Scleroderma—a chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tract—is extraordinarily difficult to diagnose and can take a huge toll on the psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated herself on every aspect of her condition. Now, as a "patient-expert," she guides those newly diagnosed step by step through their first year with scleroderma. She provides crucial information about the nature of the disease, treatment options, diet, exercise, social concerns, emotional issues, networking with others, and much more. The First Year™—Scleroderma is illustrated with charts and tables, and offers an invaluable guide for everyone learning to live with their diagnosis.
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Most Helpful Customer Reviews
6 of 7 people found the following review helpful:
5.0 out of 5 stars
This book is spectacular!,
By Wheez (Boston, MA USA) - See all my reviews
This review is from: The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (Paperback)
This book is spectacular! It is filled with lots of helpful information to help get you through this disease. The bottom line is: If you are diagnosed with scleroderma, this book is a must have.
5 of 6 people found the following review helpful:
5.0 out of 5 stars
A must read for scleroderma patients,
By Caren Berg (Los Angeles, CA) - See all my reviews
This review is from: The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (Paperback)
This is a wonderful book! As a newly diagnosed patient, I have found this book to be the best book I have read on scleroderma. Not only is it the most comprehensive, but it is extremely well organized and easy to read. The information and guidance the author provides is both practical and uplifting. I was so impressed with this book, I even bought a copy for my doctor!
I highly recommend this book for anyone with scleroderma, regardless of how long they have been living with the disease.
5 of 6 people found the following review helpful:
5.0 out of 5 stars
A must read for anyone needing to understand Scleroderma,
By
This review is from: The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed (Paperback)
This book was extremely helpful in my quest to better understand what someone very close to me is experiencing. I now have the knowledge and the understanding to help my friend cope with her disease.
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Inside This Book
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First Sentence:
WHETHER YOU were expecting a diagnosis of scleroderma or not, actually receiving one is enough to send even the most prepared patient into a state of shock. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
getting scleroderma, disease like scleroderma, scleroderma patients, linear scleroderma, localized scleroderma, systemic scleroderma Key Phrases - Capitalized Phrases (CAPs): (learn more)
Social Security, United States, Scleroderma Foundation, National Institutes of Health New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
WHETHER YOU were expecting a diagnosis of scleroderma or not, actually receiving one is enough to send even the most prepared patient into a state of shock. Read the first page Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
getting scleroderma, disease like scleroderma, scleroderma patients, linear scleroderma, localized scleroderma, systemic scleroderma Key Phrases - Capitalized Phrases (CAPs): (learn more)
Social Security, United States, Scleroderma Foundation, National Institutes of Health New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Back Cover | Surprise Me!
Citations (learn more)
This book cites 3
books:
- The Scleroderma Book: A Guide for Patients and Families by Maureen D. Mayes M.D. on page 58
- Systemic Sclerosis by Philip J. Clements in Back Matter
- The Lupus Book: A Guide for Patients and Their Families by Daniel J Wallace. in Back Matter
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