A practical guide for the care of terminally ill loved ones, this book provides ste-by-step guidelines, such as: - What Friends Can do to Help - Gift Suggestions - Practical Preparations for the life-changes you will experience Excerpts from the personal journals of Perry, an ALS victim, and his wife and caregiver give a candid portrayal of the fear, anger, pain, frustration and guilt that accompany the battle against a terminal illness. From their personal experiences, the reader can learn practical and economical tips on caregiving. The book also contains laughter and love as Perry and his wife "Prayed for the Best and Prepared for the Worst".
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Book Description
Editorial Reviews
Review
Such a touching story. We will be promoting your book throughout our Chapter. Congratulations on your courage to move on and willingness to share your story. -- The ALS Association-Valley of the Sun Chapter
This book is important because it fills a gap in the literature on terminal illness. Written from the heart, it has appeal for friends and families of ALS patients as well as professional caregivers. Practical tips on caregiving, support and coping make it an excellent resource for these dealing with any terminal illness. -- Susan R. Jacob, PhD, RN; Hospice Consultant; Professor-Loewenberg School of Nursing, The University of Memphis
What a tremendous, heart-rendering story! The practical guide that charts the very necessary legal, medical, and financial courses is utterly clear. But where the book might have been ordinary - switching from the compassionate (the diary entries) to the dispassionate (the checklists and procedures) - you instead thoughtfully weave the pragmatic decision-making with your personal and emotional experiences. The warmth and intelligence of the writing is captivating. -- Col. K. Sepp, U.S. Army, West Point
This book is important because it fills a gap in the literature on terminal illness. Written from the heart, it has appeal for friends and families of ALS patients as well as professional caregivers. Practical tips on caregiving, support and coping make it an excellent resource for these dealing with any terminal illness. -- Susan R. Jacob, PhD, RN; Hospice Consultant; Professor-Loewenberg School of Nursing, The University of Memphis
What a tremendous, heart-rendering story! The practical guide that charts the very necessary legal, medical, and financial courses is utterly clear. But where the book might have been ordinary - switching from the compassionate (the diary entries) to the dispassionate (the checklists and procedures) - you instead thoughtfully weave the pragmatic decision-making with your personal and emotional experiences. The warmth and intelligence of the writing is captivating. -- Col. K. Sepp, U.S. Army, West Point
From the Author
Someone in your home was just diagnosed with a terminal illness. Now what? This is my story, as a wife and caregiver. This is Perry's story, who was diagnosed with ALS (Lou Gehrig Disease) on May 18, 1992 and was called to heaven on January 14, 1993.
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