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Guillain-Barre Syndrome: From Diagnosis to Recovery (American Academy of Neurology Press Quality of Life Guide Series) Paperback – February 15, 2007

ISBN-13: 978-1932603569 ISBN-10: 1932603565 Edition: 1st

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Editorial Reviews

Review

"There is a pressing need for an authoritative and clearly written book such as this... The combined perspective of a neurologist and a physician with a personal history of Guillain-Barre have very eloquently given voice to the issues of most interests to patients and their families... It is certainly a reference to which I shall refer patients and their families."--Doody's Reviews

"From rehabilitation to acute care and coming home again, Guillain-Barre Syndrome is a must for any serious health library."--Midwest Book Review

"Brings together the new scientific evidence on GBS, as well as offering a wealth of practical advice. The book provides a good overview of diagnosis, causation and treatment, including rehabilitation, caregiver guidelines and workplace adjustment... It provides solid information and focuses on the positive steps for someone with GBS to work towards a complete recovery."-- CAPHIS Consumer Health Connections (CAPHIS Consumer Health Connections 2010-05-03)

About the Author

Gareth J. Parry, MB, ChB, FRACP was born in New Zealand and obtained his medical degrees at the Otago University Medical School in Dunedin, New Zealand. He did his neurology residency at the University of Pennsylvania at the time of the GBS epidemic that followed the swine influenza vaccination program in 1976. That experience instilled in him an interest in GBS and related diseases that has stayed with him for his entire career. He currently lives in Minneapolis where he is a Professor of Neurology at the University of Minnesota.

Joel S. Steinberg, MD, PhD, FICA is Medical Director, Circulation Care and Vein Centers at Drexel University College of Medicine in Philadelphia and an officer of GBS/CIDP Foundation International in Narberth, Pennsylvania. As he was recovering from GBS, in 1982, he joined several patients and loved ones to form the Guillain-Barre Syndrome Foundation International. Dr. Steinberg has lectured and written extensively on various circulation and GBS issues, in the United States, Europe and India.
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Product Details

  • Series: American Academy of Neurology Press Quality of Life Guide Series
  • Paperback: 264 pages
  • Publisher: Demos Health; 1 edition (February 15, 2007)
  • Language: English
  • ISBN-10: 1932603565
  • ISBN-13: 978-1932603569
  • Product Dimensions: 6 x 0.5 x 9 inches
  • Shipping Weight: 12 ounces (View shipping rates and policies)
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (20 customer reviews)
  • Amazon Best Sellers Rank: #726,782 in Books (See Top 100 in Books)

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Customer Reviews

This book gives me many aspects of the disease and recommends how to use my own life after GBS.
Chat L.
Written for the layman, but just packed with medical information for the professionals and caregivers, this was so very helpful to me.
Amazon Customer
And for giving me the ability to look forward, for now I know, it will get better in time, given time.
Charlene Bookstore

Most Helpful Customer Reviews

8 of 9 people found the following review helpful By Charlene Bookstore on March 26, 2008
Format: Paperback
Until I was told I had GBS (Nov 2007), I had never heard of it. Once I read this book cover to cover, I gained an understanding of GBS, which I had been looking for and was unable to find in others. I felt as if someone had been following me around, writing down everything that happened the weeks before and the first two weeks I was in the hospital.

This book should be required reading for all PCP and ICU nurses that are caring for GBS patients. I believe it would give them the compassion they need along with the knowledge, as to what to do for their patients and how to handle situations with their GBS patients that may/will come up.

I have to thank those involved in writing this book, for giving me the information which I had been looking for, in layman terms and was unable to find. And for giving me the ability to look forward, for now I know, it will get better in time, given time.

