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Fierce Joy [Paperback]

Ellen Schecter , Noah Arlow
5.0 out of 5 stars  See all reviews (13 customer reviews)

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Book Description

June 1, 2012
Fierce Joy: A Memoir is a medical mystery, a spiritual adventure, and a love story. Ellen Schecter had everything she ever wanted: a loving marriage, two great kids, and her dream career writing children's books and television programs. Then her life shattered when she was diagnosed with a painful, potentially fatal disease. Fierce Joy tells the story of how Schecter found a way to be sick without suffering and transformed the loss of her place in the world of work into a quest for her soul. Propelled by illness into a search for new meanings, she learned to listen to her body and find healing even though a cure was impossible. Never asking "Why me?" she instead asked, "What's next?" and forged a new life paradoxically filled with joy.

Frequently Bought Together

Fierce Joy + Coping With Peripheral Neuropathy: How to handle stress, disability, anxiety, fatigue, depression, pain, and relationships + You Can Cope With Neuropathy
Price for all three: $40.81

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Editorial Reviews

Review

"Ellen Schecter creates a visual symphony with her extraordinary command of the unique language of the soul...'Fierce Joy' is a powerful story full of hope, redemption, and the ultimate triumph of the human spirit." -The New York Journal of Books

"Fierce Joy is one of the best memoirs of the year so far," Linda Wolf,
faboverfifty.com/bookblog/2012/04


"[Ellen] Schecter says, 'I not only want to make peace with my illness, I want to sanctify it...to discover or create..a deeper, even sacred meaning for it.' Schecter shows there is solace to be found in that inevitable time when we each must look squarely into the face of our own mortality." tabletmag.com/ diagnosis-is-not-death

From the Author

I didn't just write FIERCE JOY: I lived it, day by day, minute by minute.

This book began as notes scribbled in a $1 black-and-white speckled Composition
Book--the kind we all used in elementary school. I bought one the day I first
went to my first neurologist, and began filling it with questions more than answers.
It was as if that were the first day of a new course I was taking: a lesson in what my new
life would be like living with two terrible illnesses. 
Facts and questions soon shared space with ideas and feelings--and tears also left
their marks. One notebook soon filled and I needed a second, then a third. I was 
exploring a whole new world, and needed to understand it. And, as a writer, I
did that word by word. 
Then, the day I had to sign my final Disability papers and leave my job--
a day when I felt my heart was cracking into jagged pieces--I began to realize that 
my notebooks were filled with the gold I could mine for the book I suddenly realized
I was going to start writing--the book I suddenly announced I would write to a room full of strangers, the words jumping out of my mouth before I knew what I was saying.
There are now more than five notebooks, all crammed with scraps, receipts, stick
drawings, doctors' appointment cards, prescriptions, get-well cards, and notes of all kinds...
and the best of those glints of gold became part of the book you are about to read.
Writing this book helped me understand how to go on living: how to change my life
and reach for joy. Not a pale or saccharine joy, but the robust, hard-won fierce joy that 
flames up out of harsh moments: the joy that is the honey in the rock.
I hope you find your own joy: fierce, or gentle.

Product Details

  • Paperback: 276 pages
  • Publisher: Greenpoint Press (June 1, 2012)
  • Language: English
  • ISBN-10: 0983237042
  • ISBN-13: 978-0983237044
  • Product Dimensions: 8.5 x 5.5 x 0.6 inches
  • Shipping Weight: 12.8 ounces (View shipping rates and policies)
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (13 customer reviews)
  • Amazon Best Sellers Rank: #650,691 in Books (See Top 100 in Books)

More About the Author

Ellen Schecter is a writer, producer, and educator. She's been widely published in print and on the web. She has written or collaborated on many multi-award-winning TV series for children and families, including "Reading Rainbow," and wrote the proposal and pilot for "The Magic School Bus."

She's published more than twenty children's books. "The Big Idea," her first novel, [Hyperion] won the Américas award. Her Family Haggadah was a Book of the Month selection.

She edited and helped write the beloved Bank Street Ready to Read series, and her articles about how to help children read appeared in Child, Parenting, and Sesame Street Parents.

