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Heart Warriors: A Family Faces Congenital Heart Disease Paperback – April 24, 2012


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Product Details

  • Paperback: 300 pages
  • Publisher: Behler Publications (April 24, 2012)
  • Language: English
  • ISBN-10: 1933016809
  • ISBN-13: 978-1933016801
  • Product Dimensions: 0.8 x 5.5 x 8.5 inches
  • Shipping Weight: 12 ounces (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (46 customer reviews)
  • Amazon Best Sellers Rank: #1,108,931 in Books (See Top 100 in Books)

Editorial Reviews

Review



"Anyone who has ever suffered grief, in any form, will benefit from this passionately honest book. Grief is Amanda Adams' constant companion, both her oppressor and her guide, as she gropes her way through a heart-rending experience."—Kristin Henderson, author of While They're at War: The True Story of American Families on the Homefront

About the Author

Amanda Adams is a “Heart Mom” and a powerful voice within the CHD community by working closely with cardiologists, cardiothoracic surgeons, and nurses from Harvard University, Baylor University, University of Southern California, University of Illinois, and CU Boulder Medical. She founded two 501 c3 nonprofit organizations for CHD, organizes medical conferences for Hypoplastic Right Hearts, attends medical advisory board meetings and national chapter presidents meetings for the Children’s Heart Foundation, and chaired the Congenital Heart Walk in Colorado. As a pioneer of CHD advocacy, she is also firmly rooted in the social network of CHD parents and survivors.

Amanda has done several press interviews and addressed a variety of audiences on behalf of the American Heart Association, including her speech to over 10,000 walkers and the press for the 2006 American Heart Association Heart Walk in metro Denver.

More About the Author

Amanda Rose Adams was a graduate student when she and her husband learned that their first child would be born missing half of his heart. Her first book, Heart Warriors, A Family Faces Congenital Heart Disease (Behler Publications, 2012) recounts the journey the Adams took from expecting parents to Heart Warriors. Adams works tirelessly as an advocate for children and families facing all forms of congenital heart disease, the most lethal and most common birth defect facing children the world over. She founded two nonprofit organizations to both educate parents about rare congenital heart defects and raise critical research dollars.

Adams has also written for Scrubs Magazine for Nurses (scrubsmag.com) and the American Academy of Pediatrics Section on Bioethics.

Amanda Rose Adams was raised in a trailer park in Greeley, Colorado and was the first person in her family to graduate from high school and the only one to attend college. She is currently working on her second book, Lot 109, Tales from the Trailer Park.

Customer Reviews

4.8 out of 5 stars
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See all 46 customer reviews
This book is a must read for heart families!
Cherise Gunnerson
I received this book on Thursday and finished reading it Friday evening..
Jan Pelrine
Thank you, Amanda, for sharing your family's story.
Damian Fleming

Most Helpful Customer Reviews

9 of 9 people found the following review helpful By PWodzisz on April 9, 2012
Format: Paperback
I absolutely loved (and still love because I am sure I will read it over and over again) this book. I am a heart mom too and Amanda managed to share so much of how I felt and feel throughout her book. The hope that resonates is inspiring and the words flow so easily. I found myself laughing, crying, and understanding every single word. As an advocate for heart kids, families, and the world...she is amazing. I am proud to be a heart mom...especially when there are women like Amanda to represent us so well.

