You cannot believe this book and young 11 year old author. For his remarkable story see VSPbooks.com. Amazon has the best price, but his story is worth reading on VSP. I saw him on Book Talk show on c-Span Sept, 1st, and could not believe my ears and eyes. He is in Children's Hosp. in Maryland. His mom lives therE with him. She was diagnosed with a form of MD in 1992, Lost 2 children from it aT a young age, and now has 3 others who were also born with it. Mattie is the writer...mom does research and writes technical material, and is very well spoken, but it is the boy's command of the English Language and his self-expression that is nohing short of ASTOUNDING...read the book and weep....with joy and inspiration. There is no way of knowing how long he will live, nor his siblings, as it is progressive. Another book is coming out in Sept,