Customer Reviews

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Most Helpful Customer Reviews
9 of 10 people found the following review helpful
Format:Paperback
"Fierce Joy: A Memoir" by Ellen Schecter is not just a book. It is an awesome journey into rediscovering the world of new hope and new meaning. Propelled by two devastating, life-threatening incurable illnesses, she enters into new worlds. Out of this devastation she shares, in brilliant style, her story of Fierce Joy discovered. Diagnosed with systemic lupus and CIPD (chronic inflammatory demyelinating polyneuropathy), Ellen writes with a brilliant down-to-earth realism, sprinkled with lots of humor, while opening paths to the rediscovery of joy while chronically ill. It is a book for anyone who is seeking "healing" while hoping for cures. Eugene B Richardson, President, <...>
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8 of 9 people found the following review helpful
5.0 out of 5 stars Fierce Joy April 16, 2012
Format:Paperback
This is a truly magnificant book - unsparing in its fierce pain and unsentimental in its joy. Ellen writes of her journey from happy wellness to serious illness and, finally, to a place where she finds an even deeper, more meaningful kind of happiness, crafting with such beautiful words and sentences that the reader experiences, in a visceral way, it's fierce joy. I highly recommend it!
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4 of 4 people found the following review helpful
5.0 out of 5 stars Wonderful Medical Memoir...and more June 14, 2012
Format:Paperback|Amazon Verified Purchase
"Fierce Joy" is a beautifully written memoir about the author's pain, suffering, and coping with two very serious, incurable, debilitating diseases: lupus and severe peripheral neuropathy. Schecter writes vividly and poignantly about her experiences with and anger at having such awful physically incapacitating diseases. She describes in detail the pain and humiliation these diseases have caused her, and her efforts to cope. But rather than being a didactic, dry, depressing medical memoir, "Fierce Joy" is a joy to read. Schecter also writes about the happiness and comfort she experienced because of the help of many physicians, therapists, family members, friends, flowers, music, and religion. She details her medical and emotional ordeals with a remarkable sense of humor and lack of self pity. "Fierce Joy" will inspire people not only suffering from lupus and peripheral neuropathy, but other painful, disabling chronic conditions. It should also be read by their physicians, caregivers, family members, and friends.
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Most Recent Customer Reviews
5.0 out of 5 stars Beautifully written
I read this book first because I went to high school with Ellen, and we were in the same sorority there, so, of course, I was intrigued. Read more
Published 4 months ago by Eleanor Damhesel
5.0 out of 5 stars Eye-opening
This book was brilliant, as the innermost thoughts and feelings of the author radiated off the page. Read more
Published 8 months ago by C.B.
5.0 out of 5 stars Sharing the Joy and the Pain
This remarkable book will move and inspire, and it merits a wide audience, especially among those who provide care and services to someone with severe pain and terrible medical... Read more
Published 9 months ago by Joan Ohlson
5.0 out of 5 stars The joy of paradox
Fierce as in savage and threatening, as in ardent and extremely intense. Joy as in ecstatic, as in exultant happiness. Read more
Published 9 months ago by David Perez
5.0 out of 5 stars Fierce Joy, not Fierce Pain
I couldn't put down this beautifully written memoir by Ellen Schecter about her journey through her debilitating incurable autoimmune diseases, systemic lupus and chronic... Read more
Published 9 months ago by Susan Sherwin
5.0 out of 5 stars Fiercely Wonderful
This superb memoir touched me deeply. We have all known pain to a greater or lesser degree, and it is impossible not to feel a blood connection with this author's journey through... Read more
Published 10 months ago by Sharyn Wolf
5.0 out of 5 stars Maura Mulligan
This book is marvelously written and compelling to read. You will not want to put it down. The pages of FIERCE JOY are filled with poetry and elegance. Read more
Published 10 months ago by Maura Mulligan
5.0 out of 5 stars When Our Body Betrays Us
As a psychotherapist I can highly recommend this memoir for all those who are dealing with a serious and debilitating health or life challenge or who knows someone who is facing... Read more
Published 11 months ago by Robin Halpern
5.0 out of 5 stars A Primer on How to Live
FIERCE JOY IS so beautifully written and as compelling a read as a good mystery or a love story... I couldn't wait to see what happened. Read more
Published 11 months ago by Arnine
5.0 out of 5 stars Excellent book for anyone
While Schecter's wonderful and important book describes her battle with a debilitating illness, the book makes
great reading for anyone--especially for baby boomers facing the... Read more
Published 11 months ago by Nancy Shapiro
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