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No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction [Paperback]

Ellen Painter Dollar
4.9 out of 5 stars  See all reviews (14 customer reviews)

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Book Description

January 31, 2012

In No Easy Choice, Ellen Painter Dollar tells her gut-wrenching story of living with osteogenesis imperfecta (OI)—a disabling genetic bone disorder that was passed down to her first child—and deciding whether to conceive a second child who would not have OI using assisted reproduction. Her story brings to light the ethical dilemmas surrounding advanced reproductive technologies. What do procedures such as in vitro fertilization (IVF) and preimplantation genetic diagnosis (PGD) say about how we define human worth? If we avoid such procedures, are we permitting the suffering of our children? How do we identify a "good life" in a consumer society that values appearance, success, health, and perfection?



Dollar considers multiple sides of the debate, refusing to accept the matter as simply black and white. Her book will help parents who want to understand and make good decisions about assisted reproduction, as well as those who support and counsel them, including pastors and medical professionals.




Frequently Bought Together

No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction + Theological Bioethics: Participation, Justice, and Change (Moral Traditions series)
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Editorial Reviews

Review

"Ellen Painter Dollar is a consummate storyteller with a consuming story to tell. She is also a gifted journalist. In No Easy Choice, she has combined those skills to produce a gripping account of her family's engagement with one of the pressing questions of our time. Chock full of informed and candid insights, this one is a page turner."
--Phyllis Tickle, author of The Great Emergence: How Christianity Is Changing and Why

"It is definitely an easy choice to recommend No Easy Choice to Christians, all people of faith, and anyone else wrestling with parenting and living with disability in our technological age!"
--Amos Yong, Professor of Theology, Regent University, and author of The Bible, Disability, and the Church

"[No Easy Choice] is much more than memoir and more like an extended 'case study,' but not one written by a health care professional or clergy in training. Rather, it turns the tables, and is written by the 'case' herself, a parent of faith carrying a very risky gene who is trying to deal with the worlds of science, theology, and culture. I learned a lot and felt honored to be invited into the intimacy and capacity to deal with that wider intersection that happens at the beginning of life itself."
--William C. Gaventa, Associate Professor, The Elizabeth M. Boggs Center on Developmental Disabilities , UMDNJ-Robert Wood Johnson Medical School, and author of Spirituality and Intellectual Disability

"Prepare yourself for a compelling, moving, and difficult journey. Elegantly written, this is a book of sheer genius born out of a story of pain, complexity, and faithfulness. This is book worth reading and rereading."
--Ian S. Markham, Dean and President, Virginia Theological Seminary

"This is a most thoroughgoing evaluation of questions that will absorb prospective parents, doctors, pastors, and those who counsel couples about in vitro fertilization and genetic testing. Anyone reading it will come away better informed on such vital choices challenging our culture."
--Virginia Stem Owens, author of Caring for Mother: A Daughter's Long Goodbye

"The book is both a challenge and a blessing for those who see the beauty that human disability brings to the world and the deep and troubling truths that it reveals about our societies. Moving, touching, personal, and filled with deep Christian spirituality, Dollar's book will move hearts and make a difference."


--John Swinton, Chair in Divinity and Religious Studies, University of Aberdeen



"In No Easy Choice, Ellen Painter Dollar sets out to provide a guide for Christians considering reproductive technology. She succeeds, and then some. Weaving together an honest and touching personal narrative with ethical and theological insight, Dollar writes about a complex topic in simple terms. No Easy Choice should provoke thought, prayer, and discussion from any Christian who wants to engage the most pressing ethical concerns of the 21st century."
--Amy Julia Becker, author of A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny

"No Easy Choice is a painfully wise book about the pain of having children whose life will be filled with pain. It is also a book of hope because its author never tries to say more than can be said about why some children are so born. This is a must read, not only for those considering prenatal genetic diagnosis and intervention, but for all concerned with the ethics of PGD. It's a terrific book."
--Stanley Hauerwas, Professor of Theological Ethics, Duke Divinity School, and author of God, Medicine, and the Problem of Suffering

