I have had moderate to severe ulcerative colitis through the entire length of my colon for four years now. Recently, I decided to get more active in my management of the disease and this was the first book I picked up. I also began a blog recording what it is like to live with the disease. Check it out at nowucme.wordpress.com. I'm reposting my review of the book to help others find out all they can about their disease:
Couple nights ago I finished reading "IBD self-management." Overall, a great overview of many of the topics, covering Crohn's, U.C., and IBD in the other forms it comes in. Chapters are dedicated to the most important questions: what is it, what treatments are available, when is surgery an option, how should you change your diet, and how should you adapt your lifestyle.
As good a job as the book does at covering all of that in an informative, accessible way, it was too brief on a lot of the topics I really wanted to know more about. For example, although the chapter on diet has good information about the importance of fiber and its various forms, there isn't much useful advice on forming a diet around your disease, or specific foods that most people have trouble with. Likewise with the lifestyle chapter. Although I understand that everyone experiences IBD differently, more guidelines and information would have made the book significantly more useful.
One other omission is what IBD does to you as a person. Dr. Kane includes anecdotes about her patients and mentions that depression and other behavioral problems are associated with IBD, but neither of these conveys are addresses this side of the disease. This was not the purpose of the book, so I don't fault her for being light on this area, but I do see this as a huge part living and managing your IBD and one that needs attention.
Of course, that's why I began this blog in the first place.
Like I began with, this book is a great overview, especially if you have just been diagnosed with some form of IBD. It will help you understand what is happening and how to deal with it, and it is well worth a read for anyone who is affected by IBD in any way at all. Just don't expect to gain much insight into the non-medical effects of the disease.