Thank you Amanda for putting in writing how so many of us feel. It is definitely a MUST read for all heart parents...actually for ALL parents.
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7 of 7 people found the following review helpful By DMB1230 on May 22, 2012
Format: Paperback Verified Purchase
Length: 4:58 Mins
I chose to do a video review of Amanda Rose Adams' book called "Heart Warriors". Please view it if you have time! This book is HIGHLY recommended.
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4 of 4 people found the following review helpful By Lindsay on June 20, 2012
Format: Paperback
An insightful and brutally honest look into the world of congenital heart disease and the disastrous (though inspiring) effects CHD can have on a family. Adams has mastered the craft of turning the negative into the positive and the destructive into the constructive within herself, her family and the CHD community, aka the Heartland. Heart Warriors is a extraordinary combination of suspense, self-help, medical text and memoir. Sure to give your heartstrings a pull, it's a great read for both book clubs and families facing congenital heart disease.
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3 of 3 people found the following review helpful By K. M. Nice on May 26, 2012
Format: Paperback Verified Purchase
This book is an inspiring story of the courage displayed by one family in particular and, by extension, all families dealing with congenital heart disease. It is humbling to realize what these parents and children have to face on an ongoing, day to day journey that most of us will never truly understand. Well worth the read!
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3 of 3 people found the following review helpful By Shaugna Ortiz on May 17, 2012
Format: Paperback Verified Purchase
Having just met Amanda, I purchased this book because I wanted to be supportive of her, and her beautiful son and family. This book BLEW. ME. AWAY. I recommend everyone read it. This book is incredibly well written, insightful, painful, and beautiful. Not only did I learn about CHD, a topic I knew nothing about, this book also helped me realize some important things about myself - who I am and how I see the world. Amanda's raw honesty and even witty humor in the face of devastation opened up a tightly locked part of my soul. I certainly did not expect this book to heal me - but that is exactly what it did. Amanda Adams, you are amazing!
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3 of 3 people found the following review helpful By cristen on April 30, 2012
Format: Paperback
Of all the books on parenting a child with CHD, this is the only one that I've ever loved! This book was POWERFUL and Amanda's recount of her son Liam's health battles were so candid and eloquent I spent much of my reading with tears on my face and a highlighter in hand. As other reviewers have said, I felt as though she was literally saying the things I've said and thought since my own son's diagnosis and open-heart surgeries. While Amanda's family's experiences were beautifully and painfully retold, I equally loved her call-to-arms to fight this devastating disease. In many ways I have felt alone since I became my son's Heart Mom, and for the first time I know someone like me is fighting for her child's future too. BRAVO! This book should be given to every nurse, mother, and friend you know...it's THAT GOOD.
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3 of 3 people found the following review helpful By Kristine B on April 9, 2012
Format: Paperback
I cried before I got through the first chapter of "Heart Warriors." I felt like I went through every up and down and fork and twist in the road with the Adams' family. Anyone that wants to learn a bit more about life as a CHD family should read "Heart Warriors," and anyone in the community will find themselves nodding their heads along as Amanda puts feelings into words and describes so many universal truths for heart families. I love Amanda's use of metaphor. She's a creative, talented writer, and I cannot wait to read more of her work.
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2 of 2 people found the following review helpful By Vine Leaves Literary Journal on November 12, 2013
Format: Paperback
Review by Krystal A. Sital

A great book is one that not only stays with you long after you've finished it, but for the rest of your life. As an avid reader, I've found only a handful of these. Amanda Adams's "Heart Warriors" is a new addition. She has re-created her world for readers, followers, family, and friends. Adams has taken us beyond an unforgettable narrative--she has educated.

"Heart Warriors" is nonfiction, one written with heartbreaking honesty and an enormous amount of research. This book is not an easy read, nor should it be. At the beginning, we are immediately flung into the midst of her son's--Liam's--life in the hospital. Here we discover their family--Amanda, her husband Jim, and their children Liam and Moira. Adams draws you deeper than many authors I've read while simultaneously holding you at bay. We can sympathize with her. Families who have a member or who had a member with CHD, can cross barriers others cannot. But every step of the way, with the reminder of Liam's unique heart, their family remains apart, yet accessible, to anyone who chooses to read this book.

How many of us know that CHD stands for "congenital heart disease"? Or that one out of 100 babies are born with it? Or that it is the most lethal disease children face? Can you believe "Over eighty million CHD hearts beat on this planet." These are only a sliver of the things you learn on this journey. I commend Adams on walking the tightrope of heavy research mingled with the art of storytelling and being able to make it to the other side.

Amanda Adams serves as narrator, advocate, mother, wife, daughter, aunt, sister in-law, and so many other roles through the most trying time of her life. I walk away from this book knowing I will never forget Amanda, Liam, Jim, and Moira.

And never would I want to.
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