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How to Be a Sister: A Love Story with a Twist of Autism [Paperback]

Eileen Garvin
4.2 out of 5 stars  See all reviews (27 customer reviews)

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Book Description

April 27, 2010

Eileen Garvin's older sister, Margaret, was diagnosed with severe autism at age three. Growing up alongside Margaret wasn't easy: Eileen often found herself in situations that were simultaneously awkward, hilarious, and heartbreaking. For example, losing a blue plastic hairbrush could leave Margaret inconsolable for hours, and a quiet Sunday Mass might provoke an outburst of laughter, swearing, or dancing.

How to Be a Sister begins when Eileen, after several years in New Mexico, has just moved back to the Pacific Northwest, where she grew up. Being 1,600 miles away had allowed Eileen to avoid the question that has dogged her since birth: What is she going to do about Margaret? Now, Eileen must grapple with this question once again as she tentatively tries to reconnect with Margaret. How can she have a relationship with someone who can’t drive, send email, or telephone? What role will Eileen play in Margaret’s life as their parents age, and after they die? Will she remain in Margaret's life, or walk away?

A deeply felt, impeccably written memoir, How to Be a Sister will speak to siblings, parents, friends, and teachers of people with autism—and to anyone who sometimes struggles to connect with someone difficult or different.


Frequently Bought Together

How to Be a Sister: A Love Story with a Twist of Autism + Thicker Than Water: Essays by Adult Siblings of People with Disabilities
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Editorial Reviews

Review

“There is nothing gentle or elegiac about the tone of Eileen Garvin’s How to Be a Sister, and while there’s self-awareness, there’s a welcome lack of extended self-analysis. The focus instead is squarely on the author’s sister, Margaret, diagnosed as autistic at 3 years old. . . . Garvin’s storytelling abilities are strong, and her fierce, protective love for Margaret, whom she brings to stinging life on the page, gives this book real power.”
The Washington Post

“Autistic kids grow up to be autistic adults. They have brothers and sisters who grow up alongside them. This book is an unforgettable, courageous, and explicit sibling’s eye view into a rarely explored relationship, where the bond wrought by love and joy, crisis and heartbreak is mesmerizing.”
Mary-Ann Tirone Smith, author of Girls of Tender Age: A Memoir

“Although Eileen Garvin was the younger sister, she was expected to be responsible for Margaret. Now, as an adult, Eileen struggles to understand her unpredictable and effusive sister, and finds that no matter how much confusion and inner conflict she feels, she always returns to love. A poignant, thoughtful, and honest portrayal of life with a sibling who has autism.”
Rachel Simon, author of Riding the Bus with My Sister and Building a Home with My Husband

How to Be a Sister, told with amazing insight and compassion, is rich in the hilarious detail of coping with a beloved family member with special needs. Read this book. It will enrich your life.”
Terrell Harris Dougan, author of That Went Well: Adventures in Caring for My Sister

“Eileen Garvin’s portraits of her sister Margaret in chaotic action bring a rich identity into focus, an identity that includes autism—but also a wild and playful tug-of-war with the world that more truly defines Margaret. Bravo to Eileen for seeing and for enabling the rest of us to witness her sister’s creativity, purpose, and profoundly independent path.”
Judy Karasik, coauthor of The Ride Together: A Brother and Sister's Memoir of Autism in the Family

“Eileen Garvin has written a deeply reflective, generous book about her relationship with her older sister, Margaret, who has autism. A compelling description of how Garvin’s childhood experiences continued to influence her interactions with her sister many years later, it gracefully intertwines humor, pain, respect, and optimism. Eileen Garvin is open about her struggles, her love, her anger, her guilt, her fear, and her respect of her sister—as a child and as a woman. Every parent who is raising both a child with autism and a neurotypical child should read this book. So should every older teen or adult sibling of a person with autism. And so should all the rest of us who want to gain a greater empathy for the life of a family which includes a child with autism.”
Sandra L. Harris, PhD, executive director, Douglass Developmental Disabilities Center, Rutgers University, and coauthor of Siblings of Children with Autism: A Guide for Families

“A marvelous, harrowing, life-affirming book. In looking to forge a meaningful relationship with her severely autistic sister, Eileen Garvin finds a simpler way of being in, and extending, every moment. Isn’t that what we’re all after? I loved this book. And boy, can she write!”
Abigail Thomas, author of A Three Dog Life: A Memoir

About the Author

Eileen Garvin was born and raised in the Pacific Northwest. The youngest of five children, she has always been close to her sister Margaret. She completed her B.A. in English at Seattle University, and her M.A. in English at the University of New Mexico. She writes for newspapers, magazines, and Web sites from Hood River, Oregon, where she lives with her husband.

