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Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders)
 
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Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders) [Paperback]

Donna Landsman (Author), Donna Cutler-Landsman (Editor)
4.2 out of 5 stars  See all reviews (8 customer reviews)

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Book Description

April 15, 2007 1597561096 978-1597561099 1
Velo-cardio-facial syndrome is a relatively new syndrome--the genetic test to determine its presence has only been available since 1994. There are currently no books available to address the educational needs of this population, yet virtually every child with velo-cardio-facial syndrome needs special educational programming. This new book effectively blends the thoughtful research that has transpired within the past ten years with practical and current educational strategies to help meet the needs of children with VCFS and similar developmental disabilities.

To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles, and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.

The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accomodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.

A pioneer of its kind, this book is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial syndrome.


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Product Details

  • Paperback: 256 pages
  • Publisher: Plural Publishing Inc; 1 edition (April 15, 2007)
  • Language: English
  • ISBN-10: 1597561096
  • ISBN-13: 978-1597561099
  • Product Dimensions: 10 x 6.9 x 0.6 inches
  • Shipping Weight: 14.9 ounces (View shipping rates and policies)
  • Average Customer Review: 4.2 out of 5 stars  See all reviews (8 customer reviews)
  • Amazon Best Sellers Rank: #469,818 in Books (See Top 100 in Books)

 

Customer Reviews

8 Reviews
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 (5)
4 star:
 (2)
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Average Customer Review
4.2 out of 5 stars (8 customer reviews)
 
 
 
 
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10 of 10 people found the following review helpful:
5.0 out of 5 stars Great reference for parents as well as educators, June 12, 2007
This review is from: Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders) (Paperback)
I found the book to be very thorough and helpful. It first gives an overview of different areas affected by VCFS (22q) written by well-respected researchers and clinicians. The second half is the real gem, though. It has clear and readable information on how kids with VCFS typically learn, and then good recommendations on how to help them learn. The second half is divided into sections based on grade/age, but there are valuable nuggets in all of them, regardless of the age of the child you're trying to help.

For teachers, it is an invaluable tool in setting up accommodations to help kids with 22q learn more effectively. For parents, it provides a way to easily share information with schools - information that previously was either not available or scattered in various papers and books. The fact that the book is written and edited by respected professionals gives it more credence than just the word of a parent.
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6 of 6 people found the following review helpful:
4.0 out of 5 stars Excellent subject for parents of children with VCFS, June 20, 2007
This review is from: Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders) (Paperback)
What makes this book so special is that it deals exclusively with the educational needs of children with VCFS - from preschool forward throughout the educational system. It addresses complex topics in a straightforward, easily understandable way and is helpful to parents *and* educators.

The only reason I downgraded it to a 4 is the astronomical price. $55 is a LOT to pay for the 'privilege' of owning this book. Take at least $25 off the price and then this would be a 5 star rating.

I'd recommend visiting the VCFS Educational Foundation website for additional info: www.vcfsef.org
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5 of 5 people found the following review helpful:
5.0 out of 5 stars Educating Children with VeloCardioFacial Syndrome, February 13, 2008
This review is from: Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders) (Paperback)
This book is amazing! It is a "must have" for parents, educators and physicians dealing with children who have been diagnosed with velocardiofacial syndrome. I wish that someone would have handed me this book when our son was diagnosed with 22Q11.2 (velocardiofacial syndrome). Educators especially can glean helpful information from it's pages to better understand the cognitive defecits presented by the syndrome. It is worth every penny of the price. Thank You Donna Cutler-Landsman for taking to time to compile such a comprehensive and concise book.

-Holle McRae
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