Delivered with a humorous tone to make a tough subject palatable, Marcell relates how she fought through an unsympathetic medical system and endured her "Jekyll & Hyde" father's wrath, until she finally found help for him and her ailing mother. What she didn't understand was that his deeply engrained life-long negative behavior pattern of yelling to get his way (though never at her before), was becoming intermittently distorted with the onset of dementia, namely--Alzheimer's. Marcell points out that not everyone becomes aggressive with dementia, and that her mother was sweet and lovely before and after her Alzheimer's diagnosis.
Statistically families (and doctors who are not dementia specialists) ignore early warning signs because they incorrectly believe that intermittently odd behaviors are just stress and a normal part of aging. Marcell says, "By the age of 65, one out of every eight has some form of dementia, and by the age of 85, nearly one out of every two. Surprisingly, the fastest growing segment of our population is the 85+ group."
Marcell says her mission is to "spread the word about the importance of early diagnosis of Alzheimer's to 77 million baby boomers who are in denial until a crisis." She wants everyone to know that with proper treatment, dementia symptoms can be masked/slowed, keeping the person independent longer. "Seeking help early can save families so much heartache and money, and save our society the burden of caring for so many who decline sooner than need be."
The Alzheimer's Association reports that by delaying the onset of A.D. for five years, the U.S. could save $50 billion in annual health care costs. Even a one-month delay in nursing home placement could save $1 billion a year. Marcell says, "It's really very simple: When your loved one does something that strikes you as illogical or irrational--it is! You don't need to have a Doctorate degree to know something is wrong--you need the right Doctor who can diagnose and treat dementia properly."
Marcell credits the Alzheimer's Association for referring her to a neurologist specialized in dementia who after a battery of tests uncovered her father's early stage Alzheimer's, while all of his other healthcare professionals missed it entirely. He prescribed medication to slow the dementia and improve her father's cognitive functioning (Aricept, Exelon, Razadyne, Namenda), and treated the aggression and (often-present) depression. After balancing with optimal nutrition and therapies, Marcell implemented her own `Elder Behavior Modification 101', and succeeded in turning around her father's nasty behaviors the majority of the time. And when that didn't work she used distraction, redirection, reminiscence and validation... but discovered the offer of his favorite ice cream worked the best to get him in the shower--even as he swore a blue streak at her that he had just taken one yesterday (actually a week ago).
The final key was getting herself into a support group and getting her parents out of bed ("waiting to die") and enrolled in physical and emotional therapies at an Adult Day Health Care, which completely turned their lives around at 80 and 85. Marcell adds, "75% of dementia patients are cared for at home and sadly elder abuse is rising dramatically because families are unprepared for the frustrations. She believes that with education and the use of Adult Day Care, elder abuse can be reduced. The National Center on Elder Abuse published a very favorable review of Elder Rage in their national newsletter.
Marcell emphasizes, "Dementia costs American business multi-billions of dollars a year--largely due to lost productivity from absenteeism of employees who must take time off to care for ailing loved ones. Everyone should know the ten early warning signs of Alzheimer's and the importance of getting the right help sooner than later." Marcell says she learned caregiving the hard way which is why she wrote her first book, "so that no one would ever have to go through what I did." Determined to make a difference, Marcell says her ultimate goal is to help change our eldercare laws." She laughs, "I have an ulterior motive--I don't have children, so I've got to help straighten things out before I get there!"
Her book which I couldn't put down made me laugh and cry at the same time.
This book will help caregivers recognize that they are not alone,and that many of the feelings that they feel guilty about are very normal for the situation.
Author Jacqueline Marcell has written the go to book for caregivers involved in elder care!
The most helpful part of this book was the addendum, by Dr Rodman Shankle, describing all the medications, that may or maynot be used for demented patients was extremely insightful... Read morePublished 17 days ago by Veronica K. Tidd
while there is some difficult language as the writer recounts her experiences with her father... if you get past that to what she is trying to share... Read morePublished 1 month ago by SLNCARE14
This book helped me realize I wasn't alone in my experience with my Dad's rages!Published 2 months ago by Meredith
I enjoyed the book..however I have never had an author solicit reviews from me. Even to the point of writin
A sample review. Annoyed!
Couldn't put it down -- Enjoyed So Much!
Thanks to Jacqueline so very much for sharing her story and shedding light on a very taboo subject in today's world. Read more
Jacqueline presents a riveting story in such a humorous way it helps caregivers cope while learning how to manage obstinate elders. It was an engaging read and hard to put down. Read morePublished 2 months ago by Happy Dad
It's hard to imagine your parents--the people who made you, loved you, grew you up and launched you into the world--getting old. Read morePublished 3 months ago by Wren
This book is a page turner. I couldn't put it down. It is a good read.
I am so glad that Jacqueline Marcell wrote her story of her difficult time caring for her parents. Read more