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Everything Changes: The Insider's Guide to Cancer in Your 20's and 30's [Paperback]

Kairol Rosenthal
4.9 out of 5 stars  See all reviews (24 customer reviews)

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Book Description

February 1, 2009
By page three of the introduction to Everything Changes, I wanted not only to devour the rest of the book, but I wanted to call Kairol up, get to know her, and (if we weren't both already married) see if I could sleep with her. Then the book got really good. It is, without doubt, the most forthright, emotionally sophisticated, and plain-old valuable book of its kind I've seen. The book defines and exemplifies what the verb 'fight' really means: to arm, prepare, and engage in sustained effort to gain a desired end. If that's your mission, this is your instruction manual.
—Evan Handler, actor and author of Time On Fire and It's Only Temporary: The Good News and the Bad News of Being Alive (and a guy who got well from acute myeloid leukemia in 1985)

On a shoestring budget and with tape recorder in hand, Kairol Rosenthal emerged from treatment and hit the road in search of other twenty- and thirtysomething cancer survivors. From the Big Apple to the Bible Belt, she dusted the sugarcoating off of the young adult cancer experience, exposing the gritty and compelling stories of twenty-five complete strangers. The men and women in Everything Changes confess their most vulnerable moments, revealing cancer experiences they never told anyone else—everything from what they thought about at night before going to bed to what they wish they could tell their lovers but were too afraid to.

With irreverent flare and practical wisdom, Everything Changes includes stories, how-to resources, and expert advice on issues that are important for young adult cancer patients, including:

  • Dating and sex

  • Medical insurance and the healthcare system

  • Faith and spirituality

  • Employment and career

  • Fertility and adoption

  • Friends and family


Frequently Bought Together

Everything Changes: The Insider's Guide to Cancer in Your 20's and 30's + Planet Cancer: The Frequently Bizarre Yet Always Informative Experiences and Thoughts of Your Fellow Natives + Crazy Sexy Cancer Tips
Price for all three: $33.42

Buy the selected items together


Editorial Reviews

From Publishers Weekly

After being diagnosed with thyroid cancer at the age of 27, Rosenthal, a choreographer and now a patient advocate for young adults with cancer, crisscrossed the country, interviewing other young cancer victims. Rosenthals text is part guidebook, part true confessions (including her own), as she segues between intimate conversations and sound advice on topics ranging from dating and parenting to working the health-care system and coping with pain. The interviews are riveting and reveal a youthful perspective on cancer (one girl goes to chemo wearing goth makeup; others worry about when to confide in a lover). As she talks with 25 young adults of varying backgrounds, the author points out that many are not diagnosed until their symptoms are advanced, often because theyve been dismissed by doctors who say they are too young to have cancer, or because they have lost their health insurance during the transition from college to jobs. Rosenthal notes that 70,000 young adults between the ages of 20 and 39 are diagnosed with cancer each year, and 25% do not survive. Though at times the volleying between Rosenthals own story and those of her subjects is disorienting, the work as a whole is poignant, raw and informative. The text will provide needed support and valuable resources for young adults, their parents, friends and caregivers. (Feb.)
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.

Review

* After being diagnosed with thyroid cancer at the age of 27, Rosenthal, a choreographer and now a patient advocate for young adults with cancer, crisscrossed the country, interviewing other young cancer victims. Rosenthal’s text is part guidebook, part true confessions (including her own), as she segues between intimate conversations and sound advice on topics ranging from dating and parenting to working the health-care system and coping with pain. The interviews are riveting and reveal a youthful perspective on cancer (one girl goes to chemo wearing goth makeup; others worry about when to confide in a lover). As she talks with 25 young adults of varying backgrounds, the author points out that many are not diagnosed until their symptoms are advanced, often because they’ve been dismissed by doctors who say they are “too young” to have cancer, or because they have lost their health insurance during the transition from college to jobs. Rosenthal notes that 70,000 young adults between the ages of 20 and 39 are diagnosed with cancer each year, and 25% do not survive. Though at times the volleying between Rosenthal’s own story and those of her subjects is disorienting, the work as a whole is poignant, raw and informative. The text will provide needed support and valuable resources for young adults, their parents, friends and caregivers. (Feb.) (Publishers Weekly, December 15, 2008)

