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Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body Paperback – November 19, 2013
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Top Customer Reviews
As Martin becomes more aware, he realizes that he has little to no control over his limbs and that he has no voice. All he can do is smile and move his eyes and head. He tries to use these signals to let everyone around him know that he is conscious and aware, but, as he states in the book, "They'd been told long ago that I was severely brain damaged, so when the young man with stick-like limbs, empty eyes, and drool running down his chin occasionally lifted his head, that's what they saw."
Martin spends the next decade in his unresponsive body, without a working voice. His days are spent at a day care facility while his parents work, but his father picks him up every evening to take him home to the family. His mind is active, and he spends much of his time developing elaborate fantasies to escape the horror of being trapped inside his own body; it's the only way he keeps from going mad.
Then a new caretaker enters his life and has a hunch that Martin is aware. She convinces others around her, and they take him to be evaluated for an alternative communication device. He passes the evaluation, and a new life is opened for him.
Martin speaks of his faith in God; that while he couldn't explain it, he knew that God was with him and he wasn't alone. His courage and strength is inspiring, as is the love of his father and mother and the woman he ends up marrying. I couldn't put the book down.Read more ›
*One caveat: Book not recommended for the faint of heart as it explicitly covers the heinous sexual, emotional and physical abuse suffered by the author at the hands of healthcare workers.
Martin was a normal, active boy until age 12 when he became ill. His parents took him to see many doctors and they had many test run, but no answers were to be found for his increasingly worse condition. Eventually he was without use of his body or mind. By the time he was 14, it seemed his death was inevitable. Yet Martin’s mind came back – he was finally aware again. His body remained still though and thus begins Martin’s journey as the self-dubbed, “Ghost Boy”. He could see, hear and comprehend all that was happening around him, but he was completely unable to communicate it.
This book is the story of those years as Martin’s mind awakened, but his body did not. In his own words, haunting, yet uplifting, he shows readers what it was like living in a body that refused to help him. He speaks of days in care centers where unimaginable things happened, of days with his parents when he longed to comfort them, but couldn't, of nights when his demons revisited him and left him sleepless.
Martin also shares his triumph. Of finally meeting someone who really saw him and knew he was more than just a shell of a body – knew he could understand what was happening all around him. Through that care worker his hopes were lifted and he worked long and hard to overcome the undiagnosed illness that had left him without speech, without movement, without a life – at first.
Martin is a faithful Christian and he does speak of God and how He is the only one who heard him for so long. However, the story and Martin’s miraculous life is mostly left to speak on its own. His strong, calm, and resolute faith are clear, but not overly stated or gratuitously gushed. I found it struck a nice balance.Read more ›
Most Recent Customer Reviews
This book was incredibly well done. I am very impressed, saddened & enlightened by his story. What a wonderful ending, hope he is living a wonderful life.Published 2 days ago by Donna
Amazing story of Martin Pistorius life. I had a hard time believing the sexual abuse he suffered while everybody believed he was a vegetable. Totally shocking. Read morePublished 6 days ago by Dee D.
Enjoyed this book. Wow! It made me realize how difficult it would be to just have a shell of a body, but have a fully functioning brain. It is amazing what technology can do. Read morePublished 7 days ago by DeLynne
I love the storyline behind this book. It makes you think twice about ppl with disabilities. It's very heart warming and anyone who reads it will be rooting for him along the way.Published 11 days ago by Missy
This book was amazing. I work with developmentally disabled adults. I would recommend anyone in the DD community to read this. Read morePublished 16 days ago by Bettyjo
It's like reading a diary. It's okay but doesn't keep my attention.Published 16 days ago by Jerry Kantor
I loved every page of this book! Sad, joyful and everything in between. I could not put this book downPublished 17 days ago by brenda watson