"This book is a welcome antidote to dry academic reflection on the ethics of PGD. The author walks us through her difficult decisions about using reproductive technologies in the face of having her children inherit a painful medical condition, cutting through the certitudes of those who do not have to face these choices themselves. Those pondering the use of reproductive technologies and those concerned with the ethics of these technologies can both benefit from reading this book."
--John H. Evans, Professor of Sociology, University of California, San Diego, and author of Contested Reproduction: Genetic Technologies, Religion and Public Debate

"I am grateful for Dollar's skill and honesty as a writer, and moved by her story that is so clearly marked by truth and grace. I urge everyone who cares about Christian faithfulness in our time to read, ponder, and share this book."
--Andy Crouch, author of Culture Making: Recovering Our Creative Calling

About the Author

Ellen Painter Dollar is a writer and mother of three living in West Hartford, Connecticut. She has written about faith, motherhood, and disability for a variety of organizations, publications, and blogs, including Christianity Today, the American Medical Association, the Osteogenesis Imperfecta Foundation, the Hartford Courant, and the Episcopal Cafe. She currently blogs at Patheos.com. Visit her Web site at www.ellenpainterdollar.com.

Product Details

  • Paperback: 200 pages
  • Publisher: Westminster John Knox Press (January 31, 2012)
  • Language: English
  • ISBN-10: 0664236901
  • ISBN-13: 978-0664236908
  • Product Dimensions: 5.5 x 0.5 x 8.5 inches
  • Shipping Weight: 9.6 ounces (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (14 customer reviews)
  • Amazon Best Sellers Rank: #1,256,420 in Books (See Top 100 in Books)

More About the Author

I am a writer focusing on family and motherhood, faith, disability, and reproductive ethics. Those topics came together in my book No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproductive Technology (Westminster John Knox 2012), which is part memoir and part a discussion of ethical questions raised by reproductive technologies such as in vitro fertilization and preimplantation genetic diagnosis. I also blog regularly about both reproductive ethics and other topics that stem from my life as a Christian mom and writer living with a disability (a bone disorder called osteogenesis imperfecta). With my three children all in school now, I'm enjoying having more time to explore through writing all of the interesting ways that these different facets of my identity intersect.

Customer Reviews

4.9 out of 5 stars
(14)
4.9 out of 5 stars
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I laughed out loud at the gems of humor scattered throughout. David Parker  |  8 reviewers made a similar statement
It is a revealing peek into one woman's emotional and physical journey. Stacie Hill  |  4 reviewers made a similar statement
Most Helpful Customer Reviews
3 of 3 people found the following review helpful
5.0 out of 5 stars Well-written and worth your time March 10, 2012
Format:Paperback
A couple of decades ago, I stood along the side of a busy highway for an hour a couple of Sunday afternoons holding a sign that read "Abortion Kills Children", along with about 75 others. Some honked as they drove by in a gesture of solidarity with those of us in the life chain. Others gave us the middle-finger salute, or shared their feelings with us via curse words yelled out their car windows. In the end, I wasn't convinced that our well-meaning silent protest would change anyone's mind, though I do remember praying that maybe the messages on our signs catch the attention of a newly-pregnant teen and cause her to rethink her plans to abort her baby.

Eventually, I shifted from sign-holding to other forms of pro-life activism that included writing/calling legislators and becoming a foster parent for a steady stream of newborns awaiting adoption. Though I continue to maintain my steadfast belief that a new human life begins at the moment of conception, I also realize that issue is far more complex than the simple words the two-dimensional cardboard sign I once carried.

Ellen Painter Dollar's book, No Easy Choice: A Story Of Disability, Parenthood, and Faith In An Age Of Advanced Reproduction (Westminister John Knox, 2012) is a primer on just how complicated the issue can be. Dollar has a genetic condition called Osteogensis Imperfecta (OI), commonly known as brittle bone disease. After she married, she and her husband longed to start a family; a holy, God=given desire . The couple had to process their concerns about passing OI on to a child, as well as Dollar's physical limitations. They took a leap of faith - and baby Leah was born with OI.