Product Details

  • Paperback: 256 pages
  • Publisher: Wiley; 1 edition (February 1, 2009)
  • Language: English
  • ISBN-10: 0470294027
  • ISBN-13: 978-0470294024
  • Product Dimensions: 6 x 0.7 x 9 inches
  • Shipping Weight: 8.8 ounces (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (24 customer reviews)
  • Amazon Best Sellers Rank: #70,709 in Books (See Top 100 in Books)

More About the Author

Diagnosed with cancer at age 27, Kairol Rosenthal emerged from treatment, ditched her hospital gown, and hit the road with a tape recorder in hand. From the Big Apple to the Bible Belt, she met twenty-five complete strangers living with cancer in their 20s and 30s. They revealed to her intimate cancer stories that they had never shared with anyone else - from fighting for COBRA to best cancer sex toys and everything in between.

Part travelogue, diary, and investigative reporting, these candid stories along with expert advice have become the first-ever comprehensive guide book for young adults with cancer.

Customer Reviews

4.9 out of 5 stars
(24)
4.9 out of 5 stars
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I would recommend this to cancer patients, their families, and friends. Emma  |  12 reviewers made a similar statement
I read this book almost all in one sitting. Kristin McQueen  |  5 reviewers made a similar statement
Most Helpful Customer Reviews
15 of 16 people found the following review helpful
3.0 out of 5 stars Interesting read. Title is misleading September 8, 2009
Format:Paperback
I myself am a cancer survivor, having battled lymphoma for several years. I came across this book late in my experience, a few years after I reached a long term remission. The book is filled with interviews of young adults who tell their private stories in their battles with cancer. I found their experiences to be interesting, and very close to my heart since I too, had experienced many of their struggles such as with work, dating and living with my parents.

There were a couple of thoughts that settled in my mind after I finished reading this. First off, this book is referenced as "the insider's guide to cancer in your 20s and 30s." It is clearly not a guide. A guide is a handbook, a tool to help you navigate the unexpected or unfamiliar. My question is how many newly diagnosed cancer patients in their 20s and 30s buy a book like this once they hear of their shocking diagnosis. I certainly didn't. The first thought was "what the ^%$$^*(&##" and not, "i guess I'll look up a book on how to navigate the waters of cancer in my 20s." There is so much more than that when you're diagnosed. Which brings me to my next point.

By the time a patient ends up reading this book, he or she have most likely gone thru so much to know what has worked for them and what hasn't. The book, although a good read from the interviews stand point, fails to deliver what new patients needs at a timely manner, not because of the book's fault but because patient's instincts especially young ones are not to resort to a book when they're immediately diagnosed. Sometimes the treatment happens so quickly after diagnosis that you don't have time to read anything. You're relying many times on the hospital and staff to help you thru. A guide remains relevant if the info is delivered to the patient at the right time. The info here is not delivered in the right medium. It is better suited for the web or a podcast. When I read it, I skipped through all the pages that were the "guide" part because I didn't find it relevant or helpful. There was nothing in there that I didn't know already 4-8 months into my cancer experience.

Secondly, I was hoping the author would be the one telling patients and families what to do and how to do it thru her personal experiences (it's her guide right?) yet she simply details a dry laundry list of names and contacts of other places to connect with if you need more help. So, I bought a guide to then connect and seek more guidance? Isn't this a bit like buying a restuarant guide to tell me which web sites or organizations to contact to figure out the best French or Chinese restaurant in town? I was hoping the author would use in a creative way how she dealt with the issues by contacting place A or place B, but be it part of the narrative, not some plain list. She writes well yet the guide part was a bit disconnected and not as interesting of a read. I could have received similar contacts and names by calling local cancer organizations, charities or my social worker at the hospital.

As far as this book helping to guide those in a supporting role like friends and family, it could serve them well to know what 20s and 30s with cancer go thru. I think most people don't have a clue what the author and the interviewees really went thru with cancer so it's great to have a book about it.

