51 of 52 people found the following review helpful:
5.0 out of 5 stars
An Extensive Guide to Learning How to Live With Graves, November 12, 2001
By A Customer
This review is from: Graves' Disease: A Practical Guide (Paperback)
Whether you have just been diagnosed with Graves Disease or have been living with it for a while now, this book is a MUST have.
This book has become my bible on living with Graves Disease. When I first sat down with it I felt a little intimidated, felt I would never be able to understand all of this and to learn from it. Nothing could be farther from the truth! Ms. Moore has written a book that can be understood by anyone with or without a medical degree, it raises questions and gives answers that never seem to be addressed by our doctors. The first time reading I sat with a highlighter and a pen, thumb through my dog-eared copy now, I have many notes of 'this is me!' because her descriptions of what is going on in our bodies is so accurate. I have highlighted many areas that have raised questions only to find the answers within a page or two.
To live with Graves, one must become proactive in their chosen treatment. In my opinion, this book will help you learn how to do this very quickly. It will teach you all of the W's, What, When, Where, Why, and How, you will learn when to call your doctor and request labs, what the labs mean, questions to ask and answers to wait for, the role stress plays in our lives, what role antibodies play, the eye disease, what supplements are aids for us,. It covers the full spectrum of GD in an understandable way. Read it from cover to cover, or skip around, think of any question relating to Graves, go to the index and you will find an answer. It is a book, not just for Graves patients and their families, but for our doctors who treat us as well.
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37 of 38 people found the following review helpful:
5.0 out of 5 stars
A Thyroid Book that Moves Beyond the Gland to the Whole Body, August 22, 2001
By A Customer
This review is from: Graves' Disease: A Practical Guide (Paperback)
Graves Disease: A Practical Guide should become the gold standard for thyroid patients and their families. Like other popular books on Graves disease, Moore's maps out the basic Graves symptoms, Graves Opthalmopathy, diagnostic procedures, and treatment options. That's where the comparison ends. Unlike the other books I've encountered, this one ventures into more complex territory, and does it well. For example, instead of the standard single page on the nature of autoimmunity, Moore gives us a chapter that starts with the basics and gets detailed. She tells us what the immune system is; she clearly discusses antigens, antibodies, and autoantibodies in a way that allows the Graves patient to actually understand the intricate misfirings that result in disease. Nifty little illustrations let us see that antigen and the binding antibody. Any thyroid patient knows that our favorite refrain is, "the thyroid affects every cell in the body." This book might not hit every cell, but sure gives us a run at it: we learn about the various hormones and how Graves affects them, about vitamin deficiencies that go hand-in-hand with Graves and how those deficiencies play out upon our bodies, we're treated (yes, treated, considering the clear cut prose) to a lesson in the anatomy of the thyroid. In addition, Moore ventures where others are afraid to go, offering the latest theories of how the environment and hereditary play out together in the development of thyroid disease. She also incorporates alternative medicine into her discussion of treatment options through the testimonials of people who have employed alternative methods with or without allopathic treatment. The end result of this well-written and thoroughly researched book is that the newly diagnosed can read this and know precisely what is happening inside of their bodies and become fully informed on their treatment and lifestyle options.
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62 of 69 people found the following review helpful:
5.0 out of 5 stars
Elaine Moore Saved My Life, August 16, 2004
This review is from: Graves' Disease: A Practical Guide (Paperback)
Updated 2/06
Normally a fit, athletic 50 year old woman, 5 years ago Jan. 2001, I was so ill from all the horrible symptoms of Graves Disease on a cruise and could not even dance with my husband or climb stairs. When we got back for an immediate visit to the emergency room to have every heart test and all, this major medical center did not check my thyroid for hyperthyroid for the reason of the palpations, but found nothing wrong with my heart, which was their only focus.
