Customer Reviews

Educating Children with Velo-Cardio-Facial Syndrome (Genetic Syndromes and Communication Disorders)

5 star:		(5)
4 star:		(2)
3 star:		(0)
2 star:		(0)
1 star:		(1)

 

 

I found the book to be very thorough and helpful. It first gives an overview of different areas affected by VCFS (22q) written by well-respected researchers and clinicians. The second half is the real gem, though. It has clear and readable information on how kids with VCFS typically learn, and then good recommendations on how to help them learn. The second half is divided into sections based on grade/age, but there are valuable nuggets in all of them, regardless of the age of the child you're trying to help.

For teachers, it is an invaluable tool in setting up accommodations to help kids with 22q learn more effectively. For parents, it provides a way to easily share information with schools - information that previously was either not available or scattered in various papers and books. The fact that the book is written and edited by respected professionals gives it more credence than just the word of a parent.

What makes this book so special is that it deals exclusively with the educational needs of children with VCFS - from preschool forward throughout the educational system. It addresses complex topics in a straightforward, easily understandable way and is helpful to parents *and* educators.

The only reason I downgraded it to a 4 is the astronomical price. $55 is a LOT to pay for the 'privilege' of owning this book. Take at least $25 off the price and then this would be a 5 star rating.

I'd recommend visiting the VCFS Educational Foundation website for additional info: www.vcfsef.org

This book is amazing! It is a "must have" for parents, educators and physicians dealing with children who have been diagnosed with velocardiofacial syndrome. I wish that someone would have handed me this book when our son was diagnosed with 22Q11.2 (velocardiofacial syndrome). Educators especially can glean helpful information from it's pages to better understand the cognitive defecits presented by the syndrome. It is worth every penny of the price. Thank You Donna Cutler-Landsman for taking to time to compile such a comprehensive and concise book.
-Holle McRae

Educating Children with V.C.F.S is a book I wish I had had from the begining. It covers ALL aspects of teaching a child with a 22q deletion and throws light on a lot of the often perplexing conundrum of problems associated with the syndrome. Highly recommended for parents an educators alike and although maybe a bit pricey, worth every cent.

Excellent source for understaging Velo Cardio Facial Syndrome. Will help parents of VCFS chidren help cope with the short comings of school administrations, many un aware of children with this disability.

This is an essential item for parents. Useful for both parents who homeschool and with children in the school system. Recommended.

First of its kind, very useful information. It gets 4 stars simply because of the price of $55.00 which I think is outrageous for a soft bound book of its kind

I figured for $50 this book would be an investment, something we'd use long term. I was disappointed when it arrived, it's seriously so small!! For $50! Crazy. And then I couldn't even read the book because it was put together wrong. I can't speak to it's usefulness because I sent mine back immediately. What a waste.