I liked the quotes sprinkled around the pages, and the stories around the interviews such as how the author set them up and got to meet the patients. I really hoped though for more thorough descriptions of the author's experiences. She went through a lot and I was hoping to hear more of her issues with work, dating, sex, treatments, etc. If this book is by a cancer patient, then the author immediately brings credibility, yet there wasn't all that much about her. It would have been cool if she chose one patient to interview her.
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8 of 8 people found the following review helpful
Format:Paperback
Not every cancer patient is a heroic cheerleader type.

If the sight of pink ribbons makes you want to hurl (without chemo), then this is the book for you. Kairol interviews young adults who share their darker thoughts and feelings along with tidbits of inspiration. The book is chock full of resources for self education, financial assistance, and dealing with the freak show that is the US health care system.

If you have a 20-30 something close friend or family member with cancer that doesn't necessarily want to "share" or talk about their feelings: read this book. It will give you an insight as to how lonely and private this crappy disease can be and how easily it can shift extroverted happy folks to emo types in a heartbeat. And why that's absoultely OK.

I'm a 30 something stage 4 colon cancer patient and I found great comfort in this book. It's nice to know that I'm not alone on my occasional visits to the dark side.Finally, some validation regarding my twisted sense of tumor humor. Practical and touching.
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3 of 3 people found the following review helpful
Format:Paperback
As someone who has always seemed to know "someone with cancer", I was very interested to read a book about the disease by someone my age. Kairol doesn't sugar-coat her experiences, nor does she seem to dumb down those of her subjects. The book really opens the door to every aspect of cancer, and I expect it would be especially valuable to those with limited income and/or support structures facing the disease.

Although Rosenthal devotes space at the end of each chapter to describing practical resources, I personally found the most value in her subjects' description of how they got through every day, and what they really needed from the people in their lives. Almost everyone reported that friends and attachments slipped away, as those who aren't sick don't quite know how to deal with the person who is. Everyone's different; there's no one method to deal with people with cancer. Taking the time to figure out what your "someone with cancer" wants - and then delivering - may be the best thing a friend can do.
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Most Recent Customer Reviews
5.0 out of 5 stars Wonderful for young adults and others
I purchased this for a family member in her 30s upon recommendation from someone else in that same age range.
Published 3 months ago by nnurse
5.0 out of 5 stars Useful, Thoughtful Information For Those Going Through Cancer
I actually checked this book out randomly from the library and ended up liking it so much I wanted to submit a review here. Read more
Published 15 months ago by GeekyKeekee
5.0 out of 5 stars Must read whether you're young or not
As the main caregiver for my mom diagnosed w/ c and also a young adult, it was difficult finding friends who could relate to what I was going through. Read more
Published 16 months ago by L. Lee
5.0 out of 5 stars amazing book
I had been diagnosed with a rare cancer at the age of 26. I felt totally alone and was given multiple books that I just couldnt relate to. This book was fabulous!!! Read more
Published 17 months ago by booklover143
5.0 out of 5 stars Lots of Insight
I'm outside the intended age group for this book, so I didn't expect that it would draw me in the way it did. Read more
Published on October 23, 2010 by Idelle Davidson
5.0 out of 5 stars A must read
As a 22 year old recently diagnosed with cancer, I have had a difficult time finding books that address the thoughts, concerns,and experiences of being young and having cancer. Read more
Published on September 16, 2010 by Emma
5.0 out of 5 stars Real, gritty, beautiful
As a nurse, and someone who is completing her doctoral dissertation on young adult oncology, I thought this would give me a good patient perspective on some of my endeavors and had... Read more
Published on January 11, 2010 by J. L. Keim
5.0 out of 5 stars I saw Kairol Rosenthal at a book reading in Chicago . . .
. . . she came across just like she does in her book -- a little bit wry and sarcastic, always empathetic, very passionate, and unflinchingly honest. Read more
Published on September 18, 2009 by JW
5.0 out of 5 stars Not just for cancer
I am in limbo about my condition but I've had lots of illnesses in the past and this is the only the book I have ever found that lets out the frustrations I that I have, especially... Read more
Published on May 26, 2009 by Dennis A. Pikora
5.0 out of 5 stars This great book is not just for Singletons!
As a recently-diagnosed young adult cancer fighter, this was the first book I found that spoke directly to ME and MY AGE GROUP, regardless of type or stage of cancer! Read more
Published on May 5, 2009 by A. Keller
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