The couple learned that assisted reproduction (a combination of in-vitro fertilization followed by pre-implantation genetic diagnosis, or PGD) could significantly reduce their chances of giving birth to another OI child. She writes, "There are reasons why parents wish and hope and pray for healthy babies, and those reasons go beyond cultural biases toward achievement and health. Quite simply, it is hard to care for a fragile child, a child for whom the most routine activities - walking in socks on a bare floor, speeding up to keep up with her class in the school hallway - are dangerous."

As the couple wrestled with their decision about how they'd expand their family, they spoke with everyone from medical experts to philosphers, friends, family and theologians. "Daniel and I met with the rector of our Episcopal church. He declined to make a clear judgement about whether PGD was ethical for us, but he did caution us to avoid the pitfall of thinking that something is morally wrong just because it is not `natural'. Medical technology allows us to overcome many `natural diseases and injuries that killed people in generations past."

No Easy Choice is part memoir, part summary of current medical and ethical discussion on the subject of assisted reproduction, and part "wrestling with angels" meditation on the vocation of parenthood. Dollar endeavors to present all sides of the issues raised by her family's decision-making process in a transparent, fair and reasoned manner. I read the book as an interested lay person, not a bioethics expert, and was grateful to have Dollar guide me through the maze of questions raised by reproductive technology like PCD.

I am certain Dollar and her husband did not make their choices lightly. I am also certain that some of their choices would not have been mine.

I first got to know Dollar when she was writing for Christianity Today's her.meneutithcs blog, and respect her as a Christian, author and friend. Her desire to give the best of herself to her children is one which every parent can affirm. That said, I believe that No Easy Choice is a valuable read for those who are trying to make sense of the brave new world of repro tech. We live in an era that demands a clearer, more informed response from us than holding up a cardboard sign on a busy highway.
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2 of 2 people found the following review helpful
5.0 out of 5 stars Heartfelt and thoughtful--no easy answers here. January 19, 2013
Format:Paperback
When Ellen Painter Dollar and her husband decided to have children, they knew their child would have a 50/50 chance of inheriting from Ellen osteogenesis imperfecta (OI), more commonly known as brittle bone disease. Having lived with it all her life, and with memories of a painful childhood full of broken bones and casts, she was devastated when her first child was diagnosed with OI. Still wanting to have children, she and her husband decided that for their next child, they would avail themselves of preimplantation genetic diagnosis (PGD), a means by which eggs fertilized with in vitro fertilization can be genetically tested for specific genetic traits.

In No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advance Reproduction, Dollar tells her story while exploring the moral, ethical, and theological questions her family faced during that time. This is a deeply personal book which, without moralizing or forcing conclusions, explores perspectives on disability, on the beginning of life, and parenthood.

I was particularly interested in Dollar's views on disability. If a family selects embryos in order to avoid having a child with a disability, what does that say about how they, or we as a society, value individuals with disabilities? Shouldn't parents want to prevent suffering for their children? If they can do so by not having a child with a disability, shouldn't they stop that pregnancy before it starts? Would it be "a sin of parents to have a child that carries the heavy burden of genetic disease," as the Nobel-prize-winning developer of IVF suggested?

Dollar makes it clear that she believes we should by all means value individuals with disabilities. She does not regret having her oldest daughter, OI and all, but she does wish she didn't have OI. She acknowledges the impact that OI has had on her life, and the wisdom she has gained. But "if given a choice between having the wisdom that comes from disability on one hand, and on the other hand forgoing the disability and perhaps some of the wisdom as well, I'd choose the latter."

She points out that parents want to protect their children from injury, hoping, for instance, that they won't have an accident that will paralyze them. This is not because they don't value paralytics, but that they would prefer that their children not be paralyzed. However, in my mind, this argument breaks down when applied to PGD. Is she saying it's better never to have been born than to have been born with a painful or crippling condition? On this side of the delivery room, it's an easy choice; no one (well, almost no one) wants to see children with disabilities euthanized. But before implantation, the parent is making the determination that, for instance, it's better not to live at all than to live with Down syndrome, OI, or other condition.

As you can see, these decisions are profound and personal. In telling her story, Dollar puts flesh and blood onto ethical dilemmas that may seem cut-and-dried to many. She writes as a Christian, and would call herself pro-life, but many in the political sphere who are pro-life would reject her as not pro-life enough. As her title suggests, parent who have genetic disabilities, or who are facing IVF and PGD, have some very difficult choices to make. No Easy Choice can be a valuable resource for parents who are considering PGD and IVF as well as for the family, clergy, and medical professionals around them.

