Customer Reviews

Hughes Syndrome: Patients' Guide

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3 star:		(1)
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1 star:		(1)

 

 

Not long ago, my wife was diagnosed with "possible MS." The symptoms were there, and my wife and I prepared for life with this new situation. However, recently, this diagnosis has been overturned in favor of "antiphospholipid syndrome" or Hughes Syndrome. This condition is characterized by the sufferer's blood clotting too easily, resulting in a number of symptoms, many of them quite serious.

In this wonderful book, Dr. Graham Hughes of St. Thomas' Hospital, London (and the man for whom this syndrome is named) gives the lay-reader and doctor alike a clear and concise understanding of what this syndrome is, what its effects are, and what treatments are currently available. Though quite short (63 pages), it is jam-packed with easy-to-read information, which is well organized, and complete with some excellent illustrations and many case studies. The case studies go a long way towards giving the reader a clear idea of what having Hughes Syndrome means to those suffering from it.

My wife and I are very glad we got this book. It is truly nothing short of excellent. Plus (as previously pointed out), its price is quite modest compared to the other Hughes Syndrome books currently available. If you or anyone you knows has been diagnosed as having Hughes Syndrome, then I highly recommend that you purchase this book!

As a patient who's been diagnosed with Antiphospholipid Antibody Syndrome since 1994, also known at Hughes Syndrome, I found this to be the ONLY book written for patients and their families on this subject. The price, compared to the other books on this disease, which are doctor focused, is fantastic.

In an easy to read style, Dr. Hughes describes this auto-immune disease completely. This is a great book for both patients and their families. I recommend this highly.

This is basically a starter guide for anyone recently diagnosed with APS / Hughes syndrome. The author is the namesake of this syndrome. He writes a frank discussion of the different symptoms of complications of this disorder. Very helpful to educate yourself if you have been newly diagnosed and are looking for information. It was updated in 2001, but no significant patient data since original publication research in the late 80's.

I got this book for free from my hematologist after being diagnosed with Hughes Syndrome, or antiphospholipid antibody syndrome. It is somewhat informative, but quite outdated. Hughes Syndrome was discovered in 1983, so it's a relatively new disease. This book was written in 2001, so there has been more research since it was published. This complicated syndrome can't be described in such a short book (not much more than a pamphlet) and the book fails to mention the many other physical symptoms patients may suffer from (muscle soreness & extreme fatigue to name just a few).

I would recommend Sticky Blood Explained by Kay Thackray and More Sticky Blood by Kay Thackray instead of this book.

The information in this book is ten years out of date and contains only basic information that can be found on-line for free. It is only 63 pages, but could have been printed on 30 if publisher had not padded the book with illustrations, a large font, and a lot of white space. The list price of 59.95 is obscene. You can find all the information contained in this book at the Hughes Syndrome Foundation website. The text in on the site and in the book are almost word for word, but the site mentions drugs that have come on the market in the last ten years.