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Facing Death - With Hope [Kindle Edition]

e-Patient Dave" deBronkart

Print List Price: $5.00
Kindle Price: $4.00
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Book Description

In 2007 Dave deBronkart learned that he was almost dead with Stage IV kidney cancer: he read that his median survival was just 24 weeks. As he prepared to enter treatment - with low odds of success - he faced the reality that his life might be over, and literally pictured his funeral. Drawing on teachings from physicians and spiritualists, this short book shares the perspective Dave developed: preparing for the end while still maintaining reality-based hope.


Editorial Reviews

About the Author

Dave deBronkart, known on the internet as “e-Patient Dave,” is the leading spokesperson for the e-Patient movement – e-patients are Empowered, Engaged, Equipped, Enabled. A high tech executive and online community leader for many years, he was diagnosed in 2007 with Stage IV kidney cancer, with a median survival of just 24 weeks. He used the internet in every way possible to partner with his care team and beat this unbeatable disease. Today he has become a highly rated international keynote speaker and government policy advisor, advocating for patients to play an active role in their own health - and in redesigning care to be more patient centered. His lectures cover many topics - including this one: how he dealt with the realization that he was almost certainly dying. He didn't, and is now sharing the experience through this book.

Product Details

  • File Size: 46 KB
  • Print Length: 25 pages
  • Simultaneous Device Usage: Unlimited
  • Sold by: Amazon Digital Services, Inc.
  • Language: English
  • ASIN: B005LDJWQO
  • Text-to-Speech: Enabled
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  • Word Wise: Not Enabled
  • Lending: Enabled
  • Amazon Best Sellers Rank: #1,382,011 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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More About the Author

"e-Patient Dave" deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was "grim," as one web site described it. His first book, "Laugh, Sing, and Eat Like a Pig," is extracted from the real-time journal he kept on CaringBridge.org - unedited - combined with later insights from his discovery of the "e-patient" movement.

He received great treatment at Boston's Beth Israel Deaconess Medical Center: his surgeon removed the extensive mess (laparoscopically!), and the Biologic Therapy program helped him participate in a clinical trial for the powerful but severe High Dosage Interleukin-2 (HDIL-2). His last treatment was July 23, 2007, and by September it was clear he'd beaten the disease. His remaining lesions have continued to shrink.

== Today: Advocate and Activist ==

An accomplished speaker and writer in his professional life before his illness, today Dave is actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.

== "What's an e-Patient?" ==

A year after the diagnosis Dave was invited by his primary physician, Dr. Danny Sands, to join the annual retreat of the e-Patient Scholars Working Group. Founded by the late Tom Ferguson MD, a true visionary, the group consists of pioneers, both medical and lay, who have been quietly (and not so quietly) altering the balance of power in healthcare, demonstrating that as the internet brings patients together with information and with each other, a new world of Participatory Medicine is evolving, in which patients become potent agents in creating and managing their own health, in partnership with physicians.

Tom Ferguson said e-patients are empowered, engaged, equipped and enabled. Dave immediately saw himself as a match, became an active blogger on e-patients.net, and took on educating himself as much as he could. He went part-time in his day job in 2009, and left industry entirely in 2010 to devote himself full-time to healthcare.

"This is the first time in my life I've felt I have a calling," says Dave, "something I can't get away from: it's what I need to do. I've had plenty of fulfilling jobs in a great career, but not a calling. This is it."


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