Learn more about Ellen at her blog [...]

Thanks to Edelweiss and the publisher for the complimentary electronic review copy!
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2 of 2 people found the following review helpful
5.0 out of 5 stars Compelling, evocative read February 20, 2012
By Carolyn
Format:Paperback|Amazon Verified Purchase
I reluctantly picked this up to read -- such a huge and weighty subject and my thought was that no one could do it justice or, if an author tried, I would be preached at and left feeling adrift. Not so. I could not put this down, finished it in two days, and found the weaving together of personal story and information not just worthwhile, but irresistible and informative in the richest of ways.

Part of my background is in adoption -- as a parent of a child with a disability and professionally as a social worker. "No Easy Choice" provided a broader and deeper picture of having children and being a parent. I have always valued stories and know it is important to hear not just one story (especially when it is my own) in order to broaden one's view; this book affirmed that and more. While there are perspectives here that are not mine, I learned much and appreciate knowing more about an arena in which fundamental parts of who we are, what we believe and how we make choices have roots and bear fruit.

The prose is in "No Easy Choice" is fluid and, at times, touchingly beautiful. The information is broad in scope and delivered with an even and gentle hand. I heartily recommend this book for those for whom taking a look at life from various angles makes for a sharper picture or, perhaps, just fosters a feeling of understanding oneself and others. Life, after all, seems best when we share it and I closed the final pages of this book feeling both connected and informed, better equipped to make choices and support others who are making them too.
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Most Recent Customer Reviews
5.0 out of 5 stars Harrowing, Funny, Loving, Logical
My teeth were gritted and my legs were clenched during the broken bones and births and medical procedures. I laughed out loud at the gems of humor scattered throughout. Read more
Published 7 months ago by David Parker
5.0 out of 5 stars A Wonderful Book
If only life were as easy as those loudly shouting proclaim it to be. In Dollar's book, No Easy Choice, she grapples with the complex issues surrounding disability, genetics and... Read more
Published 8 months ago by nita kent
5.0 out of 5 stars beautifully written, comprehensive, and thoughtful
In light of the Christian story, and the context of telling her own family's beautiful, redemptive story, Ellen raises great questions about the meaning of disability and... Read more
Published 9 months ago by Rachel Marie Stone
5.0 out of 5 stars Arguments, challenges, fears expressed beautifully
Non-fiction books don't usually grab me the way fiction does. When I start one, it's not unusual for me to put the book down for weeks before I pick it up again. Read more
Published 9 months ago by Susan Schoenberger
5.0 out of 5 stars Excellent mix of Memoir and Ethical Discussion
In No Easy Choice, Ellen Painter Dollar has written a moving memoir of her experiences wrestling with reproductive ethics mixed with a solid discussion of the topic. Read more
Published 12 months ago by Stacie Hill
5.0 out of 5 stars No Easy Choice
For nearly forty years, it has been my privilege to work with persons facing difficult bioethical dilemmas. Read more
Published 14 months ago by Beach Bum
5.0 out of 5 stars Powerful and beautiful
This book is valuable in several ways. First, the writer never imposes her views as "the only right view" on assisted reproduction. Read more
Published 14 months ago by A capable and worthy mom
4.0 out of 5 stars Compassion, wisdom, and diligence
Dollar shares her personal story of life with an autosomal dominant genetic disorder--Osteogenesis Imperfecta--which her children have a fifty percent chance of inheriting. Read more
Published 15 months ago by Kate Byroade
5.0 out of 5 stars From a Grandparent's Perspective....
I recently read Ellen Painter Dollar's new book, 'No Easy Choice' -- I really loved it. I am a Grandma who has watched my children struggle with these issues. Read more
Published 15 months ago by Brenda F.
5.0 out of 5 stars The only easy choice is to decide to read this book
I have always thought that good bioethics starts with asking good questions. Yet, simply asking rhetorical questions gets you nowhere. Read more
Published 15 months ago by Kelley
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