I know that there is still much I must overcome to gain as much of a recovery as I can, however now I have the tools to make it through.
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7 of 8 people found the following review helpful By Chat L. on June 28, 2007
Format: Paperback
I am a patient suffering in Guillanin Barre Syndrome and still have recovery.
This book gives me many aspects of the disease and recommends how to use my own life after GBS.
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6 of 7 people found the following review helpful By Midwest Book Review on July 7, 2007
Format: Paperback
Guillain-Barre Syndrome is a condition in which the body's immune system attacks part of the nervous system, resulting in symptoms ranging from tingling and weakness to paralysis. GUILLAIN-BARRE SYNDROME: FROM DIAGNOSIS TO RECOVERY is co-authored by a survivor of the condition and covers everything from early symptoms and treatment options to diagnostic methods and prognosis. From rehabilitation to acute care and coming home again, GUILLAIN-BARRE SYNDROME is a 'must' for any serious health library.
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3 of 3 people found the following review helpful By Kathleen Haak on January 3, 2009
Format: Paperback
My five year old nephew has Guillain-Barre. It's very difficult to find material that deals with children and Guillain-Barre. There is a little bit in this book. I think it would be a great book to read for an adult with GB or adult caregiver.

Both my mother and I really like the fact that this book covers a lot of aspects of GB. There are some points where the medical detail was over my head but I was able to get the gist of it. It was nice to know that picking the leg up at the ankle is a common issue and usually one of the last things to come back. He will start learning to walk again in January which seemed strange to me because he can not pick up his feet on his own but now I know that's somewhat normal.
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2 of 2 people found the following review helpful By Online buyer on September 18, 2008
Format: Paperback Verified Purchase
Gillian-Barre Syndrome is a rare disease, so acurate, up to date resource materials about this are sore lacking. This book helps to fill the void.
Because this disease is rare, there is not a lot of research, and most doctors only rarely encounter a case in their medical career. Medical schools are still teaching out-dated information. Therefore, it is up to the patient and caregiver to stay informed. GBS patients should buy a copy for themselves, and one for their doctor.
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2 of 2 people found the following review helpful By C. C. Keegan on September 23, 2008
Format: Paperback Verified Purchase
Excellent facts and representation of experience - since I personally experienced this disorder, and recovered 99%, I am confident in my assessment of book's content. It's good that the information is out there - so few people are even aware of the nature of this disorder!
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1 of 1 people found the following review helpful By Alec DeFilippo on September 27, 2013
Format: Paperback
"Guillain-Barré Syndrome: From Diagnosis to Recovery" is and understated title; this book is so much more than that. The authors do an amazing job explaining everything about the affliction and how it affects every aspect of the patient's life including family, friends, and caregivers. All content is simply and concisely explained in terms anyone could understand and any question you might have about the myriad medical and biological terms is typically answered immediately by the authors, or available in the supplied glossary. I was very interested in this book both because of my enjoyment for neurology, but also because the topic heavily resonates with me. About 5 years ago my mother had a fairly severe case of Guillain-Barré Syndrome and I wanted to better understand everything she had to and still has to deal with. This book was extremely helpful in that regard as well as many others.

The content is very well organized across 9 chapters as well as supplementary resources and leads the reader through the course of the disease from diagnosis to life after `recovery' (as you will learn there is rarely 100% recovery). I finished the book with no outstanding questions as the authors do a great job explaining everything they introduce and state. Each chapter and subsection builds upon info previously revealed in the text, which is great because it reinforces the ideas already presented and promotes continuity, making the read easier as it flows well. Additionally, boxes with text excerpts are used liberally throughout the text to highlight the most pertinent information. For example, "Guillain-Barré Syndrome is a type of peripheral neuropathy - a condition involving degeneration of the nerves extending into the head, body, and limbs" sums up what the disease is.
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1 of 1 people found the following review helpful By Danielle Boyd on August 11, 2013
Format: Kindle Edition
I was hit with GBS in 2010 and have made learning as much as I can about it one of my life's missions. I had the opportunity to meet Dr. Parry and Steinberg on separate occasions. Meeting Dr. Parry was a complete joy, as I listened to him and saw his ability to connect with questions from patients. He has a great sense of humor and reality as he delivers his message. Steinberg, on the other hand, is a train wreck and not because of his "supposedly" GBS encounter. He is pompous, with eyes rolling, and could not answer a single question I had. His attempt was to make my questions appear ridiculous. He also made a verbal attack against Dr. Parry. I was stunned. Get what you can from this book - there is a lot of value and it's a starting point.
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