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Ethics in Mental Health Research: Principles, Guidance, and Cases [Hardcover]

James M. DuBois (Author)

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Book Description

July 31, 2007 0195179935 978-0195179934 1
Research holds a key to preventing and effectively treating mental disorders, including ADHD, depression, schizophrenia, and substance abuse. Yet even as research holds out promise, mental health researchers face numerous ethical challenges. Responsible for ensuring participants are able and willing to grant consent, researchers must also constantly protect privacy and confidentiality. But for so many situations, the appropriate decisions are not so clear. An individual with cognitive deficits may have difficulty understanding a research study and granting informed consent, but nevertheless wants to participate. Many studies gather private information about medical records or illegal behaviors that could lead to emotional, social, or legal harm if shared, yet state laws and institutional review boards may require researchers to breach confidentiality in specific situations. Moreover, mental health consumers and other vulnerable research participants are frequently familiar with historical cases of abuse of human subjects, and may be mistrustful of researchers or fear exploitation.

At the same time, researchers are often frustrated when they feel that advocates or institutional review boards erect barriers to research, even while failing to enhance the ethical treatment of participants. Ethical research is rarely simply about avoiding bad activities, and more frequently about how to pursue good research when multiple values and commitments conflict.

Ethics in Mental Health Research explores how ethical issues arise in mental health research, and offers concrete guidance to researchers who seek to comply with federal regulations while conducting research that is at once ethical and scientifically credible. Case studies used throughout illustrate a variety of situations and effective problem-solving strategies. This book is essential reading for mental health researchers, IRB members, and research advocates.

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Editorial Reviews

Review


"This outstanding book on mental health research ethics certainly will become obligatory reading for anyone contemplating research on mental illness as well as anyone responsible for the ethical and regulatory review of such research."--Doody's


"This clear and well-written volume is a comprehensive look at [medical ethics and research issues in mental health]... If one is genuinely interested in the ethics of mental health research, there is nothing to compete with this volume as an introduction to the issues."--Psychiatric Services


"I believe [this book] will be of interest to most physicians and mental health professionals who struggle with issues in medical ethics...In ten well-written chapters -- remarkably, all penned by Prof. DuBois -- the entire range of topics in mental health research is covered...Ethics in Mental Health Research will set the standard for reasoned discussion of mental health research, and the moral dilemmas that arise therein."--Ronald Pies for Philosophy, Ethics, and Humanities in Medicine


"A well-written and organized, relatively succinct, and very practical primer in applied research ethics...The conversational tone of the text and presentation would make it ideal for use in a graduate or medical school or postdoctoral research ethics seminar, but the material is inherently fascinating and of relevance for seasoned investigators as well.,,I strongly recommend this book to virtually all persons interested in a clearly understanding of medical research ethics and the application of ethics to the design, recruitment, and conduct of their research."--Barton W. Palmer of Journal of Clinical and Experimental Neuropsychology


"Undoubtedly Dubois is greatly aware of particular and general issues that arise in mental health and...this book would be a valuable tool to all those professionals, working in the field of mental health, who have a genuine interest in ethical practice and professional ethics...There is an extensive index and references are to high quality journals that provide the reader with ample, well-researched further reading. Overall, Ethics in Mental Health Research is an informative and well-written book, providing excellent guidance for ethical decision-making in the practice of human mental health research."--Metapsychology


"This outstanding book on mental health research ethics certainly will become obligatory reading for anyone contemplating research on mental illness as well as anyone responsible for the ethical and regulatory review of such research."--Doody's


"This clear and well-written volume is a comprehensive look at [medical ethics and research issues in mental health]... If one is genuinely interested in the ethics of mental health research, there is nothing to compete with this volume as an introduction to the issues."--Psychiatric Services


"I believe [this book] will be of interest to most physicians and mental health professionals who struggle with issues in medical ethics...In ten well-written chapters -- remarkably, all penned by Prof. DuBois -- the entire range of topics in mental health research is covered...Ethics in Mental Health Research will set the standard for reasoned discussion of mental health research, and the moral dilemmas that arise therein."--Ronald Pies for Philosophy, Ethics, and Humanities in Medicine


"A well-written and organized, relatively succinct, and very practical primer in applied research ethics...The conversational tone of the text and presentation would make it ideal for use in a graduate or medical school or postdoctoral research ethics seminar, but the material is inherently fascinating and of relevance for seasoned investigators as well.,,I strongly recommend this book to virtually all persons interested in a clearly understanding of medical research ethics and the application of ethics to the design, recruitment, and conduct of their research."--Barton W. Palmer of Journal of Clinical and Experimental Neuropsychology


"Undoubtedly Dubois is greatly aware of particular and general issues that arise in mental health and...this book would be a valuable tool to all those professionals, working in the field of mental health, who have a genuine interest in ethical practice and professional ethics...There is an extensive index and references are to high quality journals that provide the reader with ample, well-researched further reading. Overall, Ethics in Mental Health Research is an informative and well-written book, providing excellent guidance for ethical decision-making in the practice of human mental health research."--Metapsychology


"The book is fluid, well written, meticulously copyedited, and extremely up to date in terms of regulatory mandates, empirical research, and classic and new ethical case studies... While always presenting a thorough and balanced analysis of a particular ethical vignette, DuBois is not afraid to render his analysis and opinion regarding the preferred ethical choice of action. He is direct and clear in his systematic analysis of ethical issues...DuBois's contribution has made learning about research ethics interesting and engaging...[This text] represents a landmark contribution, not only to the mental health field, but to sociology, education, and nursing as well."--PsycCritiques


"...a guidebook to a complex land....Individuals...will find in the author a clear, patient, and experienced guide who knows the terrain well and offers readers the resources to address the issues they encounter."--IRB: Ethics and Human Research


About the Author


James DuBois is the Hubert M�der Endowed Chair and Department Chair in Health Care Ethics at Saint Louis University. He has served on several National Institute of Health scientific review groups, a National Institute of Drug Abuse data safety monitoring board, an Institute of Medicine committee on organ donation, and local institutional review boards (IRBs). His work has received significant financial support from the National Institutes of Health and the US Office of Research Integrity.

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