Product Details

  • Paperback: 272 pages
  • Publisher: The Experiment (April 27, 2010)
  • Language: English
  • ISBN-10: 1615190163
  • ISBN-13: 978-1615190164
  • Product Dimensions: 8.2 x 5.3 x 0.7 inches
  • Shipping Weight: 9.6 ounces (View shipping rates and policies)
  • Average Customer Review: 4.2 out of 5 stars  See all reviews (27 customer reviews)
  • Amazon Best Sellers Rank: #952,754 in Books (See Top 100 in Books)

More About the Author

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Customer Reviews

Eileen Garvin is a great writer and tells a wonderful story! P. Nye  |  10 reviewers made a similar statement
I laughed, cried, and read all night...captivated. Sharon Ramey  |  4 reviewers made a similar statement
Bravo Eileen Garvin! Paul Myers  |  6 reviewers made a similar statement
Most Helpful Customer Reviews
8 of 8 people found the following review helpful
Format:Paperback
Autism does more than affect the individual. It affects a family. "How to Be a Sister: A Love Story with a Twist of Autism" is the reflections of one girl growing up with a sister with severe autism. She shares her stories and what Margaret, her sister, has taught her over the years through her disorder. Poignant, thoughtful, and sure to give many family members of autistic children something to relate to, "How to Be a Sister" is a solid addition to any memoir collection focused on autism.
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9 of 10 people found the following review helpful
2.0 out of 5 stars A Well Written, But Uncomfortable Read October 8, 2011
By G.D.
Format:Paperback|Amazon Verified Purchase
Eileen Garvin's account of her childhood and current relationship with her sister is unique, and her personal writing style gives a great glimpse at what having a sibling with severe autism can be like. Unfortunately, her past history tells such a sad and self-deprecating tale that it undermined any desire to continue reading. I dare say that if I did not have to read this book for class, I would never have finished it.

For the majority of the book, the author is a victim of abuse at the hands of her sister's outbursts and inability to cope with the rest of the world. She struggles, in vain, to understand Margret's actions and attempts to form some connection with Margret, thinking that if maybe she can communicate with her on a deep, emotional level, that perhaps the past thirty years of torment and suffering will have been worth it.

It's hard for me to view this as anything but an abusive relationship, and I'm sure I will be chastised by others for thinking this way. Margret does not do these things to spite others; it is her way of coping. That does not make it any less painful to read though because her actions still cause very real consequences that alienate and humiliate the rest of the family. Eileen cannot accept that things will never change and her years of hope and failed attempts come across as pathetic and desperate.

If you are looking for a book that shows, in very painful detail, the interactions and adaptations of a family with a severely autistic child, then this book will be extremely insightful. This is not a book to read in leisure or for pleasure.
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4 of 4 people found the following review helpful
5.0 out of 5 stars An amazing work! February 4, 2011
Format:Paperback|Amazon Verified Purchase
I loved this book. Like other readers, I could not put it down. Eileen's description of events makes you feel like you are in the room witnessing it all. I think back to the hairbrush story where you get the sense of shock as Eileen realizes how her childhood is very different than other girls her age because Eileen has become the self-appointed caretaker of her older autistic sister. My friend has an autistic son. For the first time, this book gave me a glimpse into what it is like inside her home. I had no idea. I passed it onto my friend the day after I finished it.
I was so moved by this book. I was laughing out loud as well as had moments of tears streaming down my face. I have huge admiration for this author and can't wait to read her future books. I can only hope that she is sitting back at a keyboard working on her next book. Bravo!
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Most Recent Customer Reviews
5.0 out of 5 stars someone else gets it
When autism enters your family, it becomes a series of agonizingly painful events mixed with moments of unexpected joy and humor. Read more
Published 2 months ago by Sheila Skinner
4.0 out of 5 stars "I always feel like I am showing up just a bit unprepared in life."
Eileen's older sister Margaret has severe autism. She shares with us the rudderless feel of living with a sister who is prone to startling displays of screaming and random... Read more
Published 6 months ago by Amelia Gremelspacher
4.0 out of 5 stars Very informative!
I knew very little about autism except that a few friends children with varying degrees of this malady. Read more
Published 6 months ago by Janice K Hurst
3.0 out of 5 stars Interesting
This book was really interesting, really intense at times, but very repetitive. I sometimes felt like I was reading the same story over and over.
Published 7 months ago by Amy
5.0 out of 5 stars From Another Chick Who Has a Sister With Severe Autism
Reading through other reviews about this book, I was faced with frustration. "Uncomfortable"? "Bitter"? Read more
Published 8 months ago by sweetshadow11
5.0 out of 5 stars Great sister bonding book!
Great book, recommended to us by our behavior therapist, for a younger sister trying to understand her older sisters autism behaviors, and more.
Published 8 months ago by autism mom
4.0 out of 5 stars How to be a sister
very interesting and honest book that deals with a very difficult situation - think she was very honest in sharing her emotions and helping the reader understand the whole issue of... Read more
Published 8 months ago by speechdog
1.0 out of 5 stars Repetitious
I bought this book for my sisters, mother and myself to read together. I got through 90% and the others were lucky if they read 50%. Read more
Published 9 months ago by samy42
3.0 out of 5 stars Interesting point of view
Autism is not an easy topic to write about. There are many very badly written books about a personal relationships with someone with autism. Read more
Published 9 months ago by MELY
5.0 out of 5 stars Excellent book!!
I was so glad that I purchased this book. This is a true story that is heart felt and told with only the insight that a loving family member could tell. Read more
Published 10 months ago by Sue Kittle
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