After suffering for another 3 months, the next general MD I went to immediately diagnosed, just from my symptoms (what later blood work confirmed) that I was hyperthyroid. Test confirmed it was from Graves Disease. He gave me three options; drugs that have terrible side effects, surgery that can nick your voice box etc., or RAI; Radio Active Iodine. RAI is the route he signed me up for but I cancelled the appointment after my research on About.com forums scared me to death.
Also because you have to have monthly blood labs, I went into a shut down because my veins are so small at the bend of the arm where they want to take the blood, that most experienced nurses usually give up and get someone else to try several times nicking my nerves. I am a good patient but this was very hard and went into denial for a year since the heart palpitations were controlled with Atenolol.
The forums then, were like going to a cemetery with not much good news. I was feeling so much better, so did not go to any doctor and certainly not back to the one whom I did not follow his direction to have RAI, which I knew I would not do. I had to know the truth and trusted God to heal me or send the truth I needed.
I got back on About.com after that first year to find that there was now an expert with Elaine Moore as moderator, who really sounded like she knew what she was talking about. Plus there were so many women who were seriously helped by her. I wrote her, telling her my history and she informed me that the Atenolol would not work for the long haul.
Soon after the palpitations violently started until I was very scared at what they were doing to my heart. Thinking that I was going to have to go for surgery, I ordered her wonderful book. Education is so powerful and the truth will set you free. I got the information that was vital, and golly was I glad that I procrastinated until I got the answers I needed to make an informed decision! The Lord leads if you ask.
I started on 30 mg of Tap. in Jan 03 with no side effects following her guidelines and keeping tabs on her several forums and her website. I found a local lab, with a tech gal who was profoundly good with a butterfly in my wrist vain with monthly labs a breeze. I found a local Physician Assistant that was willing to keep watch over me, and give me the prescriptions I needed.
Getting a PA was suggested on the forums, as they are usually willing to learn and work with you. The Endo experience is often a horror story or at best a pain and difficult, though good ones do come highly recommended on The Recommended Doctor List on About.com Praise God for the Internet!
In a year of regulating and slowly lowering my dose, after a year and 8 months I was totally off all Tapazol with slightly low Free T3 and Free T4. TSI went way down a TSH taken again to see if that it is now working again. She explains clearly what your body, liver and all is doing. Over the time I was on TAP since Jan 2003 I had no side effects from the drug and was well except for days of hypothyroid from needing to lower the Tapazol again.
Finally I was totally off Tapazol...on nothing for a few months until I went hypo of all things! Elaine feels that I was hypo from the beginning and looking back at my life, I believe she is right from some symptoms I had. So I am taking small doses of Armour. From research I would stay away from the synthetics for that. Natural is best even if it is from a pig! In any case for Graves, do all you can to keep your thyroid. It is the heart of your heart and thermostat for everything. No pill can do all that it does.
I want to go back to my doctor with my testimony...and hope he wants to listen. How many doctors are ruining the lives of their patients! Now I was more careful with my health and diet than before. I believe from research that my whole crisis started from taking various diet aids getting ready for that cruise. No one should take anything that messes with your metabolism. That is the same thing as messing with your thyroid! If you can, avoid driving it and you crazy and getting very sick. There are several other reasons you get Graves, so research to see if your lifestyle can help.
I just cannot thank Elaine Moore enough for her research and dedication to see us well and whole, without the unnecessary consequences of ruined health for life because of the treatments. With the help of her informative book and her website forums, I have been educated to take charge of my health with correct choices.
Almost every person in my family, who has ever been seriously ill, has either died or has awful consequences because of severe or wrong treatment. I have lost a husband who was a doctor and sister for those reasons. You are not as helpless now with the internet, so do you homework and do not be intimidated by your doctor who most likely will not support your research.
It is wonderful when a dedicated person takes the time from her life to write a book that literally saves lives. Anyone who wants to start a fan club, write me at ... whateverispure at yahoo. Blessings and luvluvluv to Elaine!
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