Amazon.com: Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome) (9780958117531): Raymond Geoffrey Tanner: Books

Book Description

Publication Date: 2004

"VCFS is the second most common genetic disorder after Down syndrome, affecting one in 2000 people. One in three VCFS adolescents will develop a psychosis of some kind, many degenerating into schizophrenia." - VCFS Educational Foundation. Dr Robert Shprintzen first diagnosed velo-cardio-facial syndrome, or VCFS, in 1978, but while one in 2000 people has it, VCFS remains relatively unknown. Most children born with the syndrome have heart and palate defects, distinctive facial appearance and learning difficulties Raymond Tanner: "As one of the oldest people with the syndrome, I can express my experiences to other families who are only just becoming aware of the syndrome." 54-year-old Raymond Tanner has always felt different. As a child, he looked unusual, had trouble speaking clearly and was a slow learner. Over the years, he's had countless operations to improve his appearance. For Raymond Tanner, diagnosis helped him re-evaluate his life, but it also brought a burden of guilt - both his sons were born with the syndrome. His first son died of heart problems when he was nine days old. His other son, Andrew, has ongoing health issues. - ABC Seven Thirty Report. Raymond Tanner has since achieved a university degree. He now hopes to help other families, through giving them a better understanding of VCFS, and encouragement in knowing that support is available and that there is hope for the future. This book is a compilation of stories from families from Australia, France, Israel, New Zealand, South Africa, the UK and the USA; and other important information. It also tells about Raymond Tanner's life story with VCFS (he was diagnosed with VCFS at age 43 and is now 54), the death of his son James 18 years ago with VCFS, and his second son who is 16 and his trials and tribulations in growing up with the Syndrome.

#outer_postBodyPS { display: none; } #psGradient { display: none; } #psPlaceHolder { display: none; } #psExpand { display: none; } "VCFS is the second most common genetic disorder after Down syndrome, affecting one in 2000 people. One in three VCFS adolescents will develop a psychosis of some kind, many degenerating into schizophrenia." - VCFS Educational Foundation. Dr Robert Shprintzen first diagnosed velo-cardio-facial syndrome, or VCFS, in 1978, but while one in 2000 people has it, VCFS remains relatively unknown. Most children born with the syndrome have heart and palate defects, distinctive facial appearance and learning difficulties Raymond Tanner: "As one of the oldest people with the syndrome, I can express my experiences to other families who are only just becoming aware of the syndrome." 54-year-old Raymond Tanner has always felt different. As a child, he looked unusual, had trouble speaking clearly and was a slow learner. Over the years, he's had countless operations to improve his appearance. For Raymond Tanner, diagnosis helped him re-evaluate his life, but it also brought a burden of guilt - both his sons were born with the syndrome. His first son died of heart problems when he was nine days old. His other son, Andrew, has ongoing health issues. - ABC Seven Thirty Report. Raymond Tanner has since achieved a university degree. He now hopes to help other families, through giving them a better understanding of VCFS, and encouragement in knowing that support is available and that there is hope for the future. This book is a compilation of stories from families from Australia, France, Israel, New Zealand, South Africa, the UK and the USA; and other important information. It also tells about Raymond Tanner's life story with VCFS (he was diagnosed with VCFS at age 43 and is now 54), the death of his son James 18 years ago with VCFS, and his second son who is 16 and his trials and tribulations in growing up with the Syndrome.

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