prevalent in the medical and patient communities, there are many former CFS patients who are fully recovered. I'm one of them! My message to patients, medical practitioners and care givers is that despite the unknowns of CFS, you CAN manage those aspects of CFS that you ARE in control of. My protocol is a proactive, self-management approach implemented 24-7. Decide to defeat Chronic Fatigue Syndrome!
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About the Author
Martha E. Kilcoyne, M.P.H., has worked professionally in the healthcare software industry as a writer and manager of technical support. Since recovering from Chronic Fatigue Syndrome, she's climbed Mt. Kilimanjaro in Tanzania, Africa - see photo - and been a full-time mom and writer. She lives in Massachusetts with her husband, John, their two children, Greg and Carolyn, and two cats. To contact the author: Martha@defeatCFS.net
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In 1993, my life changed forever when I became ill with Chronic Fatigue Syndrome. I was 38, holding down a full-time stressful job and three months pregnant with my second child. Not understanding what I was up against, I spent a year and a half making all the classic CFS mistakes, until I finally smartened up and got serious about defeating CFS. With a lot of hard work and the support of family and friends, I was able to fully recover. It took an additional two plus years to get back to normal. My book is one way for me to show my gratitude for my return to full health by sharing what I learned through a lot of trial and error. I'm not naive enough to think that everyone can get fully well but I'm certain that many can just as I have. My husband and I were thrilled to celebrate my recovery by summitting Mt Kilimanjaro in Tanzania in the Summer of 2000. I hope that my protocol can get you on the right track to recovery and you'll be able to climb your personal mountain.
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43 of 46 people found the following review helpful:
5.0 out of 5 stars
Incredibly practical and wise.,
This review is from: Defeat Chronic Fatigue Syndrome: You Don't Have to Live with It -- An Eight Step Protocol (Paperback)
This crisp, clear book gives excellent practical approaches to living with, and hopefully recovering from, our weird disease. I wish it was there when I first got sick. First, I would have known better that I was not alone, or nuts. And I would have had really good strategies to deal. If this woman could climb a mountain, maybe I'll be swimming a mile a day again, as I used to do. She tells you not only what worked for her, but what didn't. I could have skipped a few bad turns myself. I agree with her that getting sleep is critical and I used her strategy to do that. She doesn't sugar coat her experiences which I feel is helpful. So when she describes her recovery, that is just the best. I highly recommend this book for helpful and hopeful information.
29 of 30 people found the following review helpful:
3.0 out of 5 stars
Best for those newly diagnosed and able to rest,
By Kate Whittaker "Kate" (Michigan) - See all my reviews
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This review is from: Defeat Chronic Fatigue Syndrome: You Don't Have to Live with It -- An Eight Step Protocol (Paperback)
This book is excellent for helping a person with CFS feel less alone with this confounding disease; Kilcoyne definitely "gets it". The chapter about finding "your own version of CFS" is right on. However, she really did have all the makings of success: a loving advocate in her (employeed) husband so she was able to Be A Patient and a good support network including an open-minded doctor who worked with her. In reality, many of us are financially unable to drop everything and attend to our health in the early days of CFS when healing is optimal, and are frustratingly unable to find a doctor who will work with us rather than write us off. Still, her idea of keeping a Daily Record (and what factors to include ) is a great one which I believe may help me even after 14 years. Bottom line: a bit naive but not without merit.
25 of 26 people found the following review helpful:
4.0 out of 5 stars
A clear 8-step protocol.,
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This review is from: Defeat Chronic Fatigue Syndrome: You Don't Have to Live with It -- An Eight Step Protocol (Paperback)
After 8 years of 'doctor-shopping' and trying way too many things that didn't work, I was a little hesitant to buy yet another book. But I'm not sorry I added it to my next Amazon order!
I recognized an awful lot in the author's story. Which in general is to be expected, but to me the specifics really stood out (could have been my medical record, minus the pregnancy.) The book is the author's story, mixed in with an 8 step protocol (and a good explanation of why to follow it) with which she made a full recovery. Something to really look forward to! This are the steps, obviously explained in detail in the book: 1. Understand your version of CFS. -- Keep a daily short log of activities/rest periods, sleep, symptoms, meds 2. Find a doctor who will work with you. 3. Break the cycle of fatigue -- Strict rule: Sleep at least 10 hours a night! And apparently after a few months of keeping a log you will notice a pattern, and know what is `too much' - that way you can avoid the `major crash after'. 4. Build a support network 5. Be sick! Be a patient! -- aka: ignore what others think of you and don't feel guilty for taking care of yourself. 6. Fuel your wellness -- General health info, with the addition of vitamin/supplement recommendations 7. Maintain an optimal blood pressure. -- Mine, like the authors, turned out to be constantly low (105/65) -> fixable! 8. Manage your stages of recovery. I wish there was one extra part explaining a little more about 'finding the pattern' for step 3. (Just an example of hers would be good). I guess I'll figure it out in a few months, or let someone more awake look at it. I've been following the steps for only a week now, but I hope to report results in a few months (will be in the comments). Four stars for now, for a clear and easy-to-read book. Might change to five - I certainly hope so.
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